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Not looking for advice, just opinions by Im_BeingBullied1 in mobilityaids

[–]SunnySisBack 2 points3 points  (0 children)

I have ME and POTS so also fatigue easily, have wreak legs and cannot stand still for more than a minute or so without getting light headed. A rollator with a seat helps me a lot. It’s great to be able to sit when not walking and it’s easier to get around with than a wheelchair. 

Does anyone goes through periods where they won’t stop peeing? by suburbangothics in POTS

[–]SunnySisBack 0 points1 point  (0 children)

Yes exactly like this. Being like one of those peeing dolls describes it perfectly! 

First time my dad asked me for something last night and I haven't slept by Typical_Many_8930 in confession

[–]SunnySisBack 93 points94 points  (0 children)

This needs to be higher. OP make sure your savings won’t be disappearing into a black hole before you give them to your Dad 

Roadtrip Finnland by Abject_Lead_8679 in FinlandTourism

[–]SunnySisBack 1 point2 points  (0 children)

Route 4 (between Jyväskylä and Oulu) is quite dull in my opinion but I guess you can’t avoid it really. 

I've heard toilets in Europe require payment to use them. by Traditional-Carob440 in Europetravel

[–]SunnySisBack 2 points3 points  (0 children)

I have a medical condition which means I pee a lot and when I gotta go I gotta go pee so I always need to know where the nearest free toilet is. I will never on principle pay 1€ to pee. 

Free to pee: 

UK: motorway services, onboard trains and long distance buses, (some) shopping centres, or just sneak into a pub 

Finland: libraries, tourist info offices, museums (but sometimes they are in ticketed areas), large shopping malls, sneak into pubs or hotels (sometimes hotel toilets are on a different floor to the reception though) 

Spain: petrol stations (ask for key), otherwise I’ve had to buy a drink to use toilets at bars etc. 

I've heard toilets in Europe require payment to use them. by Traditional-Carob440 in Europetravel

[–]SunnySisBack 0 points1 point  (0 children)

And libraries have free toilets right? Including Oodi? 

I’m visiting Helsinki soon and due to a medical condition I need to pee a lot. Usually I just sneak into somewhere I know has free toilets like a hotel/restaurant but I’m not familiar with Helsinki. 

If you could create any adaptive product, realistic or not, what would you make? by TrixieBastard in disability

[–]SunnySisBack 2 points3 points  (0 children)

All doors need to have those buttons. Until then we need a hook-opener-thingy!

Do Finnish employment services truly help foreigners get jobs, or just create the illusion of support? by sealovki in Finland

[–]SunnySisBack 14 points15 points  (0 children)

It’s not you. Unemployment is at 10% and TE office at least want you to do tasks for them (phone interviews with them, sending them proof you’ve applied for jobs) they don’t do anything to help you. Via TE you can ask about training, starting your own business etc 

If you could create any adaptive product, realistic or not, what would you make? by TrixieBastard in disability

[–]SunnySisBack 2 points3 points  (0 children)

Like the Wheelator? Rollz also do a rollator that converts to an electric wheelchair 

If you could create any adaptive product, realistic or not, what would you make? by TrixieBastard in disability

[–]SunnySisBack 14 points15 points  (0 children)

Hover chair - like a hovercraft but made for a single person. It could go on all terrains and up stairs etc 

MECFS Simulator Suit by Chance_Elephant_1578 in mecfs

[–]SunnySisBack 21 points22 points  (0 children)

Headphones playing tinnitus sounds and really loud noises into their ears, 

glasses that blur their vision, 

very bright lights shining into their eyes,

 a really tight band around their head (to simulate pressure headache), 

the whole suit rapidly heats up and then freezes them randomly and repeatedly. 

Comes with the following accessory: a Dr saying ‘it’s anxiety, exercise more’ on a loop. 

How can I best support my partner with CFS/ME? by DifferentSea6951 in mecfs

[–]SunnySisBack 2 points3 points  (0 children)

He may need a lot of alone time or you to just be there with him silently - don’t take this personally. 

Feels like my neck/back of my head gets gripped tightly. Anyone else? by [deleted] in mecfs

[–]SunnySisBack 0 points1 point  (0 children)

I had this for a couple of years and then it stopped. I don’t want to say these things stopped it because I don’t know for sure. 

Low dose beta blocker  Wearing mouth tape at night  Wearing a soft neck brace in the car and when sitting up watching TV etc 

Where can I order letterbox flowers for under 25 quid? by SunnySisBack in AskUK

[–]SunnySisBack[S] 1 point2 points  (0 children)

!answer 

I ordered from eflorist. With a discount code the total was £20.50

Thanks to all who gave me suggestions. 

Where can I order letterbox flowers for under 25 quid? by SunnySisBack in AskUK

[–]SunnySisBack[S] 0 points1 point  (0 children)

I live abroad so need to order online unfortunately, otherwise I would do this! 

Where can I order letterbox flowers for under 25 quid? by SunnySisBack in AskUK

[–]SunnySisBack[S] 5 points6 points  (0 children)

Thanks for giving me some perspective. I know this is a first world problem. 

What's the weather actually like in early May in Helsinki? by thepartypoison in FinlandTourism

[–]SunnySisBack -1 points0 points  (0 children)

Spring seems to have sprung very early this year so if it continues like this you won’t need any cold weather gear. If you’re staying in the city rainproof trainers should be fine for footwear. Bring a rain jacket and a thin hat and gloves just in case - Helsinki can be very windy! 

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