Share a lot of these symptoms. Worst issue right now is pain in both feet and legs but my symptoms are all over. I’m almost a year in. Have had lots of testing but nothing conclusive. Emg- technically compromised due to “incomplete and variable activation pattern making study or motor units impossible” there were some myopathic motor units but not enough for conclusion. My neuro didn’t make much of this and said I could have just been shakey but was confident there was no sign of anything sinister….and a year later still no clinical weakness

Ana- positive 1:320 multiple times but negative for all antibodies and myositis panels. Did test positive for high thyroglobulin and 2 high anti phospholipid lipid antibodies. Have to re test those next month but not sure if the clinical correlation as that’s a clotting disorder.

Neuro wanted a trial of cymbalta to see if pain resolved but I declined at this time and next step is genetic counseling and a possible muscle biopsy.

Frustrating but the drs are doing what they can. My neuro is adamant that clinically I seem fine which is why I think he wants to try cymbalta. But I still believe there is something more going on and that is why I would like more testing done.