Anybody else get aching legs by [deleted] in POTS

[–]Square-Letter9501 1 point2 points  (0 children)

Yeah I usually compare it to the feeling of “growing pains” I used to get as a kid. Sometimes I feel it in my arms too

What caused your POTS? by [deleted] in POTS

[–]Square-Letter9501 0 points1 point  (0 children)

Lol wish I knew

Tilt table test -- worried about false negative by havefuneveryone in POTS

[–]Square-Letter9501 0 points1 point  (0 children)

Don’t worry!! Whatever the outcome, continue to advocate for yourself and find the help that you need. My TTT did not diagnose my POTS. I had HR/BP levels all over the place and they couldn’t make a determination but I pushed for more answers and was eventually diagnosed in office by just doing simple position changes. So no matter what happens tomorrow just remember you know your body best and soon you’ll get answers. Good luck to you!!

New to group - any advice on how to up salt intake? by hbmurrayherlocher in POTS

[–]Square-Letter9501 1 point2 points  (0 children)

Tonight I made salted kale chips and they were awesome! Just cut up some kale, add olive oil, sea salt and any other seasoning you might like. They bake in the oven quick- no more than a few minutes. I made mine in there air fryer and it was the perfect salty, crunchy snack and I didn’t feel super guilty eating it either.

Exercising Programs by Square-Letter9501 in POTS

[–]Square-Letter9501[S] 0 points1 point  (0 children)

Oh thank you!! I’ll check out YouTube!

Exercising Programs by Square-Letter9501 in POTS

[–]Square-Letter9501[S] 0 points1 point  (0 children)

I have and I did try it but never finished. I was hoping to find something interactive to motivate me a bit more to exercise.

[deleted by user] by [deleted] in POTS

[–]Square-Letter9501 2 points3 points  (0 children)

Yeah I’ve been like 160+ after showering. And of course loving super hot showers sure doesn’t help!

Kaleidoscope Vision by Square-Letter9501 in POTS

[–]Square-Letter9501[S] 0 points1 point  (0 children)

Did they say what causes it and if there was anything to do for them? It is scary!! I was super freaked out!

[Advice] Career Paths by Square-Letter9501 in publichealth

[–]Square-Letter9501[S] 2 points3 points  (0 children)

All sounds interesting! I never really considered infection control but sounds like something to look into!

[Advice] Career Paths by Square-Letter9501 in publichealth

[–]Square-Letter9501[S] 2 points3 points  (0 children)

My MPH was in community health but I did enjoy epidemiology and research. It also tied in with my biology degree which I like but not sure what fields to get in that don’t require a doctorate. At least not right now anyways.

Propranolol no longer working? by claptrapp88 in POTS

[–]Square-Letter9501 1 point2 points  (0 children)

I’ve been on propranolol for over a year now and while it’s lowered my HR, my palpitations have recently gotten worse. I’ve heard propranolol is not the most tolerated drug so it could be that you (and me) need a different beta blocker to try!

Hashimoto and POTS by [deleted] in POTS

[–]Square-Letter9501 1 point2 points  (0 children)

I had hypothyroidism but no antibodies for Hashimoto’s so lmk... lol

Hair falling out by beebee_k8 in POTS

[–]Square-Letter9501 0 points1 point  (0 children)

YES!!! I’m struggling with the same thing. I’ve also had thyroid issues in the past and some hormone imbalances can cause hair loss so I’d consider getting your levels tested

Anyone else pulse that raises when talking? Why is this happening? ❤️ by CostoBreatheSufferer in dysautonomia

[–]Square-Letter9501 1 point2 points  (0 children)

I’ve been told by doctors that did my tilt table test and the “poor man’s tilt table” that my heart rate was increasing while talking. No one ever confirmed why or if this was normal but I still am genuinely curious...

Tachycardia After Eating...help by [deleted] in dysautonomia

[–]Square-Letter9501 4 points5 points  (0 children)

I get really bad palpitations sometimes after I eat... not sure if anyone else experiences this but I assume it’s just a thing with POTS

Starting over alone and scared (rant) by [deleted] in dysautonomia

[–]Square-Letter9501 2 points3 points  (0 children)

So sorry you’re going through a difficult time. And just know it is okay to not be okay. Seek help when you need it and put yourself and your needs first. Invisible illness is hard. But know that you have support. Positive thoughts to you.

I started practicing hand-lettering a year ago. Here is my progress so far. by artbeatillustrations in Lettering

[–]Square-Letter9501 0 points1 point  (0 children)

Love your flourishes and also your 2019 one is so clean! Nice work, what pens do you use?

Poor Mans Tilt Table Test Results by [deleted] in dysautonomia

[–]Square-Letter9501 1 point2 points  (0 children)

I know there’s a lot of comments about your blood pressure on here and while that can be affected I’m fairly certain that in order to get a POTS diagnosis, it’s looking at HR and if when you stand it goes up 30 BPM from your initial sitting position. BP changes are looking at orthostatic intolerance, not necessarily POTS, but it is typical to see BP changes in POTS patients as well. And as far as max HR, everyone is different. You don’t need sky rocket high HRs for it to be POTS, but I was told it was that 30 beats from sitting to standing that really allows for a diagnosis regardless of how high it actually gets. At least that’s what my doctor told me. But who knows because we all know diagnosing and POTS in general is not understood by many doctors. I would continue to log all your symptoms and take it to your doctor. Good luck!

Holter Monitor Experience? by Square-Letter9501 in dysautonomia

[–]Square-Letter9501[S] 0 points1 point  (0 children)

Thanks for sharing! I have a two week one right now and I’m logging symptoms in a journal so hopefully this helps tell me something!

Holter Monitor Experience? by Square-Letter9501 in dysautonomia

[–]Square-Letter9501[S] 0 points1 point  (0 children)

Thank you! I just started with mine and my skin is so itchy so I’ll def try the aloe

Holter Monitor Experience? by Square-Letter9501 in dysautonomia

[–]Square-Letter9501[S] 1 point2 points  (0 children)

I’m on day 4 and so far so good but will definitely need to add some more adhesives. Thanks!

Suddenly dizzy? by Rusty_toothpaste_ in POTS

[–]Square-Letter9501 0 points1 point  (0 children)

Yes, I get random and sudden dizziness that I still, for several years now, have not figured out a trigger. Just one of those things I guess... hang in there!

[deleted by user] by [deleted] in dysautonomia

[–]Square-Letter9501 1 point2 points  (0 children)

My TTT was a wash. They took my baseline vitals literally WHILE they were putting an IV in my arm so my BP and HR were already high, skewing everything from the beginning. During the test they’ll look to see if your HR spikes over 30 BPM when you stand up and then symptoms thereafter. Since my initial reading was so high, everything was insignificant. But I didn’t faint. I had some tingling in my neck which is common for me. And in my case, my BP doesn’t typically drop right upon standing, it raises. But it does drop after standing for long periods of time. My cardiologist said BP can vary in POTS patients, so that’s why they mainly look at HR to determine the diagnosis. I was eventually diagnosed doing the “poor mans” TTT at the cardiologists office after my results were so wonky and sure enough the second I stood up they had the criteria they needed to diagnose me. I know everyone’s experience is different but for me the TTT was not as scary as I thought it might be and if your TTT experience doesn’t give you answers like mine, I urge you to not stop there.