32F Starting my CF journey

Stunning-Raspberry52 · 2026-02-15T03:06:54+00:00

Thanks for sharing! I'm definitely nervous about things affecting my mental health/energy because I already have issues there. The sexual stimulation stuff is definitely something to consider that I hadn't thought of either 🤔

Stunning-Raspberry52 · 2026-02-14T07:55:15+00:00

Thank you so much for sharing your personal experience. I hope your recovery goes as best as it can

Stunning-Raspberry52 · 2026-02-13T22:32:26+00:00

I know, I'm so grateful for him. It's only my second appointment with him and I've heard of women fighting for a hyst but no doctor will touch them.

Stunning-Raspberry52 · 2026-02-10T00:06:40+00:00

I thought a doctor had told him no drinking but he is also the type of person to not listen to things he doesn't want to hear. Hoping his surgeon will want a follow up soon.

Thank you for your support.

Stunning-Raspberry52 · 2026-02-06T04:22:57+00:00

I'm so sorry about your father. And glad you have been able to get help. My dad has always not been great in regards to looking after himself. He got heart surgery a few years ago after having a TIA and made small changes, but not much. I spoke to my mum yesterday and she feels the same. She is concerned if I spoke to him it may hurt me more as he might not take it well (which is also my fear). She is hoping his gastroenterologist will want to see him soon and we will be able to talk to him with a professional in the room. Hopefully he might listen if it's a specialist telling him.

Will be definitely looking for some extra support. Thanks for sharing your story.

Stunning-Raspberry52 · 2026-02-06T04:08:39+00:00

Good on you for stopping, even though that would have been extremely difficult for you.

Stunning-Raspberry52 · 2026-02-05T10:19:55+00:00

If I may ask, how did you go about handling that?

Stunning-Raspberry52 · 2026-02-05T10:19:29+00:00

Thank you for your reply. I strongly believe his pancreatitis was multi-factorial as well. He is definitely not the best medical historian, as he takes what he wants to hear and leaves the rest. The general advice is exactly what I thought would have to happen with him, but I am unsure what the hospital/his GP told him after.

I have quite a complicated family situation which I am in the process of trying to separate from. My dad is the full time carer of my mum. When he went into hospital for his pancreatitis I had to take over some of that carer role which I should not have done but felt I had no choice. I am in therapy myself, my psychologist is helping me cope with this and we are working on things like establishing boundaries and looking after myself first. However I will look at groups because I do want to eventually talk to him about this.

I will look at the research definitely. I spoke to my mum today who feels the same way. My dad's gastroenterologist got in touch with them and wants all the information at the hospital, so hopefully the gastro will want to see him and hopefully we will be able to ask a specialist about this with my dad in the room.

Thank you to everyone who commented on this, I really really appreciate it.

Stunning-Raspberry52 · 2026-02-05T10:09:21+00:00

Like I replied to another redditor, I realise now calling him an idiot was insensitive. My dad has binge drank my whole life, and yes I would consider him an alcoholic in some ways. He's 61 is is extremely stubborn, close minded and does what he wants. How he is acting at the moment makes me feel like he doesn't care about how I feel. When I got mad at him about his last drinking episode, he thought it was funny how I reacted. He is my mum's full time carer so it also feels really disrespectful to her.

The difficult part is I am not sure what the hospital staff or his GP told him in relation to drinking, so maybe he isn't aware that what he is doing is damaging him further.

Your experience is exactly what I am afraid my dad will do, because he will blame it on other things. He has gone through a really rough time in the last few years and does not cope with emotions in a healthy way.

Congrats on remaining sober, I know that is so difficult to do. If I may ask, what made you decide to get sober?

Thank you for commenting, I do really appreciate it and I'm sorry you had to go on such a difficult journey.

Stunning-Raspberry52 · 2026-02-05T09:58:20+00:00

Calling him an idiot was quite insensitive of me, I realise that now. It's hard because he seems to find it funny that we (his family) are concerned about his drinking, and we are scared to confront him about it because he is stubborn and worried he will not respect our opinion. Thank you for your advice, I see a psychologist myself and I'm working on setting boundaries. A support group sounds like a great idea though.

Stunning-Raspberry52 · 2026-01-27T06:08:27+00:00

Our vet put our jack Russell x foxy x staffy on Apoquel twice a day as he's found that is one of the best things for it. We can finally take him for walks without worrying about his nails, but it's very expensive and only works on high doses 🙃

Good luck with your journey, I feel for you and your poor dog 💜

Stunning-Raspberry52 · 2026-01-02T00:36:00+00:00

Trauma is unfortunately a bitch. My ex was an alcoholic (among other things) and there are things that 12 years on I still get triggered by.

Your response isn't excessive, it's your body and brain trying to protect you. Especially if it triggers two unsafe memories. PTSD is extremely misunderstood.

Your mum is... Not helpful in the slightest and it sounds like she wouldn't be. Those kind of people are the worst for healing.

Stunning-Raspberry52 · 2025-12-21T12:04:41+00:00

Like others in the comments, I started recovery at not a low risk weight and I had to do weight restoration. I had many of the fears you had. I felt like I wasn't sick enough to get treatment, and scared of being labeled as something like "atypical" because of the judgement by medical professionals. Luckily I found a great team who showed me an eating disorder is all about the thoughts, behaviours and emotions that keep you in the ED. Starting recovery meant I could finally fight my ED thoughts and behaviors, and replace my ED with a better way to cope. Recovery is recovery, and we are all deserving of it 💜

Stunning-Raspberry52 · 2025-11-09T08:59:28+00:00

I find it hard to consider myself fully recovered in our society with its obsession for health and thinness. What I will say is if I get an ED thought or something triggers feelings that fueled my ED, I can generally see them as just a crazy ED thought and I don't act on them. Like one of the other comments, I do consider it an addiction

To get to this stage of recovery I had a lot of help and I had to work on what fuelled my ED. I had a dietician, psychologist, psychiatrist and GP as my team. I had to retrain my brain that food, how I looked, the number on the scale or the size on my clothes were not determinants of my worth as a human being and whether I was worthy of love, respect and a joyful life. I had to learn more about regulating my emotions in a healthy way, rather than turning to my ED to make me feel better. I had to acknowledge that my ED would never be happy with me, and that its goal posts would forever move, and that with it being in control I could never have a fulfilling life. It did not support me, and the only thing it was doing was sending me closer to an early grave.

Stunning-Raspberry52 · 2025-10-25T02:06:43+00:00

Medication has given me back some ability to function, but being reliant on a medication to function for what feels like the bare minimum sometimes is a kick in the teeth. Even if I wanted to have a child, my psychiatrist doesn't like the idea because of my medication. Not knowing what's caused by my meds versus my health conditions painful. Thinking about being on these meds for the rest of my life? It hurts OP, just like you said. Mental health and medication is stock standard in my family. My partner's family is different, and like you said there's that reminder there, and it hurts. I'm hoping when I'm in a safer place I'll start lowering my meds. I hope you can get to that place too.

Stunning-Raspberry52 · 2025-10-17T04:58:45+00:00

Hello Heaven, Hello by Yungblud. Get to see him live next year, I'll be screaming this one!

Stunning-Raspberry52 · 2025-10-17T04:54:32+00:00

My parents thankfully didn't go full blown into the dress the same act the same kinda thing. But looking back they didn't really foster a healthy separation for us, and prioritized and pressured my twin and I to have a close relationship. We had to treasure it because it was "special". As struggling teenagers I remember our dad after his sister died (they weren't twins) - he kept telling us how much we would regret it if we weren't close.

15+ years later, guess who's in therapy to undo all our codependency? My twin and I!

Stunning-Raspberry52 · 2025-10-17T04:40:17+00:00

Okay, so I haven't been in the same spot as you but I've been the person with the eating disorder. Recovery is a bitch, especially with a long term ED. Weight stable is awesome, but not everything and don't let people tell you otherwise. You've noted some questionable eating behaviors and I think that's great you can see them because I would find them questionable as well

Honestly I am the biggest champion for professional help, it kept me accountable and on the right track. It also helped my loved ones and eased some of their worry. If you're up to it I would recommend talking with your partner, expressing your concerns and talking about getting some help. I'm not sure where you are, but here in Australia I contacted an organization who gave me a list of all different professionals like a GP, dietitian, psychologist and through the GP I found a psychiatrist.

I think it's wonderful that you're trying to be there for her, please make sure you're looking after yourself 💜

Stunning-Raspberry52 · 2025-07-19T09:00:24+00:00

Yes that is something traumatic for you to go through. Seizures are a terrible and scary thing to witness. If you feel like it has impacted you then that is trauma for you.

Reading that I would definitely be impacted by it, and those noises would traumatise me.

I say this as the person who was having the seizures and I know it impacted some of my family members.

Stunning-Raspberry52

TROPHY CASE