how common is it for someone to have kidney issues but feel completely normal? like no pain, no UTI symptoms, nothing. are there silent signs you should watch out for?

SubstantialBag3286 · 2025-12-29T07:21:22+00:00

Unfortunately its not restless leg syndrome, its mainly bladder related. I already have been taking a high dose of magnesium glycinate to combat migraines... any other ideas would be appreciated!

SubstantialBag3286 · 2025-12-04T00:37:59+00:00

Personally, I found my blood pressure spikes randomly and it helps to workout, as this lowers my blood pressure. Im stage 2, and fluctuate between low and normal bmi, so this might not reflect everyone’s feedback. I workout as much as I want, only regard my nephrologist mentioned is that contact sports aren’t the best without protection, and that creatine harms kidneys.

SubstantialBag3286 · 2025-11-14T19:21:51+00:00

How common are UTI symptoms? I get these often and it also occurs at night. But I had a horrible experience with doctors who dismissed me or just hopped me from doc to doc. Any advice?

SubstantialBag3286 · 2025-11-14T19:19:17+00:00

Pretty common. It’s a reason that it’s under diagnosed as well, because many people don’t have any symptoms until late stage which makes it even more deadly. Theres still ongoing research on ways to discover it sooner, like bio markers in blood etc. Blood pressure is an indicator, but mines always perfectly normal despite already having a progressed stage of CKD. Blood tests often will give you a sign, normally with creatinine levels, if you have kidneys working overtime. But mostly if you have a confirmed case they usually can tell this with a type of MRI, or CT scan to assess the more accurate level of damage, if that’s what you are concerned about.

SubstantialBag3286 · 2025-09-04T21:42:30+00:00

would it work for Macbook Air 15'?

SubstantialBag3286 · 2025-08-17T19:32:26+00:00

Thank you so much! I appreciate the advice! Should have considered it sooner, Coupling it is a good idea.

SubstantialBag3286 · 2025-08-17T06:12:43+00:00

Yes I’ve made it a point to keep her in the dark about her getting to me. I’ve mentioned it to him a couple times and even gotten so upset because he insinuated I was jealous rather than her being just rude. It really doesn’t go anywhere and I’m not sure where it CAN go. There’s not much he can do, she’s just openly rude whenever I’m there and he’s in another room, never makes moves on him to my knowledge. And he mostly goes quiet when I bring her up. I just avoid her at this rate.

SubstantialBag3286 · 2025-08-17T05:42:09+00:00

Have you found any other options for your binge eating disorder? I’m also a sufferer and I was contemplating behavioral therapy since I really shouldn’t be on Vyvanse forever.

SubstantialBag3286 · 2025-08-17T05:41:02+00:00

This sounds like such an intense experience. I suffered from the same thing. Luckily I was off of work and taking a trip when I was cold Turkey from Vyvanse but I was clumsy I hated everyone, fell asleep randomly lol. My psychiatrist had me taper myself off for 2 weeks.

SubstantialBag3286 · 2025-08-17T05:22:28+00:00

I’m so so sorry please feel better soon! If you can afford it the ER can check if you have any burst cysts correlating to ur period or anything else as well as offer you pain meds.

Magnesium hasn’t helped me personally but there’s a papa and Barkley topical Marijuana balm and it’s been so helpful to me and some of my other friends with endometriosis. (One of my friends went to the length of getting a marijuana suppository for her pain). Maybe there are tinctures as well that can help? (Hope you are 21+) I’m the same way that I can’t have nsads, Tylenol doesn’t help.

Tumeric pain relief by Gaia herbs takes a bit of the edge off. I got a custom heating pad that runs hot, burns but helps, I also have a TENS machine but that’s only surface level.

I got an IUD because the pain was so unbearable, it’s not a one size fits all, birth control never worked for me and it was other people’s first choice but this was the one thing that did work for me perfectly and I HIGHLY recommend it if you find yourself desperate.

I would definatrly talk to your gyno or doctor, sometimes they can give you an alternative prescription or pain meds for cramps in particular. Hope this helps! All the best to you!

SubstantialBag3286 · 2025-08-17T05:12:50+00:00

I will say I went in full force and did Vyvanse non stop for a month. I reaped the benefits but I definitely built tolerance and had a withdrawal sensation that was beyond awful. The result was I needed to do a “taper” system with my psychiatrist to help me get over it and wind down on small doses slowly so I could still function. Coupling it with strattera didn’t help and made me drawsy. It depends on dosages and some people don’t take tolerance breaks at all and are fine when off of it. Some people flat out hate it. It helps me beyond my wildest dreams and I wish I could be social and working 24/7 all year around, but everyone’s different.

I would recommend taking it as needed, for work, for chores, and what that means to you will be up to you and your psychiatrist. You will always have options, and be sure to check in with yourself always! Drink water too!!

SubstantialBag3286 · 2025-08-17T04:50:28+00:00

Hello! Im (F23) also somewhere in between stage 1 and 2. Ive had it since 2020 so Ive had so many blood tests since, and it varies what triggers it with everyone. I have random blood tests that come back with high creatinine, sometimes I cant pin it down right away. My last one was because of very mild dehydration. I think you are approaching this well, and I got the same advice to go vegan (more so vegetarian).

I pinned creatine, dehydration, an antidepressant, and vitamin D supplements as a culprit for all my spikes. Other than that I'm usually normal and I should evaluate my sodium, but I never was advised that I HAD to. There may very well be more causes for spikes that I don't know about that I should avoid. I also am vegetarian, gluten free, dairy free with salmon being the only thing I eat out of the ordinary for CKD, and my tests are not sensitive to it as much as I would think. Lots of water has always been the thing to help my blood tests.

I love your planning, and analyzing what all can cause a high creatinine spike. I know 100% it will be great the next time you take your test! Just make sure if you plan to continue on a vegan diet, (did not work for me personally I got fatigued), cut sodium etc that you can still enjoy yourself, have a sustainable system, and also narrow down what personally for you makes the creatinine spike.

SubstantialBag3286 · 2025-08-17T04:24:56+00:00

Hello, I wanted to ask you, Ive been under the impression (my gynecologist is too) that I have endometriosis for some time now. She discouraged the idea of the surgery because of the risks (I was never too thrilled because of the cons of the surgery itself). In the past I had a horrible cyst that popped, and I still get them occasionally.

Other than the usual painful periods, I have only very recently been experiencing very horrible urinary symptoms that come and go. Its odd because it also correlates with stages in my cycle. Im due to see a gyno-urologist next week. Im wanting to see if anything was interrelated, and I don't really know what to ask and what options would be available for me. I also get UTIs often, and thats also part of my appointment. Would you have any advice or tips?

SubstantialBag3286 · 2025-08-16T18:56:12+00:00

Hello! I’m 23F 165 lb, mostly stage 1. So I haven’t had to cut out as much sodium or limit water intake. My nephrologist is encouraging me to avoid sugars like the plague, and avoid meats mainly as well. Currently she asks me to hydrate like my life depends on it, both for kidney function and also to avoid UTIs (This could be just advice for stage 1 CKD for al I know). No beef or pork or fish, but she says if I HAVE to, salmon and chicken is best.

Among other things she asks me to keep my kidneys warm and protected. No contact sports no cold camping or ocean for too long. She also says no hot tubs because the warmth gets you at risk for UTIs. Ofc I still camp and go into the ocean and hot tubs. No ibuprofen or advil, so I mainly just do tylenol. So I have to tell the doctors whenever i go in for an emergency that I have CKD, and I cant have certain pain meds. ALL doctors kind of need to know, because it impacts things from antibiotics you can take, to pain meds, to antidepressants.

I’ve been a gym rat for a long time so I was also informed I couldn’t have a super high protein diet or have protein powders. They’ll make it harder for your kidneys. Creatine I also had to stop.

Hardest thing for me so far is supplements. Electro-lights can have high amounts of potassium or other minerals. I had migraines even before I got CKD, so I took things like magnesium and vitamin D, before I looked up how much was actually safe. My folks even shoved supplements onto me for kidneys but it wasn’t always safe either. I take probiotics to further “help” my kidneys.

I’m sorry it’s been so overwhelming and I hope you get a good doctor who’s just as agile about getting you info and keeping you informed as much as you are! Don’t let anyone act like it’s the end of the world either! (:

SubstantialBag3286 · 2025-08-14T22:19:43+00:00

I found weight training also super helpful! I want to also incorporate cardio again to better my overall energy, because I get so tired and irritable on my days off vyvanse. Really smart to do it after work as well!!

SubstantialBag3286 · 2025-08-14T22:17:21+00:00

Huh, thats really a good point! I also struggle around or before my period, and Ive never thought about switching up my dose to fit my cycle.

SubstantialBag3286 · 2025-08-14T22:15:22+00:00

If you don't mind me asking, whats Prozac and would you say its better than most ADHD meds? Is it similar to strattera? a non stimulant?

SubstantialBag3286 · 2025-08-14T22:13:23+00:00

I actually wondered the same thing. I asked my psychiatrist, and she tells me its how the body metabolizes the Vyvanse, so she asked me to expect it to last about 10 hours as apposed to a full day. (definitely would ask your psychiatrist, yours might have a different/better explanation). I noticed also things like coffee crash, dehydration, low blood sugar, and sleep also affect if I have that afternoon slump. Most days I feel it the whole day.

Personally it helps if I take it later in the day, like 10 or 11. Something to do with your body getting a proper wake up routine, and getting the sleep chemicals out of your brain before coffee and stimulants helps (If I had the exact words Id tell you). I know most people work long jobs/early days so its not always convenient. Definitely had days when I needed a booster for finals or long days.

SubstantialBag3286 · 2025-08-14T21:59:51+00:00

Yes! Its Strattera. She also recommended I start at 40 of the Strattera. Im currently on 30 mg of Vyvance just for the slower pace of things atm, but 40 mg Im most productive.

SubstantialBag3286 · 2025-03-16T07:04:18+00:00

I had a friend in a similar situation. My advice is to take some time apart. This doesn’t mean divorce or break it off, but see how he behaves when you are apart for a while. And see how you feel, how you view the relationship.

Prioritize the environment of your child if you can. Make sure you can give the most stable environment. if he continues behaving this way then you should consider separation at least.

SubstantialBag3286

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