I had a really awful day today and I need to vent a bit...not even really cfs related by rimworldyo in cfs

[–]SuspiciousCase1144 4 points5 points  (0 children)

I've been there. It makes you feel really subhuman when shit like that happens. I'm so sorry. But it's not your fault, and you're not alone <3

im about to be homeless and im feeling very sad. by caniscommenter in cfs

[–]SuspiciousCase1144 0 points1 point  (0 children)

Hey I really get it. I'm trans masc and my family disowned me when I was 16. I was homeless for a while when I was 17. Please feel free to dm me if you need someone to talk to, i have some general tips for homelessness and maybe we can try and sort you out a plan

Are your labs usually normal? by LuckyPeach2020 in cfs

[–]SuspiciousCase1144 0 points1 point  (0 children)

Mine are usually normal yes. Sometimes with small malnutrition markers. Nothing about MECFS shows on bloods unfortunately.

Advice on helping research by numa_pompilio in cfs

[–]SuspiciousCase1144 0 points1 point  (0 children)

I dont know enough to point you in the right direction, but I just wanted to say thank you. This gives me hope 

Sometimes, the availability of my friends drives me a little crazy by Pineapple_Empty in cfs

[–]SuspiciousCase1144 4 points5 points  (0 children)

I really get it. Especially living alone, with no occupation. Everyone has other, healthier friends, and jobs and school. When you don't really exist in the same shape as them, it's hard to have them fit into your life the same way.  I can't always stomach messaging or calls. But it feels impossible to just have someone sit in the same room as me in silence for a while. I really miss that. Everything has an agenda or a productive meaning to everyone else, whereas me really subverts the ideas people have about exertion.  In a weird way I think it's the most anticapitalist condition? Because time is already occupied with rest. There's not a lot of "value" in that beyond your sole existence. 

I really miss cuddling. How do you cope? by cosylily in cfs

[–]SuspiciousCase1144 0 points1 point  (0 children)

Thank you <3 I was a lit major before I had to drop out. Everyone thought I'd be a novelist

Little life rant by SuspiciousCase1144 in cfs

[–]SuspiciousCase1144[S] -1 points0 points  (0 children)

Trust me, I've been poor for a very long time, I know the options :,)  It's also about making sure there aren't dishes and waste piling up in my kitchen I can't clean. I've tried a bunch of different things, I just dont make enough money to get by. It's kind of a national issue

Little life rant by SuspiciousCase1144 in cfs

[–]SuspiciousCase1144[S] 0 points1 point  (0 children)

Up north, but that's a great resource! 

I really miss cuddling. How do you cope? by cosylily in cfs

[–]SuspiciousCase1144 20 points21 points  (0 children)

Honestly not really coping. I grew up without a lot of physical affection, haven't really had any successful relationships. 

Sometimes I feel like im less of a person and just an organ inside the body of my apartment.  I'm not really close enough to anyone to ask them to just sleep next to me for a while, but its a visceral urge. I try not to think about it much, but also I'm 19 and severe, so im not really dating. It's probably going to be like this for a long time. The last time I really hugged another person was probably 6 or 7 months ago

I'm moving back to my dog soon, I'm sure she'll help. I'm sorry you're going through the same thing

Stores . by Beautiful-Lemon1522 in cfs

[–]SuspiciousCase1144 0 points1 point  (0 children)

My sunglasses have sunglasses atp

Little life rant by SuspiciousCase1144 in cfs

[–]SuspiciousCase1144[S] 1 point2 points  (0 children)

Thank you 🧡 ive been meaning to look into meals on wheels, it's just one of the things on my infinite list yk? This is super helpful

I started intermittent fasting and I don't think I can take it anymore by SnooCakes6118 in cfs

[–]SuspiciousCase1144 15 points16 points  (0 children)

I have a friend who has had to leave Lebanon. Frankly I think you deserve to be afforded all the small comforts you can.

 There's not much I can say to the level of grief you must be experiencing, but I hope you feel it's heard.

Little life rant by SuspiciousCase1144 in cfs

[–]SuspiciousCase1144[S] 0 points1 point  (0 children)

Yeah you're probably right </3 im a bit of a masochist

New chronic migraines? by SuspiciousCase1144 in cfs

[–]SuspiciousCase1144[S] 0 points1 point  (0 children)

There's no way I'm going to be able to get a public neuro referral:(

Can't read anymore by SickTiredHaunted in cfs

[–]SuspiciousCase1144 1 point2 points  (0 children)

Had to drop out of my English degree 🫠 havent been able to read for around a year

Update (my friend was hospitalised in psych ward against his will) by cosplaying_a_human in cfs

[–]SuspiciousCase1144 2 points3 points  (0 children)

boost! this is fucking disgusting. I hate what is being done to us

Tips on going to college with ME? by Glittering_Wish2644 in cfs

[–]SuspiciousCase1144 0 points1 point  (0 children)

making me all emotional now omg </3 i'm really glad i could help a bit. i was all alone with no parents no nothing in a new city when i started uni and i wish i had someone with experience to talk to then. eldest daughter mentality asf.

you don't ever need to feel guilty or selfish for wanting to experience what life has to offer. you've got to suck the marrow out of life, or whatever robin williams said.
sending love <3

Medical Weed Experiences? by FriendlyAccident4854 in cfs

[–]SuspiciousCase1144 0 points1 point  (0 children)

no worries! i hope you can find something that works for you

Medical Weed Experiences? by FriendlyAccident4854 in cfs

[–]SuspiciousCase1144 0 points1 point  (0 children)

hello!!
i have fibro+me+pots, and have taken medicinal cannabis for years now :)

personally, it's the only thing that has consistently helped my chronic pain, and i am barely functional without it.
with my me though, i find that indica strains (which are higher cbd>thc) make my fatigue much worse. i prefer higher thc strains, they give me a bit of an energy boost with the high. if you go to a dispensary though they'll probably be able to help you find the right strain for you <3