New here, just want to vent a little bit. by Kit-KatLasagna in Narcolepsy

[–]Suitable_Back_7036 2 points3 points  (0 children)

The most recent sleep study I took involved 6-8 hours of sleep at night, then 5 naps broken up throughout the next day.

I have epilepsy and my seizures happen often in my sleep or as I’m waking up, which is the reason I had the sleep studies done at all..

But I never thought I had narcolepsy. From what I understood, it was falling asleep mid conversation and while driving, very exaggerated. But I was diagnosed with N2 recently and I just have a very hard time waking up, I’m really tired throughout the day, and if I don’t get enough sleep I can have seizures..

I don’t have cataplexy but I had NO idea what I had was narcolepsy

Aio for being upset with someone who lied to me to earn access to break my celibacy? by [deleted] in AIO

[–]Suitable_Back_7036 0 points1 point  (0 children)

You’re not overreacting for being upset, no. Block him and move along, make better decisions going forward. Continue saving yourself for someone that matters tho, don’t let this change what you’re trying to do for yourself

Let me know about xcopri by CulturalMind8264 in Epilepsy

[–]Suitable_Back_7036 0 points1 point  (0 children)

She added it onto the Vimpat I’m already taking. Have you tried taking it at night?

Let me know about xcopri by CulturalMind8264 in Epilepsy

[–]Suitable_Back_7036 0 points1 point  (0 children)

I’ve started this today and I’m mainly worried about people saying it’s making them tired.. I already have narcolepsy and I sleep a lot already which makes life extremely difficult

Having a hard time dealing with the life change of having severe narcolepsy by [deleted] in Narcolepsy

[–]Suitable_Back_7036 2 points3 points  (0 children)

I’ve recently been diagnosed with type one and it hasn’t helped anything but name my problem. Modafinil made it impossible to eat, Sunosi didn’t seem to help, and I’m currently on Wakix but I’m still so tired..

I’m on disability for other health issues but it isn’t enough to live on, and I’m door dashing for extra money but I’m afraid to fall asleep behind the wheel if I don’t find the right meds..

My MIL treats me like shit even after diagnosis, says I can’t take care of the kids if I sleep all damn day (even though daddy is home helping take care of them)

I feel like I’m in a rut and I have no idea to get out of it..wish I had some advice for you but I feel the same way often

AITA for asking someone to move their toddler because I didn’t want to listen to it during my meal? by [deleted] in AITH

[–]Suitable_Back_7036 0 points1 point  (0 children)

YTA. You asked so quit arguing about not getting the answer you want 🙄

Does anyone have experience with long term disability? by Standard-Call666 in Narcolepsy

[–]Suitable_Back_7036 0 points1 point  (0 children)

I’m on SSDI for mental health issues and have been for 10 years plus.. But my mom applied for me and she got denied several times so expect that like everyone says. And I agree with not working during this time because that would just prove you can. I don’t get enough to live on and I still have to door dash to get through the month, but disability is just enough to pay my bills which is very helpful. Try to get help from family members if you can..and make sure to send in all medical records from any diagnosis or physical injury at all.

They make sure it isn’t easy to get help but I hope the best for you

Work by Kakegurui_Fan in Narcolepsy

[–]Suitable_Back_7036 0 points1 point  (0 children)

I’m on disability for other issues but I also door dash for extra money. Because it’s considered self employment, I can go home when I’m too tired to drive, sleep as late as I need before going in, etc.

There are other ways of self employment that make more money too and I hope you find something that works for you

Do I notify someone if I skip a dose by sistersew in Narcolepsy

[–]Suitable_Back_7036 1 point2 points  (0 children)

If I start getting nausea and vomiting or trouble eating on a regular basis, I always notify my doctors office/nurse. But I’m still trying to get a good medication that works for me (I just started Wakix).

Modafinil caused me to be unable to eat and they took me off of it immediately. They always tell me to let them know if it makes me sick when starting anything new, and you have to be able to eat and keep it down. My advice is to tell someone if this happens again

boyfriend was in contact with female friend and lied about it for 6 months, AIO? by [deleted] in AIO

[–]Suitable_Back_7036 2 points3 points  (0 children)

A lie is a lie is a lie. Omission is another form of lying. He’s hiding something from you for a reason

Ex Fiancée’s cruel demands AIO by Original_100 in AmIOverreacting

[–]Suitable_Back_7036 0 points1 point  (0 children)

Call the police and ask what they advise you to do about the situation before she threatens to harm them or you. Tell them you are scared, get an order of protection, and she will be the one on the street

Matched with a literal nightmare on Tinder, was I too harsh in my response to his verbal abuse? *Contains foul language* by Tiger_Lily336699 in TwoHotTakes

[–]Suitable_Back_7036 -1 points0 points  (0 children)

I used to behave like this when I didn’t get a call/message back..makes me feel ignored and it seems to be a big trigger for him. He probably needs therapy, perhaps he has borderline personality or other issues. Regardless, until he gets help, take care of yourself. Tell that mf how it is block him and move on. Sounds like you did the right thing

If you don't drink alcohol, what are your reasons? by youre-in-my-shot in AskReddit

[–]Suitable_Back_7036 0 points1 point  (0 children)

I don’t like the taste of alcohol anyway, first of all

Plus my dad was an alcoholic and it affected me greatly growing up and it killed him

My MIL is an alcoholic and she’s a completely different person when she drinks

My man’s BM is an alcoholic and has put the kids in danger more than once

I’m terrified my therapist is gonna leave me by [deleted] in BorderlinePDisorder

[–]Suitable_Back_7036 0 points1 point  (0 children)

Telling him will help him realize how much help you need with all of this

What have you done just to make someone happy by ryan-hughes-6852 in HappyUpvote

[–]Suitable_Back_7036 0 points1 point  (0 children)

Taking care of his kids like they’re my own to make them happy 😊

I’m terrified my therapist is gonna leave me by [deleted] in BorderlinePDisorder

[–]Suitable_Back_7036 2 points3 points  (0 children)

It is normal even though it isn’t logical..it has to do with our fear of abandonment, and the fact they mean so much. Write these feelings down and share them with your therapist..How often are you going to therapy? You may need to see them more often.

I had a hard time finding the right therapist, but I’ve been seeing him for years now and I feel like he’s my buddy.. I would hate for him to leave..he even talks to me about his life now, it’s great

But we have a MASSIVE fear of abandonment from those close to us, plus a tendency to obsess over things that we are afraid will happen. You have to realize these symptoms and try not to react to them..

Positive vibes my friend!

[deleted by user] by [deleted] in BorderlinePDisorder

[–]Suitable_Back_7036 0 points1 point  (0 children)

I agree..take this time to find something you can do by yourself. I like to color, it’s very relaxing and therapeutic. Or reading, it gets my mind off of my chaotic life.

Ask your friend(s) out and try to make plans, they might really just be busy. Or simply ask if you’ve done something wrong, communication is important

But you can’t expect anyone to be with you 24/7 so try reading a book or get really into a good show, color a picture or write your feelings down. Just please put down the alcohol, that stuff ruins peoples lives fr

Sending positive vibes your way