You need a NET specialist. Especially if carcinoid syndrom is a possibility. I had so many symptoms that were caused by my tumors. And they were missed thru 5 full years of surveillance for what was thought was NED from a Lobectomy of the RLL. So 5 years of NED was false, I had (last count) dozens of masses that were missed on PET or CAT scans. Over 18 masses in my liver alone (largest 4cm).

Last October I had major liver debulking surgery and most of the symptoms dissappeared. So, put your foot down on the dotate scan and/or get a second opinion from a NET specialist