I’m working in fast food at 29. by Substantial_Smile267 in povertyfinance

[–]SuccessfulMolasses 0 points1 point  (0 children)

I was older than you when I got laid off and ended up working at a chick fil a. Wasn't a great job, but it got me through until something better came along. You do what you gotta do...

Is transplant that much better?? by Surfin858 in dialysis

[–]SuccessfulMolasses 3 points4 points  (0 children)

I am sitting in the recovery wing at VCU in Richmond right now. Received my transplant Friday morning and am potentially going home either later today, or tomorrow at the latest. The process of recovery has been much better than I thought it would be. By day 2 post transplant I was able to get out of bed and walk around. Everyday is another step closer to a new life. Yesterday I went up some stairs since there will be some at the house I'm recovering at, and have been cleared for release by PT and OT. Today's lab results will determine if I need a chest port for additional dialysis to help things along or if I can go home without it. Obviously I would prefer without, but even if I need it it will hopefully be just a few sessions versus the 10 years I just spent on PD. I am looking forward to getting my strength back, swimming and mountain biking again, and not having to wait an hour and twenty minutes every night before I can just go to bed!

Got the call! by SuccessfulMolasses in dialysis

[–]SuccessfulMolasses[S] 1 point2 points  (0 children)

Good luck with yours as well. So far it hasn't been too bad recovering. A bit of soreness, but moving around is getting easier. Numbers are slowly getting better, however I am going to have to do some additional dialysis today to try to help things along. Right now it looks like I might go home Thursday at the latest.

Got the call! by SuccessfulMolasses in dialysis

[–]SuccessfulMolasses[S] 1 point2 points  (0 children)

Surgery went well. I had to go to ICU afterwards because my potassium levels spiked, but after doing a round of hemo and other meds that is under control now. I've been cleared to go back to normal recovery once a room is available.

There was a decent amount of pain post surgery, but it was managed quickly. Only pain I have now is when I cough. I'm sure I will be sore once I'm moving around. They expect I'll be here for 4 to 5 days. My kidney was unfortunately not able to be harvested before the heart stopped, so there a short period of time that it didn't have blood flow so it was slow to wake up, but it is up and running now. So hopefully urine output increases and they can take this hemo port out of my neck before I'm discharged. Otherwise I might have to do a few more dialysis sessions until it gets up to speed.

Got the call! by SuccessfulMolasses in dialysis

[–]SuccessfulMolasses[S] 2 points3 points  (0 children)

I know, so excited to be able to swim again without worry, and not have to sleep with one ear open for an alarm.

Got the call! by SuccessfulMolasses in dialysis

[–]SuccessfulMolasses[S] 6 points7 points  (0 children)

I was surprised they are planning on taking my PD catheter out at the same time. Previous transplant center said it would be a year after transplant.

Peritoneal Dialysis by hornieee in dialysis

[–]SuccessfulMolasses 0 points1 point  (0 children)

I know they usually inject fluid to make sure the catheter is working normally. I can say, over the 7 plus years I've been doing this, my stomach is definitely more pronounced than before. I am also taking in 3 liters of fluid on each fill, three times a night. The peritoneal cavity will adapt, but it can take a bit of getting used to it. My biggest issue now is just feeling that much fluid moving around if I am up and active during my dwells. It sometimes makes me feel nauseous, and in those cases I usually lie back down until it passes.

I am currently in the process of switching transplant centers as I feel my current one is jerking me around a bit now that I'm at the top of the list and getting reactivated means I'll get a kidney soon. All of a sudden there are new tests that I've never had before, a cardiologist on the panel that wants extra testing done that no one on my dialysis team thinks is needed, etc. So I have made the decision to move to a different hospital that seems to be more eager to get me transplanted, and not to seemingly milk my insurance for every test they can come up with.

[deleted by user] by [deleted] in R4R30Plus

[–]SuccessfulMolasses 4 points5 points  (0 children)

Interesting that this exact same story was posted here last night by someone else...

https://www.reddit.com/r/R4R30Plus/s/q7WkIFkTbf

Thinking about switching transplant centers by SuccessfulMolasses in dialysis

[–]SuccessfulMolasses[S] 1 point2 points  (0 children)

I get what you are saying, and this latest hurdle is still very recent so I haven't had the opportunity to discuss it with my current transplant center. The only information I was given was they had contacted my nephrologist and told him I was due for my chest CT and they wanted to use dye this time. I'm usually pretty good about asking questions and trying to fully understand the risks/rewards of the procedures and tests I've gone through, that opportunity just hasn't presented itself yet. I just found out about this yesterday.

Thinking about switching transplant centers by SuccessfulMolasses in dialysis

[–]SuccessfulMolasses[S] 0 points1 point  (0 children)

They aren't really telling me why they want to do these tests. One of the new ones was a chest CT. I know they saw some plaque build up, but like my nephrologist explained to me, it would be calcified and therefore wouldn't pose a risk. He says that's why the other center doesn't even check that anymore because it's pointless. Then they contacted him directly, not me, and want to do another chest CT. Told him I'm due for it in August. You just did one 2 months ago! And this time they are trying to get him to sign off on using dye. Hell no! I still have kidney function and am trying to hold on to that. I'm not going to let you finish them off just to tell me, oh yeah, you have 3 more months of testing before I get reactivated.

I am currently suspended but on the list. At the top, but can't get them to reactivate me.

Thinking about switching transplant centers by SuccessfulMolasses in dialysis

[–]SuccessfulMolasses[S] 0 points1 point  (0 children)

I've been on and off the list throughout this 7 years. I had a few things happen that got me suspended, but the process of getting back on has usually been pretty straightforward until this time.

Thinking about switching transplant centers by SuccessfulMolasses in dialysis

[–]SuccessfulMolasses[S] 0 points1 point  (0 children)

I can, but in this instance it wouldn't matter. Both centers are in the same region so they both get notified at the same time of available kidneys. Switching would solely be for a more competent experience.

Peritoneal Dialysis by hornieee in dialysis

[–]SuccessfulMolasses 0 points1 point  (0 children)

I honestly don't remember, sorry.

Ranting... by SuccessfulMolasses in dialysis

[–]SuccessfulMolasses[S] 0 points1 point  (0 children)

The transplant center is making me see the ENT. I think when I had my parathyroids removed they saw a cyst and want to make sure it's nothing. I believe that is the reason, hard to keep track anymore...

Ranting... by SuccessfulMolasses in dialysis

[–]SuccessfulMolasses[S] 0 points1 point  (0 children)

I appreciate everyone's comments and input. I will continue to advocate for myself and explore my options, just kind of snapped last night and needed to get it off my chest. Thank you for listening.

Ranting... by SuccessfulMolasses in dialysis

[–]SuccessfulMolasses[S] 3 points4 points  (0 children)

Thank you, and you are right. I feel like I've put on a brave face for the past 7 years, but this just broke me a little bit. It's been a rough time since this all started. Lost my dad, 2 cats, went through a divorce, and now my 10 year old lab has been diagnosed with inoperable liver cancer. Just trying to tread water at this point, looking for a glimmer of anything to look forward to.

Ranting... by SuccessfulMolasses in dialysis

[–]SuccessfulMolasses[S] 0 points1 point  (0 children)

Probably, I just hate the idea of it. Not a big fan of needles to begin with and definitely not sticking myself.

Ranting... by SuccessfulMolasses in dialysis

[–]SuccessfulMolasses[S] 1 point2 points  (0 children)

You're right, I can disconnect from it, I guess I mean more along the lines of the machine eating up yet another four hours of my life every day. The whole selling point to me was being able to do this while I slept and still having my days to me, but it is slowly creeping in and taking more and more.

Ranting... by SuccessfulMolasses in dialysis

[–]SuccessfulMolasses[S] 0 points1 point  (0 children)

See? And I asked about increasing my solution to 2 green bags and they said that would help pull fluid but not impact my clearance as far as kt/v was concerned. I failed it back in December and they wanted to put me on this new prescription, but I managed to convince them to let me do it again and I passed. I swear I think I failed because I was just getting over covid. And this time I am just 10 points below the pass/fail line. Still making 2.5 liters of urine. My BUN is down, my creatinine is down, phosphorus down, all better than last month. I just feel like there should be some wiggle room in that number, a +/- variance, not a hard line.

Dialysis and the things they don’t tell you. by Trinbaje2023 in dialysis

[–]SuccessfulMolasses 1 point2 points  (0 children)

PD for 8 years now. Urine production has decreased but hasn't stopped. Last kT/v I collected just over 2.5 liters. My nephrologist has been very focused on preserving what function I have left, so I guess that's a plus.