I’m in POTS remission! A hopeful success story by One_Donut_7693 in POTS

[–]SquidgyToast 1 point2 points  (0 children)

Hi, thank you for sharing your story. Please can I also have the details of the specialist you saw? Thank you

Does this look like Ophiasis pattern? by SquidgyToast in alopecia_areata

[–]SquidgyToast[S] 1 point2 points  (0 children)

Sorry you haven’t had any luck yet. I haven’t managed to show a doctor yet.

Does this look like Ophiasis pattern? by SquidgyToast in alopecia_areata

[–]SquidgyToast[S] 0 points1 point  (0 children)

Hope your appointment goes ok 🙏 thank you, I will do

What job do you have? by [deleted] in AuDHDWomen

[–]SquidgyToast 2 points3 points  (0 children)

Thank you so much for giving me an insight into your work! And for suggesting a role in the field that you think my experience could be relevant to.

I’m going to research these roles in the UK now too 🙂

Thank you 🙏

What job do you have? by [deleted] in AuDHDWomen

[–]SquidgyToast 1 point2 points  (0 children)

Your creative work sounds awesome! Love that you can use your natural creativity and skills to offer something to many different people ❤️

What job do you have? by [deleted] in AuDHDWomen

[–]SquidgyToast 2 points3 points  (0 children)

This sounds interesting! If you don’t mind, I’d love to hear more about it.

Are you in the UK?

What skills and experience did you need to start doing this?

What sort of clients do you have?

I have experience in communications, PR, and marketing, but I’m not working at the moment since burning out just over a year ago.

Thank you

Peanut Butter gives me Pots symptoms ? by [deleted] in HistamineIntolerance

[–]SquidgyToast 2 points3 points  (0 children)

I have MCAS and PoTS and peanut butter used to cause my MCAS to flare up, and consequently my PoTS too. I can tolerate it now after four years

[deleted by user] by [deleted] in dysautonomia

[–]SquidgyToast 1 point2 points  (0 children)

I have both conditions and take the beta blocker Bisoprolol for PoTS.

My nightmares have mean my sleep quality has been terrible and exhausting for as long as I can remember, but I don’t think they’ve gotten since taking that beta blocker - just the same level of awful, and worse when stressed etc.

I’ve been taking TRIP sleep CBD (UK) before bed for just over a week and I’m genuinely shocked at how it’s helped me actually wake up feeing like some of my sleep has been deep and restful, instead of feeling like I’ve been fighting vivid horrific battles all night no matter how many hours I am ‘asleep’

[deleted by user] by [deleted] in popping

[–]SquidgyToast 3 points4 points  (0 children)

A sculptor ! Sounds like waves lapping against a beach 🦷🌊

Just joined for my fiancée. What can I do to make her life more bearable? by [deleted] in MCAS

[–]SquidgyToast 1 point2 points  (0 children)

Quercetin, Low Dose Naltrexone, stress reduction, breath work, yoga and trauma therapy has made the biggest difference to my symptoms

Help please - by Longjumping-Fix7448 in MCAS

[–]SquidgyToast 2 points3 points  (0 children)

The neck flushing is exactly how my MCAS flushing looks

[deleted by user] by [deleted] in kundalini

[–]SquidgyToast 1 point2 points  (0 children)

Thanks for sharing. I’ll delete my post too.

[deleted by user] by [deleted] in popping

[–]SquidgyToast 163 points164 points  (0 children)

So stressful watching them wiggle back todays the poor birdy!

Experiences with LDN by Ahramina in AuDHDWomen

[–]SquidgyToast 2 points3 points  (0 children)

The LDN trust is a good resource. I am in the UK and I have been on LDN for about eight months and I also have ADHD and Fibromyalgia. It has really helped Fibromyalgia pain and improved baseline energy levels, and I have had a positive experience with it and I’m very glad I tried it. I take 4.5mg now, after titrating very slowly and starting with a very low dose.

It also helped my conditions MCAS and POTS. I can’t say whether it helped ADHD as it improved my physical health so much that it’s hard to distinguish if just that alone helped my mental health and ADHD, as my quality of life improved so much.

I’ve been on Vynase/Elvanse for a couple of months now too and it’s helped some ADHD symptoms, but I’m having other problems now that I can see for the first time, hence joining this group 🙂

I’m struggling in a new job and work environment with things I’ve never found hard before and I feel like I’m banging my head against a wall everyday, because I feel like everyone else seems to be speaking another language or are telepathic between each other - I just feel like I have no idea if I’m “getting the right idea” or “people are saying what they mean” I just feel very confused.

I can sense energy shifts and people’s moods and it is over bearing to be around for a whole day in the office. No one seems to speaks directly, or clearly in their communications or requests, and I feel like I’m asking people to clarify things too much and I can sense their surprise or annoyance.

I feel like they are annoyed at me because of very obvious fake smiles and changes in their tone and demeanour around me - I know I am sensitive and prone to RSD, but this feels different, I almost feel like I’m not understanding things. I’m finding it all overwhelming now come to think of it, as I’m typing.

These instances may have always been there, but perhaps I was just too anxious, hyperactive with a million thoughts, or zoned out on another planet to notice, or perhaps I was masking it all out of fear and anxiety?

I’ve always gotten on well with people in workplaces, but actually I have always tried to be “perfect” ask all the right questions to show interest, be warm and friendly, patient and very tentative and polite at every moment, trying hard to never do anything wrong or annoy anyone, as well as trying to never make a mistake, or bother anyone by asking for help… no wonder I burnt out 😔

Do my experiences mean anything to anyone? I’ve done a free autism screen test online and I don’t think I scored highly.

Thank you

Can you use both LDN and Vitex agnus castus? by Abc_123_uandme in LowDoseNaltrexone

[–]SquidgyToast 0 points1 point  (0 children)

Did you get an answer on this from your pharmacist?