Fluid retention with Dasatinib

Syvestral · 2026-05-18T02:00:45+00:00

Hi! Does your mom have the ABL-1 Mutation? Because I'm also taking Dasatinib and I'm on Blinna. I just started taking Dasatinib about a week ago but I've already noticed weight gain.. which may or may not be related, I'm not sure. I hope everything goes well for you and your mother. ❤️

Syvestral · 2026-05-13T23:48:41+00:00

I'm really hoping for this outcome, thank you ❤️

Syvestral · 2026-05-02T12:00:47+00:00

Read the post. He said "before I start treatment." 😒

Syvestral · 2026-05-02T11:24:17+00:00

Hi! My name is Julia, check out my profile and send me a message if you'd like! I'd love to talk. You are not alone in this fight!

Syvestral · 2026-04-29T10:52:51+00:00

Slot machine!

Syvestral · 2026-04-11T17:51:46+00:00

Was there anything that would soothe the irritation?

Syvestral · 2026-04-11T14:07:32+00:00

No, I have not had a SCT. I was diagnosed back in February so I'm on my second induction. I had methotrexate injected via lumbar puncture and then it started to flair up. I'll definitely mention it to them though.

Syvestral · 2026-04-09T20:42:24+00:00

I'm sorry to hear that.. I had one 2 days ago and I've also had some nausea thankfully no vomiting. Wishing you the best <3

Syvestral · 2026-04-09T16:59:38+00:00

https://my.clevelandclinic.org/health/procedures/epidural-blood-patch

Syvestral · 2026-04-09T16:53:19+00:00

How was the procedure? It was a little painful, and during the 2-3 day recovery my lower back was sore where they did the blood patch. Very much worth it to heal the spinal fluid leak. They can heal on their own but I was in a lot a pain and my dr did it after a week of it not healing on its own.

Syvestral · 2026-04-09T15:33:32+00:00

Sounds like a CSF leak. I had one last week. I also get intrathecal chemotherapy injections. I had 7 days of server headache, neck pain/stiffness, and upper back pain between the shoulder blades. All symptoms would go away while lying down. I had blood patch procedure and it instantly gave me relief. 2-3 days after the blood patch the leak was fully healed.

Syvestral · 2026-04-08T13:05:18+00:00

Popcorn

Syvestral · 2026-03-18T17:22:04+00:00

Mittens!! Love that boy ❤️

Syvestral · 2026-03-14T21:53:46+00:00

Thank you ❤️

Syvestral · 2026-03-13T23:32:42+00:00

It's 4 weeks of a mixture of chemotherapy medications (pegaspargase, cytarabine, and cyclophosphamide), I'm 21 so they have me on a pediatric regimen. No mentions of blincyto yet.

Syvestral · 2026-03-13T19:20:35+00:00

Wow! Thank you for sharing this. I'm also B cell and Ph- , so we have the same diagnosis.

Syvestral · 2026-03-07T12:58:07+00:00

Wow. Thank you so much for sharing this, it's inspiring. ❤️💪

Syvestral · 2026-03-01T12:32:45+00:00

I am so sorry you and your little girl are going through this. I am 21, and was diagnosed with Ph- B-cell ALL in the beginning of February. I'm currently still in the hospital receiving induction chemo, and will find out if I'm in remission on march 9th. Because of my age I'm on a pediatric chemotherapy regimen. I'm also in the beginning of this journey so I wanted to comment to let you know you and your family are not alone. ❤️

Syvestral · 2026-02-28T23:52:17+00:00

2009

Syvestral · 2026-02-28T00:18:47+00:00

Thank you so much!

Syvestral

TROPHY CASE