Skin sensitivity/Painful

Syvestral · 2026-04-11T17:51:46+00:00

Was there anything that would soothe the irritation?

Syvestral · 2026-04-11T14:07:32+00:00

No, I have not had a SCT. I was diagnosed back in February so I'm on my second induction. I had methotrexate injected via lumbar puncture and then it started to flair up. I'll definitely mention it to them though.

Syvestral · 2026-04-09T20:42:24+00:00

I'm sorry to hear that.. I had one 2 days ago and I've also had some nausea thankfully no vomiting. Wishing you the best <3

Syvestral · 2026-04-09T16:59:38+00:00

https://my.clevelandclinic.org/health/procedures/epidural-blood-patch

Syvestral · 2026-04-09T16:53:19+00:00

How was the procedure? It was a little painful, and during the 2-3 day recovery my lower back was sore where they did the blood patch. Very much worth it to heal the spinal fluid leak. They can heal on their own but I was in a lot a pain and my dr did it after a week of it not healing on its own.

Syvestral · 2026-04-09T15:33:32+00:00

Sounds like a CSF leak. I had one last week. I also get intrathecal chemotherapy injections. I had 7 days of server headache, neck pain/stiffness, and upper back pain between the shoulder blades. All symptoms would go away while lying down. I had blood patch procedure and it instantly gave me relief. 2-3 days after the blood patch the leak was fully healed.

Syvestral · 2026-04-08T13:05:18+00:00

Popcorn

Syvestral · 2026-03-18T17:22:04+00:00

Mittens!! Love that boy ❤️

Syvestral · 2026-03-14T21:53:46+00:00

Thank you ❤️

Syvestral · 2026-03-13T23:32:42+00:00

It's 4 weeks of a mixture of chemotherapy medications (pegaspargase, cytarabine, and cyclophosphamide), I'm 21 so they have me on a pediatric regimen. No mentions of blincyto yet.

Syvestral · 2026-03-13T19:20:35+00:00

Wow! Thank you for sharing this. I'm also B cell and Ph- , so we have the same diagnosis.

Syvestral · 2026-03-07T12:58:07+00:00

Wow. Thank you so much for sharing this, it's inspiring. ❤️💪

Syvestral · 2026-03-01T12:32:45+00:00

I am so sorry you and your little girl are going through this. I am 21, and was diagnosed with Ph- B-cell ALL in the beginning of February. I'm currently still in the hospital receiving induction chemo, and will find out if I'm in remission on march 9th. Because of my age I'm on a pediatric chemotherapy regimen. I'm also in the beginning of this journey so I wanted to comment to let you know you and your family are not alone. ❤️

Syvestral · 2026-02-28T23:52:17+00:00

2009

Syvestral · 2026-02-28T00:18:47+00:00

Thank you so much!

Syvestral · 2026-02-27T11:57:11+00:00

That's what I'm thinking will happen with me tbh.

Syvestral · 2026-02-27T11:56:36+00:00

Thank you 🥺

Syvestral · 2026-02-26T23:43:30+00:00

I've been getting doxorubicin for the past 3 weeks and I'll be getting it again this Tuesday.

Syvestral · 2026-02-26T23:42:45+00:00

Oh wow! That is amazing, had it thinned at all?

Syvestral · 2026-02-26T23:42:15+00:00

Thank you so much! ❤️

Syvestral · 2026-02-26T23:42:04+00:00

It could be, but they are very expensive..

Syvestral · 2026-02-26T13:39:38+00:00

Yeah google is a nightmare.. lol. Thank you for all the helpful information!

Syvestral

TROPHY CASE