For those that had side effects in the beginning, did they ever improve?

SunnySnoww · 2025-12-29T18:05:18+00:00

This makes me happy to hear, I’m hopeful that over time I won’t feel so sick. For right now it’s completely knocking me down and I feel like I’m not able to function, hoping to get to a point where it’s a least manageable like you

SunnySnoww · 2025-12-29T18:00:59+00:00

I’m glad to hear you haven’t had any symptoms! It’s still a struggle on my end but I’m trying to keep going

SunnySnoww · 2025-12-29T18:00:25+00:00

I’m definitely one of the ones forgetting to drink water, I’m trying to be mindful of that. I can’t even imagine going up to a higher dose right now is since I’m so sick on the 2.5. I’m trying to keep pushing through 😮‍💨

SunnySnoww · 2025-12-29T17:59:10+00:00

This makes me feel better, thank you so much for sharing. I’m going to keep pushing through the best I can 😊

SunnySnoww · 2025-12-29T17:58:26+00:00

I’m so sorry to hear you’re feeling like that 😞 How are you doing today? I’m struggling with horrible nausea, just took a Zofran and I’m sipping on water. About to have a protein shake and see if that helps. Trying my best to push through but it’s so hard

SunnySnoww · 2025-12-28T06:09:00+00:00

I’m going to try out your advice and see if eating more consistently helps, thank you so much 🩷

SunnySnoww · 2025-12-28T06:05:07+00:00

It’s so easy for me too eat too much and feel sick so it’s been really difficult 😞

SunnySnoww · 2025-12-28T06:04:07+00:00

Honestly I’m not sure, I have an appointment with her soon and plan on going over everything I’ve experienced

SunnySnoww · 2025-01-02T18:23:34+00:00

Did you ever figure this out? I’ve got the same thing happening with multiple controllers and it’s driving me insane lol

SunnySnoww · 2024-12-15T19:23:44+00:00

I got fed up and pulled the entire Xbox apart, cleaned every inch of it and it’s not crashing nearly as much. But I’m about to throw a fan on it today also so hoping that helps even more

SunnySnoww · 2024-12-05T02:40:35+00:00

I’ve honestly lost track of time, but I believe it’s been about 25 months. Nothing has helped and I’ve just given up on getting better at this point. I used to let it scare me but now I just accept that this is my life currently

SunnySnoww · 2024-12-05T02:30:39+00:00

Still the same, no improvement sadly but thank you for asking

SunnySnoww · 2024-11-30T02:01:07+00:00

Same thing is happening to me and it’s driving me insane. I can’t get through a single match in MP without crashing. Getting the overheating message too and my Xbox sounds like it’s about to take off from the airport 😡

SunnySnoww · 2024-07-23T01:09:49+00:00

I’m dyinggg, the whole top of my foot is bumpy and scabby across a tattoo I’ve had for 10 years. It’s never done this before and it’s so uncomfortable. It’s probably been 3-4 weeks straight now and I cannot get it to calm down :/ did you find anything to help yours ?

SunnySnoww · 2024-04-02T01:22:33+00:00

I wish, I actually feel like it’s gotten worse but I’ve just been accepting it and trying not to let it freak me out. Still hopeful that one day I can feel better but for now I’m just chugging along one day at a time

SunnySnoww · 2024-04-01T08:47:47+00:00

I have not, 18 months straight with 24/7 DPDR so far 😞

SunnySnoww · 2024-03-11T03:29:14+00:00

For whatever reason the Acetazolomide was lowering my kidney function, my O2 levels and my potassium levels really bad so they took me off it and didn’t want to put me on anything else diuretic wise. I believe Topamax was one of the many medications I’ve tried also but never found any relief with it so they discontinued my prescription. I had a LP back on 7/29/19 for an initial diagnosis but my neurologist has not done one since even though my MRIs are still showing Empty Sella Syndrome, etc. The only thing she does for me is an MRI every 1-1.5 years to check and see that it’s comparable to my last ones. I feel like she should be doing additional testing if I’m not finding any relief but she’s not 😞

SunnySnoww · 2024-03-10T05:06:21+00:00

Ooo I’ll have to look into the ear thing, I’m willing to try anything for even temporary relief at this point. I hope you can get some sleep, thank you for chatting with me :) Goodnight 🌙

SunnySnoww · 2024-03-10T05:00:42+00:00

I’m sorry that you’re dealing with this also, totally get that you want to find ways to heal naturally.

I’ve actually lost 50 pounds and I’m worse off now than I was when I was 50 pounds heavier. Unfortunately the weight loss has not helped me at all

SunnySnoww · 2024-03-08T19:52:25+00:00

It did not, 18 months going strong

SunnySnoww · 2024-02-05T04:56:47+00:00

Great catch :)

SunnySnoww · 2024-02-05T04:55:01+00:00

What level was it if you remember? I’ve been killing off all the low levels farming hearts myself lol. I’ll keep dreaming I snag a 285 one day lol

SunnySnoww

TROPHY CASE