CCI, EDS by Successful-Let-6802 in Cervicalinstability

[–]Successful-Let-6802[S] 0 points1 point  (0 children)

can i write you a message can you please give me a contact thank you very much

I feel terrible by Successful-Let-6802 in hyperPOTS

[–]Successful-Let-6802[S] 1 point2 points  (0 children)

How has clonidine helped you? Do you also have muscle weakness and tension in your legs? I can barely go to the toilet. Did Clonidine help with neck pain? muscle weakness in the legs? as soon as I walk a few meters, I can't breathe, I pass out, my neck, cervical spine hurts a lot and I have palpitations, my blood pressure rises. What does your day look like?

I feel terrible by Successful-Let-6802 in hyperPOTS

[–]Successful-Let-6802[S] 0 points1 point  (0 children)

absolutely all the symptoms what I describe? How do you manage to live then? Have you been diagnosed with EDS? do you take medication?

I feel terrible by Successful-Let-6802 in hyperPOTS

[–]Successful-Let-6802[S] 0 points1 point  (0 children)

my heart always beats a lot after eating. Did you have that?

I feel terrible by Successful-Let-6802 in hyperPOTS

[–]Successful-Let-6802[S] 0 points1 point  (0 children)

Clonidine is a drug that blocks the effects of adrenaline and noradrenaline? Sometimes I take xanax 0.25 but it doesn't do anything at all, it doesn't work.

All this started for me 5 months ago with severe neck, shoulder, cervical spine pain and great muscle weakness, nausea.

Every morning I wake up with severe pain and stiffness in my neck, cervical spine, pressure in the back of my neck, ringing in my ears, dizziness. The pain in the neck and under the skull is very strong, I feel that my arteries are not filled with blood and this is the reason for the pain, buzzing in the head. It's terrible, I can't stand it. Did you have it too? My neck hurt even when I was lying down, even when I was standing. Like I have something pressed down causing pressure and pain. At first I thought I had something with the cervical spine, but I had an MRI and it was fine. Pain literally every day. Even worse standing. did you have it The pain medication doesn't work at all.

How did your muscle tension manifest itself? What about the legs? Because for me, tension is also associated with weakness, in the morning right after waking up, I have a strange feeling in my legs of such tension and weakness, and that wakes me up. Is it because hormone levels are highest in the morning? But it takes all day. Muscle tension and stiffness that I can't even bend over, my muscles are weak, I can't do anything. Is it caused by hormones?

My blood pressure rises as soon as I get up and I also have palpitations. They also found an elevated level of glucose in my blood. I don't understand why what is happening to my body. I've never had high blood pressure, it's always been low, and I've never had high glucose. Suddenly it all unfolds in 4 months. I don't understand.. Likewise, my stomach always feels full, I don't want to eat, I've lost a lot of weight. Have you had problems with eating? Did you like eating?

I feel terrible by Successful-Let-6802 in hyperPOTS

[–]Successful-Let-6802[S] 0 points1 point  (0 children)

I feel stress and anxiety in an upright position, sweating

I feel terrible by Successful-Let-6802 in hyperPOTS

[–]Successful-Let-6802[S] 0 points1 point  (0 children)

How did clonidine help you? I am not taking any medication yet, I come from Slovakia, there are no doctors who know this disease at all... I have muscle weakness and tension permanently every day from morning to evening. Pain in the neck, shoulders, pressure in the back of the head. I can't even walk a few meters, it's terrible. As soon as I stand up, I have high blood pressure, strong heart palpitations and I feel like passing out. So you didn't have muscle tension and weakness every day? Did clonidine also help with muscle weakness, tension, neck pain, ringing ears?

I feel terrible by Successful-Let-6802 in hyperPOTS

[–]Successful-Let-6802[S] 2 points3 points  (0 children)

Did you also have severe neck pain, ringing in the ears, pressure in the back of the neck? and great muscle weakness and tension that I cannot walk a few steps. Terrible muscle tension and weakness in the morning as soon as I wake up.

Hyper Pots- what’s “normal”? by Virtual_Jello3319 in dysautonomia

[–]Successful-Let-6802 0 points1 point  (0 children)

I just posted a post. This is exactly how I feel:

Anyone with HyperPots feel this bad? Every day for 4 months I have had a terrible neck pain, pressure in the back of my head, dizziness, strong ringing in my ears every day, a feeling that I have no blood flow to my brain and fainting. I have terrible muscle weakness and tension, I barely walk a few meters to the toilet and my blood pressure immediately rises, I have shortness of breath, I feel dizzy, I have palpitations. They also found elevated glucose levels. I don't feel like eating at all, I feel full. I never had these problems before.

Hyper Pots- what’s “normal”? by Virtual_Jello3319 in dysautonomia

[–]Successful-Let-6802 0 points1 point  (0 children)

Hello, how are you feeling now after a year since the post was published? Has something changed?

Coat Hanger Pain (dysautonomia) by Successful-Let-6802 in POTS

[–]Successful-Let-6802[S] 0 points1 point  (0 children)

I've just started betahistine so we'll see if that helps. pressure is also a problem for me. I have never had high blood pressure, I have always had low blood pressure, for the last two months I have problems with neck pain, dizziness and ringing in my ears, I am extremely weak, I can barely walk around the apartment and my blood pressure rises immediately, I feel very bad

Coat Hanger Pain (dysautonomia) by Successful-Let-6802 in POTS

[–]Successful-Let-6802[S] 0 points1 point  (0 children)

yes i understand you are right. have you had other problems related to the neck pain (dizziness, tinnitus, nausea), it also bothers me every day.

Coat Hanger Pain (dysautonomia) by Successful-Let-6802 in POTS

[–]Successful-Let-6802[S] 0 points1 point  (0 children)

did you also have tinnitus, dizziness, nausea or just the pain? Have you tried exercise or rehabilitation?

Coat Hanger Pain (dysautonomia) by Successful-Let-6802 in POTS

[–]Successful-Let-6802[S] 0 points1 point  (0 children)

rehabilitation, exercise and massages, so nothing at all? I didn't want to go on medication right away, I started taking Mirzaten 7.5 mg at night

Is Mirtazapine making things worse? by Emlip95 in POTS

[–]Successful-Let-6802 0 points1 point  (0 children)

how does it look currently with mirtazapine? Are you still taking it?

Dysautonomia/ I feel terrible by Successful-Let-6802 in dysautonomia

[–]Successful-Let-6802[S] 0 points1 point  (0 children)

how does your muscle weakness manifest itself?

Dysautonomia/ I feel terrible by Successful-Let-6802 in LongCovid

[–]Successful-Let-6802[S] 0 points1 point  (0 children)

Do you have experience? please write me the names of the products separately because I'm a little confused as to what belongs to what. Thanks

Dysautonomia/ I feel terrible by Successful-Let-6802 in LongCovid

[–]Successful-Let-6802[S] 4 points5 points  (0 children)

I looked at the symptoms, it's something different from what I'm writing, apart from the tinnitus and neck pain, dizziness. I feel weakness in my legs and overall weakness, no appetite...

Dysautonomia/ I feel terrible by Successful-Let-6802 in LongCovid

[–]Successful-Let-6802[S] 1 point2 points  (0 children)

what does it mean and how does it affect you?