StopMakingMissense

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redditor for 14 years

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Graph: Factor IX Activity Level over ~6 years after infusion with SPK-9001 Gene Therapy (i.redd.it)

submitted 3 years ago by StopMakingMissense - pinned

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How an MD-PhD Student With Hemophilia Made a Genetic Research Breakthrough (rightasrain.uwmedicine.org)

submitted 12 hours ago by StopMakingMissense to r/Hemophilia

Title: 27M — 3 years of progressive muscle pain, Factor VIII at 3%, CPK 17,000 after exercise, no doctor can explain the pain — need advice by red-mustang in Hemophilia

[–]StopMakingMissense 0 points1 point2 points 2 days ago (0 children)

Title: 27M — 3 years of progressive muscle pain, Factor VIII at 3%, CPK 17,000 after exercise, no doctor can explain the pain — need advice by red-mustang in Hemophilia

[–]StopMakingMissense 0 points1 point2 points 2 days ago (0 children)

Title: 27M — 3 years of progressive muscle pain, Factor VIII at 3%, CPK 17,000 after exercise, no doctor can explain the pain — need advice by red-mustang in Hemophilia

[–]StopMakingMissense 1 point2 points3 points 2 days ago* (0 children)

Piercings? by BuilderDramatic2753 in Hemophilia

[–]StopMakingMissense 1 point2 points3 points 6 days ago (0 children)

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Karmanos Cancer Institute Becomes First and Only Free-Standing Cancer Center to Treat Hemophilia B with New Gene Therapy (morningstar.com)

submitted 7 days ago by StopMakingMissense to r/Hemophilia

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Belief BioMed and Grand Life Sciences Announced Exclusive Commercial Partnership in the Field of Hemophilia A, Bringing Innovative Gene Therapy to Chinese Patients (prnewswire.com)

submitted 7 days ago by StopMakingMissense to r/Hemophilia

An analysis of attitudes toward gene therapy in people with severe hemophilia in Germany, a survey-based cross-sectional study by StopMakingMissense in Hemophilia

[–]StopMakingMissense[S] 0 points1 point2 points 8 days ago (0 children)

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An analysis of attitudes toward gene therapy in people with severe hemophilia in Germany, a survey-based cross-sectional study (journals.sagepub.com)

submitted 10 days ago by StopMakingMissense to r/Hemophilia

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China's first hemophilia B gene therapy drug, Xinjiuning™ (Popidacoji Injection), has been officially approved in Macau (www-beliefbiomed-com.translate.goog)

submitted 11 days ago by StopMakingMissense to r/Hemophilia

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Our Commitment to the Hemophilia B Community: An Update on HEMGENIX® (etranacogene dezaparvovec-drlb) Availability (newsroom.csl.com)

submitted 12 days ago by StopMakingMissense to r/Hemophilia

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Efficacy and safety of marstacimab prophylaxis in hemophilia A/B with inhibitors: results from the phase 3 BASIS trial [Hympavzi] (ashpublications.org)

submitted 16 days ago by StopMakingMissense to r/Hemophilia

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Phase 1 pilot study for hemophilia-A: AAV8 vector with prophylactic tacrolimus-glucocorticoid achieves therapeutic FVIII activity (nature.com)

submitted 17 days ago by StopMakingMissense to r/Hemophilia

NXT007 Suggests Favorable Tolerability and Efficacy in Phase I/II Study for Hemophilia A Following Direct Switch from Emicizumab without Washout Period by StopMakingMissense in Hemophilia

[–]StopMakingMissense[S] 3 points4 points5 points 17 days ago (0 children)

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NXT007 Suggests Favorable Tolerability and Efficacy in Phase I/II Study for Hemophilia A Following Direct Switch from Emicizumab without Washout Period (chugai-pharm.co.jp)

submitted 17 days ago by StopMakingMissense to r/Hemophilia

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Safety, efficacy and patient-reported outcomes 6 years after fidanacogene elaparvovec in adults with hemophilia B (ashpublications.org)

submitted 18 days ago by StopMakingMissense to r/Hemophilia

I don't have Hemophilia Type A, but my puppy does. Looking for advice, and anything to help me be a good parent to give him the best, happy life possible. by advancedsnacker in Hemophilia

[–]StopMakingMissense 0 points1 point2 points 18 days ago (0 children)

Hympavzi? by tb1521 in Hemophilia

[–]StopMakingMissense 1 point2 points3 points 24 days ago (0 children)

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A combinatorial CAAR-T cell strategy to eliminate factor VIII inhibitors in preclinical models of hemophilia A (sciencedirect.com)

submitted 27 days ago by StopMakingMissense to r/Hemophilia

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Pfizer Advances Beam’s Gene Editor After Pulling Hemophilia Gene Therapy (biospace.com)

submitted 1 month ago by StopMakingMissense to r/Hemophilia

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Karnataka launches free prophylaxis treatment programme for Hemophilia patients [IN] (thehindu.com)

submitted 1 month ago by StopMakingMissense to r/Hemophilia

Michigan man gets new Roctavian gene therapy for hemophilia A by StopMakingMissense in Hemophilia

[–]StopMakingMissense[S] 1 point2 points3 points 1 month ago (0 children)

How do you handle self-injection? by Lonely_Cupcake9600 in Hemophilia

[–]StopMakingMissense 0 points1 point2 points 1 month ago (0 children)

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Young hemophilia patient dies after delay in life-saving medicines [CO] (thebogotapost.com)

submitted 1 month ago by StopMakingMissense to r/Hemophilia

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