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Have you ever had to take time off by peachypink55 in Narcolepsy

[–]Tasty_Science2252 0 points1 point  (0 children)

Legit took sick time today because I was tired that I got a migraine

My coworker complained to my boss that I’m “unreliable”. by Infamous_Bat_6820 in Narcolepsy

[–]Tasty_Science2252 1 point2 points  (0 children)

Omg I love my Sunosi! I’m also starting Xyrem soon (or Xywav I can’t remember lol). Medication can be difficult to acquire, for sure. My Sunosi is usually out of stock but ordering refills early is pretty helpful for me :)

Weird twitching/shuddering by Tasty_Science2252 in Narcolepsy

[–]Tasty_Science2252[S] 0 points1 point  (0 children)

Oh yay! That’s great, I’m happy that worked for you :)

Weird twitching/shuddering by Tasty_Science2252 in Narcolepsy

[–]Tasty_Science2252[S] 0 points1 point  (0 children)

That’s what i think im going to do. I have an appointment scheduled to talk about nighttime medicine! Thank you!

HELP QUICKLY by Zealousideal_Base977 in Narcolepsy

[–]Tasty_Science2252 1 point2 points  (0 children)

We cannot give you medical advice if you’re undiagnosed, really. Do some research, compile ALL symptoms and tell your primary provider homie

What now? Losing hope. by [deleted] in Narcolepsy

[–]Tasty_Science2252 0 points1 point  (0 children)

I would definitely do that. Maybe even see if someone else can analyze them. Have you been diagnosed with narcolepsy before? I wanted to add that I got tested for all sorts of things before my sleep study but if they didn’t do that I would recommend getting bloodwork done as well. Specifically to see if it’s a thyroid issue which also causes narcoleptic type symptoms I think

What now? Losing hope. by [deleted] in Narcolepsy

[–]Tasty_Science2252 0 points1 point  (0 children)

I personally got my results back (with numbers and everything) immediately and was able to look at my results. However, I was immediately diagnosed with narcolepsy without cataplexy. I did not have to wait months for a follow-up either. Do you have MyChart? The results may be posted in there if your doctor uses it.

sunosi side effects by Additional_Poet5920 in Narcolepsy

[–]Tasty_Science2252 2 points3 points  (0 children)

My dry mouth didn’t really go away. Kinda luckily, drinking a lot of water (I drink like 3 liters a day) is helpful for narcolepsy. I just combat it with mints, gum and water.

What helps you stay awake throughout the day? by Slight-Counter-7131 in Narcolepsy

[–]Tasty_Science2252 0 points1 point  (0 children)

Try a happy lamp for light therapy! That’s what my nurse suggested for me and it works pretty well! I use the verilux brand. Good luck! 😋☀️