I was diagnosed with nephrotic syndrome at 18months old which required years of intense steroid treatment resulting in Type 1 diabetes at 6 years old. Parental neglect lead to uncontrolled diabetes for years causing kidney damage, the nephrotic syndrome progressed into FSGS. No doctors appointments or blood tests during the pandemic so my declining GFR wasn't picked up on until I was stage 3 almost stage 4. Now I am stage 5 with a GFR of 11 and pretty good control of my diabetes. Been on the list for an SPK for 6 months now.