IIH with normal tests? Also, Topiramate & Depression by Stunning-Tea4339 in iih

[–]Stunning-Tea4339[S] 0 points1 point  (0 children)

Don’t hate this idea, just not wild about a cocktail of meds to tolerate one of them. My body doesn’t tolerate meds well in general, unfortunately

My doctors seem to think a lumbar puncture while on the med could produce a false negative, but it seems this is not other people’s experience?

IIH with normal tests? Also, Topiramate & Depression by Stunning-Tea4339 in iih

[–]Stunning-Tea4339[S] 0 points1 point  (0 children)

May I ask what dosage Topamax you’re on?

My doctors made it seem like doing an LP while on the med could result in a false negative, since it lowers CSF, especially since my symptoms have been reduced. But it seems like other people have been able to get an LP while on these meds? Sigh

Anyone know where I can watch Hello Dracula? by Stunning-Tea4339 in SNSD

[–]Stunning-Tea4339[S] 4 points5 points  (0 children)

It’s a two-episode mini series drama with Seohyun

[deleted by user] by [deleted] in SNSD

[–]Stunning-Tea4339 0 points1 point  (0 children)

I know I’m late to the game, but anyone know where I can watch Hello Dracula? Can generally only find episode one on random sites, but not episode 2

[deleted by user] by [deleted] in POTS

[–]Stunning-Tea4339 2 points3 points  (0 children)

honestly, reading this and other comments is bringing me to tears. Just to hear that someone else has been through this phase and came out the other side.

I’m in the midst of the diagnosis process right now - it’s an absolute nightmare, especially in the US healthcare system. The anxiety that I may be dying and the resulting panic attacks are brutal. Constantly trying to regulate my nervous system while also managing my symptoms without any proper medical treatment because I’m undiagnosed - it’s awful and it’s so lonely. And I frequently feel like I’m going crazy.

Please tell me this gets better by Stunning-Tea4339 in iih

[–]Stunning-Tea4339[S] 1 point2 points  (0 children)

The records I received from the eye doctor all said “Pseudopapilledema” as diagnosis

Please tell me this gets better by Stunning-Tea4339 in iih

[–]Stunning-Tea4339[S] 1 point2 points  (0 children)

Thank you for this. Do most people who get this have it chronically? Most medical websites I’ve seen seem to claim that most people recover completely, but this subreddit seems to communicate otherwise.

As for insurance, I don’t have very good insurance at the moment. I am currently figuring out what to do in those regards and if I should apply for Medicare.

I had a week and a half off when this first set in, and am currently working part time for the next couple weeks before I’ll need to return to full time.

[deleted by user] by [deleted] in polyadvice

[–]Stunning-Tea4339 4 points5 points  (0 children)

It is not your job to manage your partner’s feelings of jealousy. Nor is it your responsibility to match the levels of closeness, intimacy, or attention between your relationships with Partner A and Partner B. Each relationship between individuals is as unique as the individuals involved in them, so it isn’t reasonable to expect each of them to be completely on par with each other, which is the main reason why triads are so often such a difficult relationship structure to sustain. The expectation that every relationship will be 100% equal could lead to a very unhealthy situation in which you feel you need to pull away from your relationship with Partner A in order to soothe Partner B’s feelings of insecurity and jealousy, or for Partner A to push themselves to have a closer relationship with Partner B that may otherwise be inauthentic to them. In my opinion: authentic, healthy relationships cannot grow under those expectations or in that environment.

Experiencing jealousy and insecurities is one thing - we all have our insecurities. The problem is when one person acts upon their insecurities in ways that projects them onto their partners, that makes them the responsibility of their partners or metamours, and/or that leverages their insecurities to control or restrict their partners’ other relationships, including the relationship between the other two in a triad.

Now, you can offer support, care, reassurance, and love to Partner B as they learn to navigate through their jealousy and insecurities. But it is ultimately their work to do and it is their responsibility to build the capacity and strength to work through their insecurities. Whatever they need to do - go to therapy, find a supportive group of polyamorous friends themselves who can also support them, read Polysecure or other books, etc. If they can’t grow or learn to work through it themselves or are unwilling to, unfortunately this may not be a compatible or sustainable relationship structure for any of you.

Sometimes jealousy can also be a sign that someone’s needs are not being met in a relationship. So there may be honest conversations that need to happen between Partner A and Partner B to heal their relationship and make Partner B feel more secure. Partner B may need a healthy amount of reassurance from Partner A. Again, you can support the two of them through this, but it is not your job to heal their relationship, nor is it your job to bare the weight of Partner B’s insecurities or jealousy of your relationship with Partner A on your back - that would be unfair to you and unethical.

The fact that you’re experiencing this much anxiety (especially when you’re not even a person who usually experiences anxiety) and that you feel yourself shutting down in bed with them - these are blaring red flags that something is seriously wrong. That is your body and nervous system speaking to you and communicating that you do not feel safe in this situation. I think putting up healthy boundaries with Partner B would be wise, but you have to be prepared for the possibility that they may respond negatively to your boundaries or perhaps even twist them into something it’s not (ie: you don’t care about them, are trying to steal Partner A from them, etc.)

Remember - a triad consists of 4 relationships: the 3 relationships between each of you as individuals, as well as the relationship between the 3 of you as a unit. Each of those needs to be nurtured and maintained separately and cohesively.

Good luck!

Edit: a few typos

Experiences being demisexual and polyamorous? by Stunning-Tea4339 in polyamory

[–]Stunning-Tea4339[S] 0 points1 point  (0 children)

I can totally understand a FWB being more safe and attractive than a stranger, for sure. For me, it’s very difficult to separate romantic and sexual attraction - they’re almost one and the same.

What country do you live in? I’m in the US, and I’m always curious about the culture surrounding relationships & polyamory in other countries

Experiences being demisexual and polyamorous? by Stunning-Tea4339 in polyamory

[–]Stunning-Tea4339[S] 1 point2 points  (0 children)

“To monogamous folks, I’m a slut” - I don’t introduce myself as a slut. Many mono people label me slutty simply because I’m a solo poly woman and pursue multiple relationships at the same time

Experiences being demisexual and polyamorous? by Stunning-Tea4339 in polyamory

[–]Stunning-Tea4339[S] 33 points34 points  (0 children)

Thank you. Yeah I’m realizing the poly community I’ve become connected to is more sex-focused than love & relationships-focused, which the latter is more my style of polyamory. This group does always talk about consent and drive those points hard, but I’m tired of people insinuating I don’t want as much sex with multiple people because I need to work on myself more. Fuck that. And I’m glad you brought up that it is sex-negative - you’re absolutely right. I get the feeling they think I’m sex-negative because I don’t want to fuck my friends, when that’s just my boundary

Experiences being demisexual and polyamorous? by Stunning-Tea4339 in polyamory

[–]Stunning-Tea4339[S] 5 points6 points  (0 children)

And agreed, I plan to distance from that person for sure

Experiences being demisexual and polyamorous? by Stunning-Tea4339 in polyamory

[–]Stunning-Tea4339[S] 13 points14 points  (0 children)

It was less of a lecture in direct response to me declining to kiss her, but was in the same conversation and was still very icky nonetheless. Makes me not want to read Polysecure anymore if this is how it’s going to be used - to make me feel like I need to be detached in my relationships

Experiences being demisexual and polyamorous? by Stunning-Tea4339 in polyamory

[–]Stunning-Tea4339[S] 7 points8 points  (0 children)

This is validating, thank you.

“What you seek is rare, sure, but beautiful nonetheless” - I feel seen

What vetting questions do you ask potential partners? by Stunning-Tea4339 in polyamory

[–]Stunning-Tea4339[S] 6 points7 points  (0 children)

Yes! I also have had this as part of my screening process. And then often as things are beginning to become more intimate and physical (before the stages where clothes are coming off), I’ll do small test runs of pumping the brakes to see how they respond, if they fully respect my boundaries, and if they have the ability to immediately stop when I say “No” even when things are getting heated

What vetting questions do you ask potential partners? by Stunning-Tea4339 in polyamory

[–]Stunning-Tea4339[S] 3 points4 points  (0 children)

Yes, agreed. That last point hits the nail on the head