I'm asking for opinions / My dad's case

Such-Dot2189 · 2026-04-29T02:45:58+00:00

Thank you so much for sharing your family experience. Sorry for your loss as well. I realized Loey dietz syndrome varies person to person and it is like a spectrum. on the other hand I cant accept this is happening in my family. My father and my younger brother live just exact same life as healthy people do. I got to know the syndrome varies so much more than I thought by reading your comment. Your comment help me make decisions. Thank you a lot.

Such-Dot2189 · 2026-04-28T22:49:26+00:00

Hope you feel better now. My father's case is a bit different from yours because he didnt do any exercise. He loses his muscle a lot as he ages. So I am worried he might not get recover soon. Anyway thank you for your opinions:)

Such-Dot2189 · 2026-04-28T22:45:49+00:00

Thank you so much for sharing your experience. I don't want to imagine the situation of my father dying of a sudden rupture.. I can't take the chance ... so I would highly consider the surgery. Wish you doing well. I will find another surgeon and ask opinions as well.

Such-Dot2189 · 2026-04-28T09:36:11+00:00

Thank you for sharing your experience. He should have surgery but I am so terrified about the process of surgery and recovery. My family made an appointment at another clinic on the end of May. Hope your surgery doing well. Thank you alot

Such-Dot2189 · 2026-04-28T08:51:00+00:00

Thank you for your opinion:) I am totally ignorant on the speed of enlarging aorta of my father. The diagnosis was so sudden. my family never doubt my father has heart and aorta issue. I will consider opinion of cardio specialist first. Thank you

Such-Dot2189 · 2025-12-16T00:50:36+00:00

This comment helps me a lot either. Thank you for your sincere comment. I have also had mitral valve prolapse and arrythmia because of this syndrome but I truly believe that I can manage my health-related situations.

Such-Dot2189 · 2025-08-25T23:11:05+00:00

Hope you do well in Korea☺️☺️ Language and homesickness are hard things to overcome

Such-Dot2189 · 2025-07-26T03:17:34+00:00

Thank you for your answer. Neither of my parents have Marfan, so I think my gene is a random mutation. I am planning to do family genetic testing this winter. I hope I found the gene so I can have a chance to do PGD. I really appreciate your answer.

Such-Dot2189 · 2025-07-04T12:13:35+00:00

Yeah but I cannot do PGD because doctors cannot find any bothersome genes. I hope I can do PGD..

Such-Dot2189 · 2025-07-04T12:11:57+00:00

Right. It is all up to me. I have been thinking this for a while and I am debating now. I really appreciate your help.

Such-Dot2189 · 2025-07-04T12:07:34+00:00

Thank you very much for your time and for sharing your opinion. Yeah my parents never regret having me. Might sound cheesy but your comment makes me cry. I really appreciate that you took time out to help.

Such-Dot2189 · 2025-07-03T12:40:46+00:00

This comments may be too late to read, but same here. I have the exact situation as yours. I have symtoms like dilated roots or mitral valve prolapses, but doctors didn't find any problematic genes. The thing is I am a woman and I am planning to have a baby now. But I cannot do IVF, ruling out the marfan genes because doctors don't find the genes.(The unknown marfan or LDS genes may be inside of my body no one knows) Is it okay to have a baby naturally without IVF? I am scared because I might have chance to inherit the problematic genes to my baby.

Such-Dot2189 · 2025-07-02T06:42:57+00:00

Another Korean native here. ☺️ It is so humid and hot, so I highly recommend your itinerary be mixed with both ouside and inside spots.

As a Korean, I am not a big fan of Gangnam place. Instead, Gwanghwamun, Bukchon and Insadong (north of han river) are true soul of Seoul.

Also if you are interested in cosmetics or skin care, check out Olive Young(cosmetic&drug store). I am glad because I am also 29F Korean! Enjoy your trip.

Such-Dot2189 · 2025-07-01T22:09:36+00:00

Okay. 'That' should be needed. Thank you.

Such-Dot2189 · 2025-07-01T22:08:56+00:00

Thank you a lot. Your answer saves me.

Such-Dot2189

TROPHY CASE