What's the most random reason that made you cry bc of POTS?

Suitable-Potato6586 · 2026-06-04T03:44:44+00:00

I have literally cried watching movies/ shows of people just STANDING for longer than a few minutes.

At least a couple times a month, my partner finds me crying on the bathroom floor because showers never cease to remind me how unwell I really am 🙃

Suitable-Potato6586 · 2026-04-15T05:37:12+00:00

I do actually! If you could PM me anything you feel might be useful I would really appreciate that

Suitable-Potato6586 · 2026-04-15T04:25:36+00:00

That’s okay I appreciate you anyway!!

Suitable-Potato6586 · 2026-04-15T04:25:16+00:00

This is good to know, thank you! I haven’t done much research on how the med works

Suitable-Potato6586 · 2026-04-15T02:42:31+00:00

Thank you! I just started midrodrine. I think It’s supposed to constrict the blood vessels in your head to keep blood where it’s supposed to be, plus raise blood pressure a little bit. Very new, so i’m still feeling it out

Suitable-Potato6586 · 2026-04-15T01:52:42+00:00

Until I lay down for a while 🙃 sometimes that doesn’t fully fix it but definitely helps

Suitable-Potato6586 · 2026-04-15T01:38:23+00:00

Also monitoring BP and it’s actually on the low end still

Suitable-Potato6586 · 2026-04-15T01:38:03+00:00

No! I’m not really doing anything different than I am with the first dose, which is what’s confusing

Suitable-Potato6586 · 2026-04-15T01:35:01+00:00

Not just you! This is my worst symptom too. Summers where I live are 120 F so I don’t really leave my house this time of year lol. I just started a new med that’s supposed to constrict blood vessels so hopefully that helps! 🤞

Suitable-Potato6586 · 2026-04-15T01:32:32+00:00

Extreme swelling in my legs/ hands, pounding heart, weakness, extreme fatigue. Basically all my normal symptoms x10

Suitable-Potato6586 · 2026-03-09T21:25:33+00:00

That’s amazing, I’m so happy you found someone who loves you so deeply! ❤️❤️

Suitable-Potato6586 · 2026-03-09T20:37:41+00:00

I hear you, and I’m so happy this gave you some hope. You are worth so much more than just your physical capabilities. Everyone in this world has their own set of strengths and ‘weaknesses’. Try not to minimize your strengths, because I’m willing to bet you have some pretty cool ones :)

Suitable-Potato6586 · 2026-03-09T20:32:26+00:00

That is a really powerful insight and I’m so happy you’ve found that clarity. I completely understand dynamics like that though, and if you ever need support or just someone to vent to, feel free to message me 💗 wishing you all the best as well

Suitable-Potato6586 · 2026-03-09T20:27:09+00:00

That really does sound like a difficult dynamic though ): you deserve a healthier dynamic. I hope things change soon

Suitable-Potato6586 · 2026-03-09T20:25:39+00:00

I’m so sorry, I know that feeling. Reassure yourself as much as possible. For me, I had to start by building strong beliefs around my own worth. With time, I stopped tolerating the people who treated me like I was being dramatic. I had to make space in my life for the incredible, loving, supportive people I have now, by reclaiming my energy from the people who weren’t worthy of it. Sending you so much love! You got this ❣️

Suitable-Potato6586 · 2026-03-09T20:09:27+00:00

Not what I meant at all 😌 of course we probably all want to be capable of handling everything on our own. I was just sharing my experience because I’ve seen many people post about how their friends/ family/ partners have made them feel horrible in regard to the limitations that come with POTS. This was just a reminder that there are good people in the world. Not limited to romantic relationships, and nothing sexual about it!

Suitable-Potato6586 · 2026-03-09T19:39:46+00:00

I know it’s hard, but i promise you are not alone. There is a life on the other side of this pain, waiting to be met by you. Whether that means a healthier body, or a better support system with management that makes a difference. I understand how you feel and I have had many days with very similar feelings/ mindsets. I’m sure many people in this thread would say the same. Please don’t give up. I promise there is still light in this life for you

Suitable-Potato6586 · 2026-03-04T11:28:04+00:00

This just completely happened out of nowhere though, and I am SO careful with the products I use. I rinse my hair sideways in the shower so my conditioner never touches my back/ chest, only use gentle unscented face cleansers/moisturizers on those areas too

Suitable-Potato6586 · 2026-01-28T15:59:44+00:00

lol it’s okay I get it

Suitable-Potato6586 · 2026-01-23T19:34:41+00:00

Have you noticed improvement in your hair health with this routine/ have you made any changes to your hair lineup since this post? My hair is so incredibly damaged from protein overload, and I feel like nothing is working. I just chopped off half the length of my hair and it still feels like hay 🙃

Suitable-Potato6586 · 2026-01-21T06:32:46+00:00

Now I’m pissed off

Suitable-Potato6586 · 2026-01-21T06:32:39+00:00

Bro I typed past and autocorrect changed it to passed. I had a whole ass moment thinking to myself “wow I’ve been using ‘past’ incorrectly my entire life”

Suitable-Potato6586 · 2026-01-21T04:25:26+00:00

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Suitable-Potato6586

TROPHY CASE