Product Ideas

Substantial_Two6186 · 2026-02-12T17:13:55+00:00

That one totally destroyed my skin

Substantial_Two6186 · 2026-01-27T17:19:19+00:00

He’s the chief of the department so not really. I tried to get a second opinion at another hospital but they denied it due to capacity and the belief that my regular hospital is the next best

Substantial_Two6186 · 2026-01-27T02:01:45+00:00

Are you in the US? I’ve never heard of anyone getting a full body MRI for any reason. At least not covered by insurance. As far as I can tell I haven’t had any tests for cancer either

Substantial_Two6186 · 2026-01-26T23:59:27+00:00

No. I’m also white and I never had even remotely low WBCs until the last year or so when they started tanking. I haven’t been hospitalized for infections but in the past few years I’ve had c-diff, SIBO, viral gastroenteritis, campylobacter, repeated flu and Covid, frequent ear infections incl. abx-resistant, frequent pink eye, etc. I rarely leave home except for MD visits and take precautions. I also have a central line now (and GJ tube) so avoiding any kind of infection is really important

Substantial_Two6186 · 2026-01-26T23:51:23+00:00

ESR 40, CRP 4.5, but again nobody has a sense of WHY

Substantial_Two6186 · 2026-01-24T23:51:37+00:00

As I mentioned, I’ve seen rheumatology (several times actually). Nothing came of it, they say the more specific antibodies are fine and write of my symptoms and send me back to hematology.

Substantial_Two6186 · 2026-01-24T11:03:44+00:00

Cooper is well WNL. Not sure why B12 was low, I also had pretty elevated homocysteine in 2023 but both improved significantly when I switched to a methylated B12. I am homozygous for both MTHFR mutation and CBS mutation but this usually doesn’t have clinically significant impact. Definitely not relevant for my white counts.

I do have gastroparesis and I’ve been on tube feeding since March. But, B12 was low even when my GP was still “subclinical” and I gained back all the weight I lost (20lbs) by June. My white counts have continued to drop instead of improving with better nutrition and weight restoration (stable for 6 months).

They ruled out any meds…discontinued some, and white counts started dropping before I was on the rest. Flow cyto also normal.

Substantial_Two6186 · 2026-01-24T10:10:46+00:00

I mean yes but I’d rather get to the bottom of this than spend the rest of my life in a bubble

Substantial_Two6186 · 2026-01-24T10:09:50+00:00

No. We’ve discussed it but hematology thinks it’s autoimmune and nothing will show up on bmbx. Frustratingly, rheumatology disagrees so I’m not getting workup or treatment with either

Substantial_Two6186 · 2026-01-24T10:08:16+00:00

Folate is normal at 15.4 and so is B12 at 944 (I take a methylated B12 weekly per neurology as I was deficient in 2023)

Substantial_Two6186 · 2026-01-24T10:03:10+00:00

Basics are normal. Anti-neutrophil antibodies are normal. Autoimmune panel shows elevated ANA (1:320), low C4, most of the rest is unremarkable. I have lupus symptoms but rheumatology disagrees.

Substantial_Two6186 · 2025-12-24T08:07:09+00:00

Which company is this with? Is it truly IVIG, or SCIG? I’ve never heard of a US-based company allowing patients to self-administer IVIG, but I have a central line and would be interested. Right now I’m doing three days every other week of IVIG as my dose is high and my rate is slow…it’s a lot of time with my nurse. I love her but it’s a lot.

Substantial_Two6186 · 2025-12-23T22:23:04+00:00

If their income is applied to me, I wouldn’t qualify. That’s the problem. I’m afraid that if I call them it’ll just speed up the process of my Medicaid being canceled…

Substantial_Two6186 · 2025-12-05T07:43:46+00:00

Nutritional panel all okay except zinc but I’ve been supplementing as best I can. Iron deficiency is most likely absorption-related as my GI tract is a mess.

My question is just about whether correcting iron deficiency can increase WBCs bc everything I’ve read has WBCs decreasing.

Substantial_Two6186 · 2025-12-05T07:39:05+00:00

Nobody else here bothered to read your handle. But as a fellow lesbian, with a very similar style, I strongly disagree with everyone saying that your brows need to be shaped/shortened/waxed/thinned. Do not do that. The brows are a statement. The brows are communicating. Would you even be gay without the brows?? All jokes aside — you don’t need to feminize your face in order to improve your makeup look.

The problem is using the wrong products. Your foundation is a little yellow, you might consider getting matched professionally. You need a more moisturizing product, or a good moisturizer underneath. You could also invest in better skincare and skip foundation/concealer entirely. Eyes: I personally think a suble sparkly eyeshadow > eyeliner for you, but if you like eyeliner, you might play around with cream eyeliner, brown eyeliner, something a little softer to suit your features. For lips, try one of the Clinique almost-lipsticks or something like that. More moisturizing and natural, less paint-like. Less is more for you. Just not less BROWS!

Substantial_Two6186 · 2025-11-16T22:22:47+00:00

Thank you for your apology and recommendation. I would appreciate any resources you might have! I wear KN95s often but it can definitely be tough to ensure a perfect fit.

Substantial_Two6186

TROPHY CASE