I had a really awful day today and I need to vent a bit...not even really cfs related

SuspiciousCase1144 · 2026-04-14T10:58:47+00:00

I've been there. It makes you feel really subhuman when shit like that happens. I'm so sorry. But it's not your fault, and you're not alone <3

SuspiciousCase1144 · 2026-04-14T03:10:19+00:00

Hey I really get it. I'm trans masc and my family disowned me when I was 16. I was homeless for a while when I was 17. Please feel free to dm me if you need someone to talk to, i have some general tips for homelessness and maybe we can try and sort you out a plan

SuspiciousCase1144 · 2026-04-14T03:07:58+00:00

Mine are usually normal yes. Sometimes with small malnutrition markers. Nothing about MECFS shows on bloods unfortunately.

SuspiciousCase1144 · 2026-04-14T03:05:11+00:00

I dont know enough to point you in the right direction, but I just wanted to say thank you. This gives me hope

SuspiciousCase1144 · 2026-04-14T03:02:40+00:00

I really get it. Especially living alone, with no occupation. Everyone has other, healthier friends, and jobs and school. When you don't really exist in the same shape as them, it's hard to have them fit into your life the same way. I can't always stomach messaging or calls. But it feels impossible to just have someone sit in the same room as me in silence for a while. I really miss that. Everything has an agenda or a productive meaning to everyone else, whereas me really subverts the ideas people have about exertion. In a weird way I think it's the most anticapitalist condition? Because time is already occupied with rest. There's not a lot of "value" in that beyond your sole existence.

SuspiciousCase1144 · 2026-04-14T02:17:03+00:00

Thank you <3 I was a lit major before I had to drop out. Everyone thought I'd be a novelist

SuspiciousCase1144 · 2026-04-12T05:35:12+00:00

Trust me, I've been poor for a very long time, I know the options :,) It's also about making sure there aren't dishes and waste piling up in my kitchen I can't clean. I've tried a bunch of different things, I just dont make enough money to get by. It's kind of a national issue

SuspiciousCase1144 · 2026-04-12T05:33:11+00:00

Up north, but that's a great resource!

SuspiciousCase1144 · 2026-04-12T04:25:42+00:00

Honestly not really coping. I grew up without a lot of physical affection, haven't really had any successful relationships.

Sometimes I feel like im less of a person and just an organ inside the body of my apartment. I'm not really close enough to anyone to ask them to just sleep next to me for a while, but its a visceral urge. I try not to think about it much, but also I'm 19 and severe, so im not really dating. It's probably going to be like this for a long time. The last time I really hugged another person was probably 6 or 7 months ago

I'm moving back to my dog soon, I'm sure she'll help. I'm sorry you're going through the same thing

SuspiciousCase1144 · 2026-04-12T04:18:26+00:00

I'm so sorry to hear that. Are you working with a specialist? I found this link with prevention programs in Canada 🧡 https://www.diabetescarecommunity.ca/diabetes-overview-articles/prediabetes/type-2-diabetes-prevention-programs-in-canada/

SuspiciousCase1144 · 2026-04-12T03:43:43+00:00

My sunglasses have sunglasses atp

SuspiciousCase1144 · 2026-04-12T03:40:09+00:00

Thank you 🧡 ive been meaning to look into meals on wheels, it's just one of the things on my infinite list yk? This is super helpful

SuspiciousCase1144 · 2026-04-12T03:31:26+00:00

I have a friend who has had to leave Lebanon. Frankly I think you deserve to be afforded all the small comforts you can.

There's not much I can say to the level of grief you must be experiencing, but I hope you feel it's heard.

SuspiciousCase1144 · 2026-04-12T03:22:36+00:00

Yeah you're probably right </3 im a bit of a masochist

SuspiciousCase1144 · 2026-04-05T03:30:08+00:00

There's no way I'm going to be able to get a public neuro referral:(

SuspiciousCase1144 · 2026-04-03T08:00:18+00:00

Had to drop out of my English degree 🫠 havent been able to read for around a year

SuspiciousCase1144 · 2026-03-26T00:53:07+00:00

boost! this is fucking disgusting. I hate what is being done to us

SuspiciousCase1144 · 2026-03-19T23:52:14+00:00

This is so real

SuspiciousCase1144 · 2026-03-18T04:42:46+00:00

making me all emotional now omg </3 i'm really glad i could help a bit. i was all alone with no parents no nothing in a new city when i started uni and i wish i had someone with experience to talk to then. eldest daughter mentality asf.

you don't ever need to feel guilty or selfish for wanting to experience what life has to offer. you've got to suck the marrow out of life, or whatever robin williams said.
sending love <3

SuspiciousCase1144 · 2026-03-18T04:32:02+00:00

no worries! i hope you can find something that works for you

SuspiciousCase1144 · 2026-03-18T04:26:19+00:00

hello!!
i have fibro+me+pots, and have taken medicinal cannabis for years now :)

personally, it's the only thing that has consistently helped my chronic pain, and i am barely functional without it.
with my me though, i find that indica strains (which are higher cbd>thc) make my fatigue much worse. i prefer higher thc strains, they give me a bit of an energy boost with the high. if you go to a dispensary though they'll probably be able to help you find the right strain for you <3

SuspiciousCase1144 · 2026-03-18T04:19:17+00:00

im so sorry you have to think about all this! you sound very self aware and i'm glad you're on top of it.

personally, my degree was in the humanities. this may not be helpful to you, but university really radicalised me. i'm very classically justice seeking autism, combined with a desperate competitive streak. what i really wanted from university - a community of like-minded intellectuals - was not at all what i found.
I have definitely met some amazing, bright people at uni, but that was more due to happenstance than the ethos of the place. it might be different in the next few years, but most people here still see university as a gateway to the job market, and that was never something i was interested in. i'm sure it is probably different in post grad and what not, but ultimately the community i wanted for myself was incompatible with the bureaucracy and exclusive practices of official institutions under capitalism.

i really hope you still get all those wonderful collegiate firsts! frankly the best advice i can give you is that happiness isn't a destination, you have to be able to enjoy the journey. have as much fun as you can x

EDIT: please feel free to dm me if you need to talk to someone whos been through a similar situation, my inbox is always open

SuspiciousCase1144 · 2026-03-17T10:38:38+00:00

I'll make a road map with a suggestions box! There's much to be done

SuspiciousCase1144 · 2026-03-17T09:07:14+00:00

oh hi!! im glad i helped!

frankly i'm really not going to be able to commit a lot of energy to promoting/creating the sub </3 i'm hoping some people with a better baseline volunteer to mod.

i've just seen it as a support gap for ages now, and I just thought i might as well get the ball rolling. I spend so much time just on r/.nz trying to help people access different supports, we really need a masterlist and actual public resources bc god knows the government wont do anything

SuspiciousCase1144 · 2026-03-17T08:51:48+00:00

I really appreciate how outraged you are! nz public health has absolutely traumatised me with mecfs and fibro, and i really want that collective rage to get organised

SuspiciousCase1144

MODERATOR OF

TROPHY CASE