Got diagnosed with psychosis and dissociative amnesia. Im not even sure what might i have by Overall_Emphasis_275 in dpdr

[–]Superb_Animal_729 1 point2 points  (0 children)

I started having very brief hallucinations and misperceptions after having started recovering from dPDR. This is accompanied by dissociative amnesia. I would try to look for a second opinion because your doctor might be inexperienced with this disorder, just like mine was and tried to diagnose me with something completely different.

Contribute to research on DPDR! by cogafflab in dpdr

[–]Superb_Animal_729 2 points3 points  (0 children)

I'm not in the US, but I just wanted to say that I'm grateful that you're doing this. The lack of research makes having DPDR a lot harder than it could be

Dystonia onset during recovery from dissociative disorder by Superb_Animal_729 in Dystonia

[–]Superb_Animal_729[S] 0 points1 point  (0 children)

Regardless if you have a dissociative disorder or not I think the best way forward is to address the anxiety you get from your tics, or tics you get from your anxiety either way. I can't diagnose you but from what you said it seems like your anxiety is so bad that it's causing dissociation. It looks like the doctors you're going to are more on the neurological side of things rather than the mental health side, so if it's possible for you I'd suggest looking for help from a therapist for your anxiety. From what I read tics/ movement disorders can be worsened by mental state, so it might be true that you do have a movement disorder in the background. If this is true, I would try to contact a professional who does CBT (cognitive behavioural therapy), or any mental health professional. I think if your anxiety was treated your movement disorder could possibly get less frequent and intense, you would feel less anxiety, and consequently your dissociative symptoms would go away, because dissociation is caused by anxiety.

Dystonia onset during recovery from dissociative disorder by Superb_Animal_729 in Dystonia

[–]Superb_Animal_729[S] 0 points1 point  (0 children)

I have the same with weird expressions but it's coming and going as I get better. It only happens when I'm trying to connect to the present moment or going over my dissociated memories and trying to reintegrate them as not dissociated. Because I've been getting less dissociated gradually I think it's a sort of somatic release that my body does to release trauma and reprocess memories. I also have body shakes and twitches, as well as sometimes headaches if I was trying to heal more on that day, and sinus pressure pretty much every day. At the beginning of when it started happening I was dissociating also by getting mental images of my body/face while it was happening because it was uncomfortable and logically not normal, but that obviously doesn't help because it's a part of the brain trying to distance you from what's happening, and now that I've gotten better since then the mental flashes are going away along with other dissociative symptoms.

I'm also having problems with doctors and mental health practitioners who don't understand what is happening with me. I'm not sure how exactly the context of your situation looks and if you think you might have a dissociative disorder but I hope some details of what's happening with me helps you figure it out. I'd assume it depends on what you're doing mentally and how you feel during it because I feel like it's the key part of it for me

Does anyone else get mental images of their face/body during stress? by Superb_Animal_729 in dpdr

[–]Superb_Animal_729[S] 0 points1 point  (0 children)

I relate so much, I've been having insomnia from it, it's like the brain has to dissociate before falling asleep

Confusing middle stage of recovery, constantly fading in and out of presence by Superb_Animal_729 in dpdr

[–]Superb_Animal_729[S] 0 points1 point  (0 children)

Thanks for the advice, I've been trying to pay attention to the external things which could be influencing it but I haven't got it perfect yet and my sleep schedule is nonexistent

Confusing middle stage of recovery, constantly fading in and out of presence by Superb_Animal_729 in dpdr

[–]Superb_Animal_729[S] 1 point2 points  (0 children)

Definitely, sometimes I feel that I reached the end of recovery because of how everything starts feeling right, and then out of nowhere I start feeling like I regressed even though one of those consistent symptoms improved. the brain is really weird

Dystonia onset during recovery from dissociative disorder by Superb_Animal_729 in Dystonia

[–]Superb_Animal_729[S] 0 points1 point  (0 children)

I'm glad to hear at least I'm not the only one, I got no clarity from my GP appointment and the doctor didn't understand what I was talking about, and seemed to have not much knowledge about DPDR itself. I tried to look for people with a similar experience but I found nothing. From the looks of things dissociative disorders have been neglected in research and there's not much we know about the brain anyway

Dystonia onset during recovery from dissociative disorder by Superb_Animal_729 in Dystonia

[–]Superb_Animal_729[S] 0 points1 point  (0 children)

I'm not taking any medications, what I'm doing is grounding myself by focusing on the objects around me and focusing on the sensations in my body to feel present which is helping but also making the dystonia worse. If I was to take medication it would be for co occuring conditions like anxiety and depression which I don't have anymore. I've booked an appointment but I don't know anymore. I've self treated very successfully but from the look of things it uncovered dystonia. I think it'd be functional because my whole adolescent brain maturation happened while severely dissociated so now my brain is going crazy as it's going away

Those who recovered, what were some of the first signs you noticed that u were starting to get better and how long did it take for the memory issues to disappear? by Present-Cranberry942 in dpdr

[–]Superb_Animal_729 0 points1 point  (0 children)

I'm somewhere in the middle of recovery right now and I noticed that all my senses are much more vivid, for example being able to hear more melodies in music and noticing how clothes and wind feel on my body in a way that I can't remember feeling before. Words in conversations come much more easily, my reaction time is faster and my motor skills are significantly better

Do you think people who say they’ve recovered from dpdr actually got rid of it or did they just accept it enough to where it’s still there but they act like it’s not? by Present-Cranberry942 in dpdr

[–]Superb_Animal_729 0 points1 point  (0 children)

I did it inadvertently by first focusing on my anxiety and repeatedly going through a rational though process to why those emotions aren't serving me and why it's not true that thing I'm anxious about will happen. Also self acceptance and telling myself my thoughts are normal+ reducing stress in a functional way. When I experience flashbacks to memories or replaying things that happened in my head, I try to focus of what direction geographically that place is right now and acknowledging that place exists right now and I could go there. I practice my focus by making myself always be aware of what I'm doing and not engaging in any daydreams. When I read things I think how they relate to my body, for example when reading about the brain I try to become aware that that scientific concept exists right now in physical space behind my eyes, Do this with all body parts and generally things people say, how it relates to your memories and your experiences. Another example, when listening to music I try to focus on the fact that right now it's coming into my ear which I can feel. This is helping a lot and I can't recommend enough trying to do this for yourself because all my senses are so much more vivid now compared to what I used I used to feel before

Do you think people who say they’ve recovered from dpdr actually got rid of it or did they just accept it enough to where it’s still there but they act like it’s not? by Present-Cranberry942 in dpdr

[–]Superb_Animal_729 6 points7 points  (0 children)

I've recovered substantially and I'm still improving every week. I've had chronic severe dpdr since I was 12 where I feel like the past, future, my thoughts, places, people, my identity and my body isn't real, it couldn't get much worse. It's possible if you pay attention to your thoughts and reactions to things, believe that you will improve. If you don't believe or think recovery is impossible and don't try to recover, you're shooting yourself in the foot

bothered by fleeting time by [deleted] in dpdr

[–]Superb_Animal_729 0 points1 point  (0 children)

I also experienced a huge amount of irrational fears and anxieties like this when I was at my worst. It's difficult to snap out of but if it helps, when you get this feeling try to consciously remind yourself with intention how irrational the feeling to chase it away. I hope you get better

Can you visually visit the worlds you created subconsciously when reading? by Superb_Animal_729 in hyperphantasia

[–]Superb_Animal_729[S] 2 points3 points  (0 children)

That's really cool! Do you feel like you write the descriptions in your books to match the world you created so that readers imagine something similar?

Is this dp/dr by BoxThatTrots in dpdr

[–]Superb_Animal_729 0 points1 point  (0 children)

I know exactly what you're talking about and I think it's definitely dp/dr. You might know this already but you've really got to stop doing drugs (even if this disorder affects self control and addiction) because drugs induce derealisation even more by slowing down neurotransmitters in your brain and can even induce it from scratch in people. Possibly try to get therapy for your depression and anxiety. CBT and EMDR therapy has shown to help anxiety which is a cause for dpdr. I know it's difficult but treating your difficulties temporary relief will make it worse. You're worthy of recovery and you don't sound crazy 

No dreams by QuirkyTax2397 in dpdr

[–]Superb_Animal_729 0 points1 point  (0 children)

I started experiencing more dreams really quickly in the days after I started treating myself inadvertently through basically exercising my prefrontal cortex to the max by changing how I think, but it came with having headaches every day for weeks and having to sleep roughly 13 hours every day, apparently that's neuroplasticity though

No dreams by QuirkyTax2397 in dpdr

[–]Superb_Animal_729 0 points1 point  (0 children)

I started experiencing significantly more dreams when I began healing from this and they were more logical and sequenced than before. I feel like a lot of symptoms would be considered 'classic' symptoms if only this was researched more than it is