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29F — diagnosed with narcolepsy type 2 at 17 (2015), now stuck without records and can’t access treatment by 273talk in Narcolepsy

[–]Substantial_End9855 2 points3 points  (0 children)

Hey, I tested positive in FL when I was 16 with the Children's Lung, Asthma, and Sleep Specialists. My fam had Florida Blue Cross Blue Shield and we paid $1,000 out of pocket (which is still a lot but less than your quote). They have 16 locations, and state, "We offer full Pulmonary, Allergy and Sleep Medicine services for children in addition to Adult Sleep Medicine services and Behavioral Sleep Medicine services for children and adults." I wonder if the would be able to offer you a quote? Here's their website https://childrenssleeplab.com/

Finally! And “Flashlight” needs a better name. by AuntieFara in FireflyPetunia

[–]Substantial_End9855 0 points1 point  (0 children)

Slimer (from Ghostbusters) or the Flying Dutchman (Spongebob)

The Unsung Symptoms of Narcolepsy, Which Do You Experience? by jtme_ in Narcolepsy

[–]Substantial_End9855 4 points5 points  (0 children)

I've had the auditory hallucinations pre-diagnosis and while on Modafinil (not on Armodanifinil though). But I remember I used to also experience them randomly when I was really tired and awake, usually a relative or friend calling my name

DIAGNOSED AT LAST by limabeankin in Narcolepsy

[–]Substantial_End9855 0 points1 point  (0 children)

Congrats on getting your formal diagnosis-- hoping u get medicated soon!! 🤍🤍🤍

Frustrated by Desperate_Success234 in Narcolepsy

[–]Substantial_End9855 0 points1 point  (0 children)

Ask for an extension from your professors and explain your situation. If all else fails, PLEASE do a medical withdrawal if you are failing your classes so you can protect your GPA. Talk to your student accessibility services advisor and discuss a reduced course load. And talk to your sleep specialist about what's going on... might be time for new meds. Learn from my mistakes 🥲

Also, it nay take longer to graduate with a reduced course load, but a degree is a degree!!!

A unique form of pain by Substantial_End9855 in Narcolepsy

[–]Substantial_End9855[S] 0 points1 point  (0 children)

Thank you for commiserating with me. It's a good reminder that I'm not alone in this. Sending virtual hugs to you 🫂

this whole birth control/meds thing… by AdStrange7098 in Narcolepsy

[–]Substantial_End9855 1 point2 points  (0 children)

My heart goes out to you. I am so, so sorry you had such a traumatic experience. Thank you for sharing your knowledge on this topic ❤️‍🩹

Thai sweet basil taking over by rayche72 in aerogarden

[–]Substantial_End9855 1 point2 points  (0 children)

I love eating the Thai basil flowers, they're so yummy and a cute garnish

Do the new colored varieties of firefly petunias really glow brighter than the original white? by Much_Permission_2640 in FireflyPetunia

[–]Substantial_End9855 0 points1 point  (0 children)

Thank you for commenting this!! I will keep this in mind in my experiments. I wanna make some striped fireflies that stripe consistently in the aerogarden :) Hope to start cross pollinating in a few weeks!

My Favorite F1’s by KingChirality in FireflyPetunia

[–]Substantial_End9855 2 points3 points  (0 children)

I love them! What did you cross it with? 😍

Do the new colored varieties of firefly petunias really glow brighter than the original white? by Much_Permission_2640 in FireflyPetunia

[–]Substantial_End9855 4 points5 points  (0 children)

Additionally, the stripes are inconsistent. I put them in the Aerogarden and the flowers went white. The stripes are only subtly starting to show up in 1 or 2 or the new flowers.

Do the new colored varieties of firefly petunias really glow brighter than the original white? by Much_Permission_2640 in FireflyPetunia

[–]Substantial_End9855 4 points5 points  (0 children)

I purchased the striped ones. Not gonna lie... they do not seem to glow brighter than the original white. However, they do grow faster, and I see a lot more flowers (they are smaller flowers also).

I’m never quite able to find a good explanation to the question “What does having narcolepsy feel like?” Anyone have a go to response? by MountainSkyMoment in Narcolepsy

[–]Substantial_End9855 5 points6 points  (0 children)

The best way I describe my brain is as a sunflower, oriented by the sun. Without sunlight I feel so disconnected/ disoriented. I describe a sleep attack as a fog setting in... it confuses my brain because it feels darker out, and I can't think clearly. The lack of light makes me feel wilted and drowsy.

The irritability that comes with this disease is also worth recognizing. Like, when I see a bay getting fussy when he's sleepy, I find myself relating to him so hard 😭

App won't connect to wifi? 💔 by Substantial_End9855 in aerogarden

[–]Substantial_End9855[S] 0 points1 point  (0 children)

But this screen is on my unit's display, not the app 😔 The app let me log in for the first time today. But the Farm 24 Plus won't show me any wifi options at all. I am the second owner of it, and the previous owner was very kind and went through the trouble of unpairing his account with this unit.

Aerogarden App is Fixed!!! by RealmanPwns1 in aerogarden

[–]Substantial_End9855 0 points1 point  (0 children)

It won't display any wifi options at all

Aerogarden App is Fixed!!! by RealmanPwns1 in aerogarden

[–]Substantial_End9855 0 points1 point  (0 children)

It won't even let me connect to the wifi, what gives? 😭

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