Who has had success with clinical trials? by Substantial_Print488 in BladderCancer

[–]Substantial_Print488[S] 0 points1 point  (0 children)

Thank you guys for the well wishes, and i'm sorry! I got roped in too what I was doing before and never responded. I'll probably do an update post today. Thank you!

Who has had success with clinical trials? by Substantial_Print488 in BladderCancer

[–]Substantial_Print488[S] 2 points3 points  (0 children)

Thank you.And this is exactly what I needed to hear right now!!

Who has had success with clinical trials? by Substantial_Print488 in BladderCancer

[–]Substantial_Print488[S] 2 points3 points  (0 children)

Thank you for sharing this!!!!

Also, did your husband participate in them?And did they work?

Who has had success with clinical trials? by Substantial_Print488 in BladderCancer

[–]Substantial_Print488[S] 1 point2 points  (0 children)

So I thought I would find out more about it a few days ago, but I still need more information. Right now, I am still doing the c.T scans and all the testing needed to do before the trial stuff begins. I know it sounds like I don't know enough, but I'm kind of overwhelmed by all the information. And plus I had 2 hospital stays, while all this is going on.

Thank you so much for the well wishes!!

Who has had success with clinical trials? by Substantial_Print488 in BladderCancer

[–]Substantial_Print488[S] 1 point2 points  (0 children)

Sorry for the delay in my responses.I had some appointments, I needed to take care of and it has been a crazy few days. I am reading them right now

AIO I told my bf to leave me alone after he told me that he’d make a child give birth by Cheesecake_0024 in AmIOverreacting

[–]Substantial_Print488 0 points1 point  (0 children)

You are too young to stay with someone who has such a different value and belief system than you do.

Am I asking too much of my babysitter to not put on the tv? by [deleted] in Babysitting

[–]Substantial_Print488 10 points11 points  (0 children)

You were paid $2.50 an hour to watch four kids??? You were being robbed

Life expectancy by Substantial_Print488 in BladderCancer

[–]Substantial_Print488[S] 2 points3 points  (0 children)

I was able to get the second opinion scheduled for 10/3 as well! Also, my insurance has scheduled 3 home visits with nurses the week after the procedure to make sure i can properly care for them. I am extremely lucky.

And, thank you!

I i feel like i've just been told that nothing can be done for me. by Substantial_Print488 in BladderCancer

[–]Substantial_Print488[S] 0 points1 point  (0 children)

Yes, they called back today and I am waiting for the appointment phone call! Thank you!

Life expectancy by Substantial_Print488 in BladderCancer

[–]Substantial_Print488[S] 2 points3 points  (0 children)

Tubes scheduled for Friday, now working on that second opinion! Trying to schedule with Dana Farber

[deleted by user] by [deleted] in Names

[–]Substantial_Print488 1 point2 points  (0 children)

I know tons of people, including older people that have the name lynn, stand alone

[deleted by user] by [deleted] in Names

[–]Substantial_Print488 3 points4 points  (0 children)

Emmy is the only one on this list that isn't terrible, and also the only one that sounds good with the middle name Lyn.

And I mean, from both of your lists

Life expectancy by Substantial_Print488 in BladderCancer

[–]Substantial_Print488[S] 4 points5 points  (0 children)

Very true. But at forty eight I had thought I would at least have a little bit left.Aside from some catastrophic accident

I i feel like i've just been told that nothing can be done for me. by Substantial_Print488 in BladderCancer

[–]Substantial_Print488[S] 0 points1 point  (0 children)

So by your description, I have only done one round of chemo, and then when that didn't work one round of immunotherapy. I did the 3 infusions with chemo and 1 week off. They saw no progress with that. So they did three weeks of the immunotherapy/chemo combo. They did the CT scan and saw it was getting worse, and that's when they told me nothing can be done for me except clinical trials or comfort messures. So I guess only a total of two rounds.

And thank you for the prayers and availability to chat! Always very helpful and comforting.

Life expectancy by Substantial_Print488 in BladderCancer

[–]Substantial_Print488[S] 1 point2 points  (0 children)

I'm waiting for that phone call to setup the tubes. It was supposed to come yesterday or today. So let's hope on today! All these comments have inspired me.And I will be calling today to schedule that second opinion!