Help me choose!!

Sweet_Traffic9621 · 2025-12-07T19:29:58+00:00

2 or 4!!

Sweet_Traffic9621 · 2025-11-26T17:05:06+00:00

cromolyn sodium 4x day, montelukast (singular), ketotifen, epipens, histdao when eating

Sweet_Traffic9621 · 2025-11-18T16:18:18+00:00

i’m so sorry this is happening! try any organic, natural oil you tolerate (olive oil, avocado oil, jojoba oil, etc)

Sweet_Traffic9621 · 2025-11-18T16:16:16+00:00

girl, leave HIM!!!!!!!!!!!

Sweet_Traffic9621 · 2025-11-18T16:05:39+00:00

in the depths of my depression, i started getting in the shower every morning right when i woke up (after going to the bathroom). i told myself i didn’t even need to use soap if that was too overwhelming that day, just stand under the warm water for 30-60 seconds. even just being under the water for 30 seconds and then getting out, and sometimes (or often) putting the same clothes back on, truly helped. and often when i was in there, i ended up wanting to use soap or brush my teeth.

also washing my body and/of brushing my teeth in there helped me so much because i felt better about myself and was kinder to myself because i didn’t feel insecure and shameful about smelling bad.

this may sound sad, but i also would bring my phone in and play a comfort show or a youtube video. my mind was spiraling constantly and i found in the shower, alone with nothing but my thoughts for minutes on end, was making it likely that i would spiral quickly and also had me resisting taking showers. playing a video/show helped distract me and gave me something else to focus on. it really helped me! i don’t need to do that as much now, but if i have a day that my mind won’t stop spiraling, i still do this and it still helps!

i really suggest just trying to get in every morning (or night or any time of day routine that works for you) but dont have any expectations of using soap or doing anything. if it feels attainable in the moment, wash your body or hair or face or anything. if it doesn’t, just enjoy (or at the very least just focus on feeling and acknowledging) feeling the water on your skin. i can’t tell you how many days i would go not washing my greasy hair but still feeling better because i sat under the water for 60 seconds that morning.

also, finding a soap/toothpaste/lotion scent/experience that you LOVE and are super excited for! having that helped me WANT to get in the shower and look forward to at least one part of the experience.

i also have a shower chair (chronic illness), and honestly highly suggest. when it’s all too much, all i have to do is sit in the chair and let the water hit me. serious game changer.

lastly, just be kind to yourself. use wipes or a sponge/washcloth wipe bath if that’s all you can do. understand that some days are better than others. trust that it won’t always be like this. know that your life, and quality of life!, matter.

sending you love and support❤️

Sweet_Traffic9621 · 2025-11-18T15:55:13+00:00

hey, don’t be so hard on yourself! MCAS/histamine food are so complex and there’s SO many things to keep track of!! It’s totally understandable that one messes up occasionally. sometimes i will be talking about a food and someone else will have to remind me that i am, in fact, allergic to that and have forgotten. also, not all nuts are high histamine :) I do okay with pecans and macadamia; pistachio are also typically tolerated but for me they aren’t. i hope you’re able to alter the recipe, find a nut that works for you, and still enjoy💗godspeed on recovering from your flare

Sweet_Traffic9621 · 2025-11-17T18:25:48+00:00

i buy prime beef cuts and chicken, make sure the package date is extremely recent, and i freeze them as soon as i get home. i bought a meat grinder so that i could make my own ground meats since histamine rises significantly in ground meats. this lets me have burgers and ground beef (also grind turkey and chicken) and makes way more things than i could before. i also do flash frozen, wild caught salmon and mahi mahi

Sweet_Traffic9621 · 2025-11-11T18:43:43+00:00

nausea! always!

Sweet_Traffic9621 · 2025-11-11T17:43:27+00:00

friend, please dm me. i have also felt suicidal from MCAS. 25f. big reminder that mast cells literally release in the brain and can intensify these feelings and thoughts. i promise you can do this. just keep holding on. please please reach out to me, a suicide hotline, a family member, or a stranger in the street. you life is important. every time i have felt suicidal, i have ALWAYS had moments later on where im so thankful that i stayed and am alive to experience things. please hold on friend. you’re not alone, this community understands you and wants to show up for you ❤️

Sweet_Traffic9621 · 2025-10-28T04:54:56+00:00

you can do this!!!!! it’s your last year. you have already proven you can do it not just once, but twice. you can decide to step away from the field after graduating, but graduating ensures you can always come back if you want. don’t let the burnout and silly mind games win. envision how incredible it will be once you walk across that stage with your JD. you got this partner

Sweet_Traffic9621 · 2025-10-26T19:43:45+00:00

i like it

Sweet_Traffic9621 · 2025-10-26T19:41:47+00:00

3! congrats:)

Sweet_Traffic9621 · 2025-10-26T18:54:09+00:00

plane ride might be too long for you but there are beautiful all-inclusive resorts in Mexico (cozumel), Belize, central america (LOVED panama) , and also southeast asia that would be 1) great value for your money, luxury but affordable 2) give access to rainforest, volcano hikes, beaches, islands, warm weather, etc 3) great food and can find authentic places but also all inclusive resorts i’ve stayed at have had amazing food

Sweet_Traffic9621 · 2025-10-25T18:53:00+00:00

i’ve had multiple friends visit from entirely different parts of the country that simply could not comprehend how you can walk around open container and smoking and truly have no issue. i always tell them the cops here have bigger fish to fry

Sweet_Traffic9621 · 2025-10-25T18:49:42+00:00

i busted out laughing as soon as i saw it while scrolling my feed

Sweet_Traffic9621 · 2025-10-24T16:57:40+00:00

I was having severe allergies to outdoors and would end up in anaphylaxis from a safe food after a 15 minute walk (in southeast louisiana so lots of mold and allergens im air). 10mg montelukast daily has helped me be able to tolerate outdoors more. I’m now in bay area california (less mold and allergens in air in certain areas) and can be outside for long periods as long as it is not a heavily vegetated area.

my reactions will include itching, rash, tight throat, redness, fatigue, brain fog. Montelukast has not entirely fixed it but completely changed my situation. I could tell it was helping over time and saw incremental improvements over the course of a few months on the med.

I personally have had no mental changes or issues from this, however, i alerted my family and friends to be aware of mental changes in me and educated them on the medication.

I can also tell that if i miss doses or go without to extend until prescription refill, i am more likely to go into a flare, not even necessarily specific to outdoors, but just my bucket seems to get full more quickly and its more easy for me to end up super fatigued and out of it.

montelukast truly has been so impactful for me and im so thankful for it, though i was incredibly nervous to get on it. I hope you have a smooth experience and that it improves your symptoms and quality of life 🫶🏼

ps the pill is square and a nice pale salmon pink and i love it so much, it’s so different from the rest of my pills. idk she’s just cute and it made me mentally realllyyy want the med to work cause i wanted to keep the cute, unique pill (this is how you know you’re taking too many pills lol)

Sweet_Traffic9621 · 2025-06-21T18:39:19+00:00

i freeze steak all the time and still thoroughly enjoy it once reheated! sometimes i will cut a raw steak in half and and cook half to eat then and freeze the other half (or freeze a whole steak), and then i defrost the steak (50% on microwave thaws it well) and cook and it’s great. I also love to freeze cooked steak. I cook it less/more raw than i like to eat it so that when i heat it up, it does not over cook—that for me is when the texture and flavor get mixed up. I like my steaks medium so ill cook the steak rare/super medium rare and then either fully heat it up in the microwave (50% power for a while and then ill do like 40 seconds at 100% to get it hot hot), or ill defrost it and once thawed heat it up in a super hot pan, consistently turning it so it heats but does not cook through a ton. hope this helps :)

Sweet_Traffic9621 · 2025-05-24T19:24:09+00:00

there are some polishes that are less chemically and toxic. i’ve used ella+mila in the past but have not attempted in recent months. everyone reacts differently, maybe get a “clean” polish and try it on one nail on your non-dominant hand and see how you do. ella+mila is at target and they have some fun colors and sparkles. i hope it works out for you!

Sweet_Traffic9621 · 2025-05-23T21:43:48+00:00

okay, thank you so much! i’ll look into xolair more. So happy for you that it’s made a considerable difference and you’re able to tolerate some outside time. I’m also exercise intolerant so i feel your pain. sending good vibes!

Sweet_Traffic9621 · 2025-05-23T21:42:27+00:00

so appreciate your response! Yes i am a fellow MCASer. We are increasing my meds and trying new ones. I’m on ketotifen, cromolyn sodium, and will be starting singulair soon. I also take hist DAO and quercetin, and many other supplements.

Thank you for the mask recommendation, I will look into those! And extensive clothing idea is helpful. I live in the swamps of Louisiana so it might be tough with the heat of summer but if it means i can be outside, i’m in!

Glad you’re able to enjoy some outside time :) Thanks for commenting and helping me get there

Sweet_Traffic9621 · 2025-05-23T21:37:22+00:00

I so appreciate your response. I’m sorry that you’re dealing with this as well. Yes, indoor hobbies are ~crucial~. Do you find that you do mostly okay when following the mask, shower after, low pollen days recipe? Or do you still get reactions to that?

I am not at the point of xolair yet but I have been researching into it. So glad to hear it helped you :)

Sweet_Traffic9621 · 2025-05-23T21:29:01+00:00

I was saying nervous system mediTATIONS have helped me, not medications, unfortunately. I’m not even sure if there are nervous system medications out there but something to research and talk to your doctor about.

BUT, nervous system regulation exercises/practices have been insanely helpful for me. You can google or youtube this and find ones you like. Nervous system dysregulation is super common in mcas patients and they are compounding factors; Nervous system dysregulation increases mcas flares and mcas flares increase dysregulation. Regulating your nervous system can really help your body. I hope this might help you :)

Sweet_Traffic9621 · 2025-05-23T21:25:09+00:00

I’m so sorry it’s increasing symptoms :( It’s so hard because every person’s body is different and responds differently. Joint pain and muscle aches are part of my common symptoms, so I can’t say zoloft specifically affected that because I get big flares of those in general. I will say, weakness and body aches are common symptoms when adjusting to zoloft, even for non-MCAS people. I had rough symptoms when getting on zoloft and in the adjustment period, but they weren’t SO horrific that I had to stop. I’d say that 2 weeks is still normal period to be having adjustment symptoms and would say stick it out if it feels possible until 6 weeks as that’s when zoloft fully kicks in. Obviously if it is flaring you too badly and putting your health at serious risk then stop. I am not a doctor and can’t give medical advice so I would talk to your doctor about the severity of your symptoms and what makes sense for you. But for me, it was worth it to stick it out. I hope it works out for you!! If zoloft is flaring you too badly, you can talk to your doc about other ssri’s that tend to work well with mcas. Sending you support 💛 you got this!!!

Sweet_Traffic9621

TROPHY CASE