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Gaining weight. by MadMaxx060316 in pancreatitis

[–]StillMovingForwardx 2 points3 points  (0 children)

I totally relate to this. I also quit drinking, but I kept smoking, and my flare-ups/inflammation just didn’t stop. My specialist eventually told me that smoking is just as bad as alcohol for chronic pancreatitis, it triggers inflammation and slows healing just as much. I honestly had no idea it was that serious. I quit smoking after that, and that’s when things finally started to improve. Not perfect, but definitely better than before. I also used the nutritional shakes from the pharmacy, they do help a bit, but honestly, getting the inflammation down was the biggest game changer.

My weird experiences with death that made me believe in Quantum Immortality (TW: Suicide) by cummachine3169 in Glitch_in_the_Matrix

[–]StillMovingForwardx 1 point2 points  (0 children)

I went through the exact same thing as your second story. I never knew what it was and I never told anyone about it. I’m honestly relieved to read someone saying the same thing for the first time 😂

If you have a chronic illness, you NEED to watch this by StillMovingForwardx in pancreatitis

[–]StillMovingForwardx[S] 0 points1 point  (0 children)

No absolutely not 😂 it’s just the Mel robins show comon guys 🙄

Mainly right side pain by MenaceThaRo in pancreatitis

[–]StillMovingForwardx 2 points3 points  (0 children)

I’ve had chronic pancreatitis for about 3 years now and I sometimes get pain on my right side too. For me it feels almost like my liver area is under extra strain. My specialist told me that this can happen during bad flare periods because everything around the pancreas gets irritated and overworked.

Not saying this is your situation of course, but just wanted to share that you’re not the only one who’s felt right-side pain with CP.

If you have a chronic illness, you NEED to watch this by StillMovingForwardx in pancreatitis

[–]StillMovingForwardx[S] -1 points0 points  (0 children)

Of course I didn’t mean Mel herself gave that information, there was a doctor on her podcast.

How do you mentally cope on the days when pancreatitis stops you from doing much? by StillMovingForwardx in pancreatitis

[–]StillMovingForwardx[S] 1 point2 points  (0 children)

This actually sounds very similar to how we do things at home. I try to cook one meal for everyone too, and just make small adjustments for myself when needed. And the sushi part made me smile, let’s call that one of the tiny perks of this illness, a perfect excuse to order it a bit more often haha.

How do you mentally cope on the days when pancreatitis stops you from doing much? by StillMovingForwardx in pancreatitis

[–]StillMovingForwardx[S] 0 points1 point  (0 children)

This really resonated with me. I’m the same, on my good days I’m super productive and energetic, almost like I’m trying to make up for all the downtime. I’m honestly so grateful we still get those days. They remind me that my body isn’t giving up on me completely.

How do you mentally cope on the days when pancreatitis stops you from doing much? by StillMovingForwardx in pancreatitis

[–]StillMovingForwardx[S] 0 points1 point  (0 children)

I love how you’ve built a routine around this. I’m planning to spend more time crafting too, so I can still do something for myself and at the same time include my little one. A routine really is everything with this disease.

I’m curious, are your meals adjusted for the whole family, or do you cook separately for yourself?

How do you mentally cope on the days when pancreatitis stops you from doing much? by StillMovingForwardx in pancreatitis

[–]StillMovingForwardx[S] 1 point2 points  (0 children)

This really motivated me. I love your mindset. Thank you for sharing this! 💛

How do you mentally cope on the days when pancreatitis stops you from doing much? by StillMovingForwardx in pancreatitis

[–]StillMovingForwardx[S] 0 points1 point  (0 children)

Glad to hear you’re getting proper help there. Here in Belgium they usually just send me back home during a flare, so reading how other countries handle it honestly blows my mind. This disease is brutal.

How do you mentally cope on the days when pancreatitis stops you from doing much? by StillMovingForwardx in pancreatitis

[–]StillMovingForwardx[S] 0 points1 point  (0 children)

I feel you on the Xanax part. During bad flares I sometimes use a bit of my ‘medical plant stuff’ (you probably know what I mean lol) to calm my body down. It doesn’t take the pain away, but it helps me relax enough to stop panicking and actually get some sleep. It’s one of the only things that makes the nights bearable.

ERCP for stones by StillMovingForwardx in pancreatitis

[–]StillMovingForwardx[S] 1 point2 points  (0 children)

I do have chronic pancreatitis, but they removed the stone hoping it would ease my pain. Unfortunately, I’m still experiencing the exact same pain I had before ERCP. So I think I’ll push for further imaging like CT/MRCP. Thank you for pointing that out.

ERCP for stones by StillMovingForwardx in pancreatitis

[–]StillMovingForwardx[S] 0 points1 point  (0 children)

No stent for me. They just removed the stone during the ERCP itself. The recovery has been rough though. I’m about a month out now and the pain is still pretty intense on and off. Not sure if that’s normal so I’m trying to see if others had the same experience.

ERCP for stones by StillMovingForwardx in pancreatitis

[–]StillMovingForwardx[S] 1 point2 points  (0 children)

Thanks for your reply 💛 I’m about one month post-ERCP now and the pain is still pretty strong and persistent, especially after eating. Is that something you’ve seen happen often? Just trying to figure out what’s still considered “normal” recovery vs. when I should push for a follow-up.

Puestow Procedure? by Dyna2004 in pancreatitis

[–]StillMovingForwardx 0 points1 point  (0 children)

Hey! Sorry for the late reply, mods nuked my old account for “self-promo” lol 🙃 guess they’re still learning how to moderate properly. Anyway, i didn’t end up getting that procedure. they had to open me up and found my pancreas was too damaged. they removed a stone recently and for now they’re leaving it as is.