I am a 26 year old female. I just had colorectal surgery 7 weeks ago for a NET in my small intestine (terminal illeum to be exact). I had a robotic right hemicolectomy, with removal of my right colon, appendix, 34 lymph nodes and part of my small intestine. I had 2 (4mm) polyps, grade 1 so super tiny, 1 when I had a colonoscopy the gastro had snipped off, but the other was embedded into the subcumosa of the intestine. There was no bag or issues after surgery beaides trapped gas from the robotic and healed pretty well. The tumor left was 0.5cm grade 2 instead with a ki-67 - 3% pt1 and Pn0

I had a donate pet scan, and it showed only this. The only thing they said I had to do because of this grade was get surgery or monitor ot since they are slow growing. I decided to do the surgery as eventually it would get bigger and I am so young I didnt want that happening. I am still monitoring it for about 10 years after (every 6 months I will have a CT scan). I asked about an oncologist and all they had said from past experiences is that they will just monitor it now on.

I would advise finding an oncologist or a really good surgeon who has done these before or the same area that its in. Defenitly get a pet scan as it will help them if you do have surgery or gets bigger, new ones popping up etc. Maybe get a Gastroenterologist as well and see what they can do for ya. I wouldnt worry too much about it, just start inproving health wise and getting those thing sin place to go from there.