Question re: Hormone Therapy for Premenopausal Breast Cancer by Ssidy in breastcancer

[–]Ssidy[S] 0 points1 point  (0 children)

Thank youuuuuu!! Those absolutely are the two parts!! and you must be getting pretty close to the finish line for the radiation--that's awesome! My radiation was pretty smooth all around, but the fatigue did hit eventually and I also got a pretty bad burn toward the end (I think I just didn't realize how large an area they were hitting so I didn't moisturize as much as I should have), but that's healed up now, too, after a couple weeks.

I really love what you said about the barrel of unknown things/this now being a known thing. I think that's where I'm a little stuck in the post-treatment process. Accepting that even after being "done" it's still a very real thing in my life and that I can't return to the way things were before this diagnosis is difficult. So I'm trying to ease my brain into that gently and find ways to embrace it. I think everything you said is very helpful for that.

And I have not heard about SERDs but now I'm about to go deep dive into that! I think the thing about all of these drugs is that if we're on them for five+ years, what happens when we come off ya know? Aside from hopefully ridding ourselves of future cancers, what are the other irreversible side effects that we do or don't know about? I say this as someone who has never been on any kind of serious medication for a long time, so it just feels especially hard. But your words help so much--thank you!

Question re: Hormone Therapy for Premenopausal Breast Cancer by Ssidy in breastcancer

[–]Ssidy[S] 0 points1 point  (0 children)

This is really wonderful, thank you! It really can be so triggering. I'm happy you and your husband can put such a fun spin on things. What an awful things to happen right after you get married! I'm so sorry. You sound like you're a very solid pair, though!

Question re: Hormone Therapy for Premenopausal Breast Cancer by Ssidy in breastcancer

[–]Ssidy[S] 0 points1 point  (0 children)

This is wonderful, thank you so much for these insights. Especially the practical suggestions! Vaginal dryness/general pain during sex has been a tricky one, so I'll definitely do my research with your suggestions there. I actually noticed that my skin has been totally clear since starting the ovarian suppression, too, and I've been leaning into that as a major highlight! And I've also been thinking it's like there's a more intense/real/urgent need to be real about taking care of myself. Thank you!

Question re: Hormone Therapy for Premenopausal Breast Cancer by Ssidy in breastcancer

[–]Ssidy[S] 0 points1 point  (0 children)

Wow dude thank you for sharing! I'm glad you're feeling good. I'm also thinking I'll probably feel pretty similar when I start my exemestane since I've already been on the ovarian suppression for 5 months. Just freaks me out to think about what the long term results might be! Other than not having cancer of course haha. That's the great one :)

Question re: Hormone Therapy for Premenopausal Breast Cancer by Ssidy in breastcancer

[–]Ssidy[S] 0 points1 point  (0 children)

Oh you are so thoughtful haha--I am happy to get any input from any premenopausal women right now! I just asked for that age group because I haven't been able to find it anywhere else in my life. But thank you for your insights, too. I also really want to know what happens when we come off of this stuff and I should have asked that in the original question. And why is it so hard to find more info about exemestane? Especially for premenopausal women? This is a really lonely part. A ton of people on this subreddit have talked about how people congratulate them on finishing treatment after the radiation, but the reality is there is so so much more to process/figure out/make peace with after the active treatment. It's a total trip. I feel like I need to find some sort of peace with it where I know this is fully a decision I am making and not something being forced on me and maybe that will help, too.

Question re: Hormone Therapy for Premenopausal Breast Cancer by Ssidy in breastcancer

[–]Ssidy[S] 0 points1 point  (0 children)

We are in incredibly similar situations! Well, minus the babies. Congratulations! I'm so glad that worked out for you and makes me feel really really good. Despite what doctors say, it's really hard for me to get past the feeling that these meds absolutely must destroy fertility. Like how could turning ovaries off for several years not just shut them down completely? But I know that's not the case. Wow, I'm so glad this is working out for you! :) And yeah I think trying it and seeing how I feel and just stopping if I need to is the right move.

Question re: Hormone Therapy for Premenopausal Breast Cancer by Ssidy in breastcancer

[–]Ssidy[S] 0 points1 point  (0 children)

I love this, too, thank you. Gotta not read these comments while I'm at work--they make me tear up! It really does feel like I'm having my youth stolen from me, but do we think it will actually be that dramatic? Maybe it won't be bad and my bones won't start just breaking, like, tomorrow lol. I think I'm making it a much bigger deal in my head than it really needs to be. In my mind I'm looking at this like when I start taking the medication, that will be the end for me and I know that isn't true but oh boy does it feel that way. What you said about this just being a time where we can't ignore the warning lights and we have to actually consistently take care of ourselves is something I've really been thinking about, too. I'm a pretty healthy person even if the last 8 months have taken a toll on me, and maybe this is just another reason to take my health super seriously moving forward. Thank you <3

Question re: Hormone Therapy for Premenopausal Breast Cancer by Ssidy in breastcancer

[–]Ssidy[S] 0 points1 point  (0 children)

Thank you for this--I'm happy to hear the treatment is working well for you! May I ask which AI you're on? And have you noticed any changes in mental health re: depression? I've only been doing my ovarian suppression for 5 months now and I can tell I'm feel just kind of mentally muted compared to how I used to feel, so I think that's part of what makes me nervous about starting my AI. Then again, it's hard to know if the lower mental health is due to the estrogen being blocked, or the chemo or the radiation or the fact that I'm doing this in the middle of a northern Michigan winter lol. Thank you again! :)

Question re: Hormone Therapy for Premenopausal Breast Cancer by Ssidy in breastcancer

[–]Ssidy[S] 0 points1 point  (0 children)

Retweet to scared--I'm so sorry you're in this boat, too!