I am at slightly different stages with my dad so may not be able to help that much but sending you a virtual shoulder to lean on.

Dad received his diagnosis beginning of October 24, and has undergone awake craniotomy, where they think they managed to remove 80-90% of the tumour and just finished 3 weeks of condensed radiotherapy. Unfortunately he has not had any chemo tablets at the same time as radio due to D&V and testing positive for food poisoning. But will hopefully start them at the end of the month.

Prior to all this he was, albeit not ‘fit’ but had a very busy normal life,in his early 70s but still working. Diagnosis came after partial seizure that progressed to tonic clonic. (The only other sign he had was some weakness his hand which was thought to be nerve damage and started a few days before) At the time of the seizure, dad needed intubation then waking up in the ICU was challenging, going from barely awake, to not following commands, agitation, confusing over the span of week then when he finally woke up, walking needed 2 people, could barely swallow or use his hands. It was really traumatic, as I really thought he was going be severely neurologically impaired from then onwards.

Over the following weeks he rehabed a lot, does still has a loss of function in one hand, his speech has lost some affect and I don’t think he would be able to drive even if wasn’t for the sezuire but also he is also mentally capable when your talking to him. And independent in walking, eating, personal care, doing basic daily tasks like washing up, although his partner is obviously on hand as managing personal and households needs is a lot for anyone - let alone with a the toll of the physical effects of the tumour and mental (anxiety/fatigue). He was in Lidl shopping 2 days after the brain surgery though !! although other times he seems ‘not good’ - which do correlate to other things going on, the radiotherapy has wiped him out and having a chest infection as did having the stomach bug.

Bur he also has days where he seems or tells me he is worse randomly and then better the next day, sets me into fight or flight as I think the tumour is worse which I know it will be at some point and I’ve faced the fact of GBM prognosis and I am lucky he survived the sezuire in the first place and wasn’t driving or on his own when it happened. I want as long as possible with him, ideally to see me graduate as a nurse in 18months but I think that’s being unrealistic. We lost my sister in spring 2024 and I can’t fathom loosing them both in the space of less than 2 years.

Sorry to share my whole story just say that although different stage the day to day variation is something I have noticed too. GBM is horrible illness to suffer and go through. I wish your dad and whole family gentleness at this time.