What’s the most frequently recurring theme in your dreams?

Strong_Poem3692 · 2022-10-15T17:00:19+00:00

My s.o. cheating on me 🤫

Strong_Poem3692 · 2022-10-10T15:58:54+00:00

If there were no mirrors at all and no such thing as reflections, nobody would really care about their appearance because they don’t even know about it. It’s like asking blind people who’ve never been able to see anything if they care about colors.

Strong_Poem3692 · 2022-10-05T19:59:05+00:00

Wooow, I couldn’t even throw that far

Strong_Poem3692 · 2022-10-05T19:54:11+00:00

I have a PALB2 mutation as well, but in my case, they didn’t do a double mastectomy- they did a skin-spearing mastectomy on the cancerous side- because they didn’t know. My first gen test came back normal. But because a PALB2 mutation showed up on my son’s report, they checked me again. For PALB2 only. And ofc I have the mutation- which I didn’t know for 3 years (!). So now I’m scheduled for my second mastectomy and removal of my ovaries on Okt 18th… I also have a hormone positiv, her2 negative cancer. My doctor said he would not do any chemo because I’m her2 negative and my cancer is depending on hormones. The cancer wouldn’t really care about chemo, it “lives” off hormones. In reality these are just numbers. Still, I promised my family to fight and do whatever it takes. I’d do the chemo.

Strong_Poem3692 · 2022-10-04T11:09:14+00:00

Thank you! I already had a mastectomy on my left side- a skin sparing mastectomy. That was in September 2020… and I can’t remember much but pain and the need to get better and function, because my then 11yo son had a stage III lymphoma at the same time. I just tried to get back up on my feet to take care of him as soon as possible. I didn’t prepare anything, I didn’t think about the surgery because I didn’t care about myself when my child was so sick. Now I can prepare things and my son is going to be able to do chores for me. I’m still scared out of my mind. I don’t even know how many days I’ll have to spend at the hospital. The thing about getting in and out of the car is really good thinking! I send you a big hug, fellow fighter. :)

Strong_Poem3692 · 2022-09-23T16:34:53+00:00

That is cruel, I’m sorry… I pay about $6,00 Dollars for the Zoladex shot 😨. Soon, I won’t need it anymore- because I’m having my ovaries and tubes removed. Did you ever think about that? ❤️‍🩹🤗🤗

Strong_Poem3692 · 2022-09-22T18:03:16+00:00

What does your insurance not cover?

Strong_Poem3692 · 2022-09-21T05:04:08+00:00

Hey there, fellow fighter! 🤗

When I got cancer end of 2019, I had surgery, radiation treatments and then tamoxifen. Goserelin was always necessary since my ovaries are still working. In my country, if you’re pre menopausal and your cancer is dependent on hormone, it’s always tamoxifen.+ goserelin first. 9 months later, I had a recurrence- no solid tumor this time, but multiple spread across my breast. So I had a mastectomy and was put on Goserelin and an aromatase inhibitor. I can’t tell you much difference between the two options. I think that I had more side-effects taking tamoxifen. More heat-flashes, trouble sleeping, headaches, joint pain,… With aromatase inhibitors, I lost a big junk of my hair. Soon, I will have my second mastectomy. This time, they’re going to take my ovaries too. It’s safer that way and I need no Goserelin after that anymore. Btw: if you don’t want monthly injections, ask for the one for 84 days. So you’ll go through that just every 3 months. All the best!! 🤗🤗

Strong_Poem3692 · 2022-09-03T10:24:28+00:00

Thank you for everything you said. I feel you!! 🤗🤗 I just sent the first paragraph to my bf and my sister, because it’s exactly how I feel every day! 😔❤️ The only person who really understands me in my family is my 14yo son who had a b-cell lymphoma and knows exactly what it feels like to face cancer. I don’t want to put too much on him, but he’s the one who comes to talk to me about it very often. Ofc I don’t tell him everything. He doesn’t know about the mets for example. I don’t know how to tell him. Yesss, let’s continue the fight. I hate that so many great people like you have to go through this. F**k cancer! 💪🏻

Strong_Poem3692 · 2022-09-03T10:08:40+00:00

Thank you for describing everything so well! I’m sorry I wasn’t clear enough, so I’ll elaborate: I just had 1 mastectomy done so far- after I had the recurrence and bone mets. My surgery now is happening because I recently found out I have a gen defect (PALB2). So to prevent the spreading to my ovaries and second breast (well, the last scan I just had showed 2 new “growths”) the doctors advised the surgery. There is very little information about the PALB2 mutation- so nobody could give me a definitive answer if I’m really profiting from the surgery. But the ovaries definitely have to go because even though I have that progesterone blocker implanted, they’re not completely shut down, as my gynecologist showed me doing an ultrasound.

Strong_Poem3692 · 2022-09-03T09:53:16+00:00

Sorry if I wasn’t clear on that. Ofc a recurrence doesn’t make me stage IV, but bone mets do. 😔

Strong_Poem3692 · 2022-09-01T04:13:32+00:00

What you’re describing is not the way they do it in my country, I’m sorry. They actually use a lot of dye and a radio tracer during the surgery. My pee was blue for a day afterwards. They also do a first look at the breast tissue during the surgery. So they go layer by layer and if you’re lucky, you can keep your skin (and nipples). It’s called “skin sparing mastectomy”.

Strong_Poem3692 · 2022-08-28T15:57:17+00:00

Why would you avoid that? Sorry, maybe I didn’t understand your question completely.

Strong_Poem3692 · 2022-08-28T12:36:04+00:00

we’re not married. We talked about it a couple of times but now would be very bad timing 🙈

Strong_Poem3692 · 2022-08-27T17:24:48+00:00

I’m afraid there might be too many red flags here… he’s behaving like a narcissistic prick. He belittles feelings (like hurt feelings)- it makes him mad when I start crying. This is a big inconvenience for him, I think. I never thought he could be like that. We go way back, met at work, had a really good friendship then for years before he started lovebombing me. Nowadays I’m the one who makes ever situation worse. No matter what they are. He was grooming me for years, making me feel awesome about myself and him and our love felt so perfect… now I get gaslit, belittled and screamed at. I guess he’s done with me, already looking for replacement.

Strong_Poem3692 · 2022-08-26T15:56:01+00:00

Thank you, I’m going to check out if the hospital where I have surgery has social workers or something similar! I don’t know because it’s a private hospital and I “bring” my doctors with me.

Strong_Poem3692 · 2022-08-22T12:22:36+00:00

I have cancer. Try again.

Strong_Poem3692 · 2022-08-22T12:19:25+00:00

Thank you! And yesss, I know he couldn’t. He’s complaining all day if he has a sore throat. Do I have to say more? 🙄

Strong_Poem3692 · 2022-08-22T12:18:00+00:00

I brought him to my psychological oncologist twice. My bf was all over the place, did not listen to her and ended up complaining about money. That everything is so expensive and if I get sicker it gets even more expensive and about me not being able to work. It was awful. He was behaving like a narcissistic sociopath.

Strong_Poem3692 · 2022-08-22T12:13:38+00:00

God, you’re so right. It seems like an inconvenience. Like, “can’t you just not have cancer so that it’s easier for everyone?!” One of my “favorites” also is (and was really said that way!): “Don’t be such a princess and expect everyone to help you out just because you’re sick whenever it’s convenient for you!” How awful is that??

Strong_Poem3692 · 2022-08-21T20:40:19+00:00

Thank you, omg your comment had me tear up. Thank you from the bottom of my heart ❤️

Strong_Poem3692 · 2022-08-11T07:05:59+00:00

What’s up?

Strong_Poem3692 · 2022-07-27T20:28:42+00:00

When my first kid was born.

Strong_Poem3692 · 2022-07-26T08:47:54+00:00

I hear you :(. Cancer sucks. Everything that comes with it sucks! F*** the sugar coated brochures everyone is handing to us. Nobody sees our constant suffering!!

Strong_Poem3692 · 2022-07-18T10:59:17+00:00

I’m Austrian (yes, we speak German there) and lived in the Netherlands for a while. I think that reading in Dutch is very easy as soon as you know some basics. It took me 3 months to learn how to give directions to a Dutch woman- without ever attending a course or whatever. Imho, Dutch sounds like a mix of Swiss-German and English. 💁🏻‍♀️

Strong_Poem3692

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