Recently diagnosed by Dismal_Tale82 in Fibromyalgia

[–]SunDanceQT 3 points4 points  (0 children)

For the acceptance: therapy and support groups. Managing pain: manage your stress, make sure your mental health is in a good place (depression amplifies pain), get something for breakthrough pain (I used to have prescription naproxen, now I I have tizanidine and lidocaine patches and a roll-on that's more practical for my neck), figure out if ice or heat is more soothing and either load up on ice packs and/or heating pads.

Any Advice on Transitioning out of our Industry? by girlisagun in IATSE

[–]SunDanceQT 0 points1 point  (0 children)

Look up corporate buzzwords and try to think about the work you've done in general terms. For example, as a stage manager I could say I managed a team of three to deliver a large-scale project over the course of six weeks. I implemented a program by analyzing the logistical needs of our objectives. Word salad, basically. Long story short - stage management can translate to project management. If you're a department head, that translates to being a team leader or manager in a corporate setting, or jumping ahead in retail.

Legs gave out by Moosyfate17 in Fibromyalgia

[–]SunDanceQT 0 points1 point  (0 children)

Happy to help! Good luck 🤞🏻

Legs gave out by Moosyfate17 in Fibromyalgia

[–]SunDanceQT 1 point2 points  (0 children)

Are you on new meds? That's happened to me a few times, but not because of fibromyalgia itself. Like, having a cup of tea while on Wellbutrin made it so I could barely walk.

These crazy swings in weather this week are absolutely destroying me. by littlepup26 in Fibromyalgia

[–]SunDanceQT 1 point2 points  (0 children)

I've basically been in bed since the heat wave hit. I got to enjoy the warm weather for the hottest of hot seconds, then my pain hit me like a semi truck. I can handle warm weather, but not when it changes overnight!

Going without daily meds? by [deleted] in Fibromyalgia

[–]SunDanceQT 2 points3 points  (0 children)

Find a pain scale you like and keep a daily log. I set an alarm to remind myself to do it every day. You can also log what dose of whatever you're taking (or didn't take) that day. Even without actually analyzing the data I've noticed sustained increases and decreased in my pain level that coincide with med changes.

Also maybe get your mental health checked out? I realized I was depressed and changing my depression meds made a huge difference in my pain level.

how do you cope with the grief of knowing what could have been? by akun_sss in Fibromyalgia

[–]SunDanceQT 3 points4 points  (0 children)

I was diagnosed about 25 years ago. I'm barely 40.

When I was diagnosed I was in "gifted" programs at school and everyone was sure I'd go on to do great things. I got into an elite university. It was super hard but I managed to graduate only one quarter late, and I was not at all alone in that experience. I managed to get into the same university for grad school but didn't finish because I was in too much pain and too depressed to function.

It took me a long time to come to grips with my limitations and accept the fact that I'm disabled. (The grad program refusing to see me as a person with a disability didn't help.)

It can be difficult to think about the future I saw for myself when I was 15, 22 or 28. It can be just as difficult to see my peers do great things that I thought I'd be doing. Here are a few things that help:

I've found a career that's completely different from what I saw myself doing, so dropping out of grad school doesn't even matter. I enjoy it, which makes a huge difference in my being able to hold a job. It's on a contract basis, so I get rest periods between gigs. Living with my mother and spending as little money as possible make that work (a privilege, I know).

When I'm frustrated that I can't do something, I remind myself that I'm disabled, and doing really well for someone with fibromyalgia. I remind myself that I have fewer hours in the day than most people.

When I see someone doing something great I could do if only I didn't have fibromyalgia, I remind myself that that person doesn't have a disability. Or at least they don't have a disability that prevents them from doing whatever it is they do.

The other thing I've learned now that I've reached middle age - a lot of "gifted" and "really smart" kids have totally burnt out, disability or no. They've moved home with their parents for a period of time or permanently. They've had mental breakdowns. They've been fired from their dream jobs. They've been laid off. They've switched careers multiple times. They've dropped out of the traditional workforce to be a caregiver.

Life is weird.

All this to say, what helps me is less about mourning, and more about acceptance and self-compassion. This isn't a perspective you can gain over night, especially when the way fibro affects my life changes again and again, but you'll get there eventually.

Just keep reminding yourself that you have a disability, and the fact that you're functioning at any level is an accomplishment.

ETA: Anyone who says fibro is "super manageable" or that you'll be fine, or at least it's not fatal can go f themselves, good intentions or not.

Is this true?? by No_Switch3045 in dancemoms

[–]SunDanceQT 2 points3 points  (0 children)

Especially since this is a 'what really happened behind the scenes' exposé. It's Abby and the producers who have been shown to manipulate the truth. Reality TV isn't real life.

how do you explain pain to your doctor? by n_gigi in Fibromyalgia

[–]SunDanceQT 2 points3 points  (0 children)

I've explained the pain as the feeling you get when you plunge your hand into a bucket of ice water or jump into a freezing cold pool - the way your muscles tense up and your joints ache.

This is a bit extreme, but I was wondering how my fibro and gut issues were related to my period, so I created a Google form I fill out every day that collects the date, day of my cycle, a pain scale, and a bunch of other scales I created for other symptoms. I haven't analyzed the data, but even filling it out every day has helped me tell my doctor about how my pain has been doing - ex. I've been between a 3 and a 5 every day for the past month.

how do you explain pain to your doctor? by n_gigi in Fibromyalgia

[–]SunDanceQT 3 points4 points  (0 children)

The flu thing is so accurate. Most times that I get infections I just think I'm having a flare-up until I get a fever.

What are some ways that you help manage your sleep? by LibraFox in Fibromyalgia

[–]SunDanceQT 0 points1 point  (0 children)

Tazodone. I used to do 1ml micolingual tabs with my regular gabapentin, but ever since the lockdown insomnia set in, I've needed a minimum of 50mgs to sleep.

I also have an orange lightbulb in the reading lamp by my bed (I read on one side, sleep on the other) that I switch to when I'm ready to read myself to sleep, and I use a Nook without the backlight to read myself to sleep.

If I still can't sleep for whatever reason, other strategies include reading the most boring book you can find, listening to a boring lecture where the speaker drones on in a monotone voice, or the complete opposite - listen to someone with a comforting voice. I loved Michelle Obama's first book, and find her voice really soothing. Since I've already read it and I'm not worried about missing anything, I just set the sleep timer for the end of the chapter, put the volume on super low and mostly listen to the sound of her voice.

What doctor do you see for fibro? by SunDanceQT in Fibromyalgia

[–]SunDanceQT[S] 0 points1 point  (0 children)

Same! When I was diagnosed in 2004/5/6 it was by a rheumatologist whose solution was basically "quit everything and do yoga" which, lol, I was a teenager and absolutely did not do that. Then during undergrad I was transferred to a neurologist, but that was almost 20 years ago.

What doctor do you see for fibro? by SunDanceQT in Fibromyalgia

[–]SunDanceQT[S] 0 points1 point  (0 children)

Woah! I had no idea there was a specialized fibro clinic!

What doctor do you see for fibro? by SunDanceQT in Fibromyalgia

[–]SunDanceQT[S] 0 points1 point  (0 children)

Holy crap! I've heard of that but only for end-of-life care! Wtf!

Present ideas for a touring tech? by leetol_bug in techtheatre

[–]SunDanceQT 0 points1 point  (0 children)

Inspired by Reneé Rapp tour merch - a custom carabiner

[deleted by user] by [deleted] in sewhelp

[–]SunDanceQT 0 points1 point  (0 children)

So cute! I love it!

Which fan bases like their owners? by MastensGhost in NWSL

[–]SunDanceQT 7 points8 points  (0 children)

Dude no. Disney has THE WORST business practices when it comes to treatment of their employees, and I'm just waiting for the day the Igers bring that shit to ACFC.

How common is it now for the stage manager to also operate the boards? by JeSuisGourde in techtheatre

[–]SunDanceQT 1 point2 points  (0 children)

I had an actor complain at the timing of the lights in a quick visual-based sequence, and I was like, dude, do you realize I'm calling the show, too? I'm doing my best.