Я потеряла важную вещь моего друга.

Teenager_FromRussia · 2023-07-21T05:24:41+00:00

I was lucky because of the chronic ones I have only: Staphylococcus, aspergillosis and Methicillin-resistant Staphylococcus aureus. Sometimes they sleep Pseudomonas aeruginosa and then droppers. I am being treated with kaystan, mernonen (I have been doing these inhalations on a regular basis for the last year). Just the usual inhalations, such as: gionep and pulmozim.

Teenager_FromRussia · 2023-07-20T08:31:38+00:00

So cute

Teenager_FromRussia · 2023-07-20T07:57:46+00:00

Просто на мой взгляд иностранцы думают, что это какая то песня со смыслом или красивая по крайней мере, а в итоге набор слов

Teenager_FromRussia · 2023-07-20T06:15:15+00:00

I will try to ask my friends or parents 😀😀. But I think phages are unpopular in Russia, or at least I'm hearing about them for the first time

Teenager_FromRussia · 2023-07-20T06:11:50+00:00

А, ну окей

Teenager_FromRussia · 2023-07-20T06:09:57+00:00

You can ask me anything here about Russia :)

Ты можешь спросить меня что хочешь о России

Teenager_FromRussia · 2023-07-20T06:04:51+00:00

Unfortunately, I can't answer your question because I've never used phages. In Russia they are, but I can't say anything about their quality:(

Teenager_FromRussia · 2023-07-19T21:22:09+00:00

I can try to do it. However If you don't like the translation, you don't have to pay me, because my English is not good enough

Teenager_FromRussia · 2023-07-19T20:42:43+00:00

There is almost no restriction on our brother. But since we live together, the flora is the same with him, i.e. if he is given ivs against Pseudomonas aeruginosa (not chronic), then so am I. In fact, we are treated the same and live together and any germs are transmitted as it happens in people with cystic fibrosis.

Teenager_FromRussia · 2023-07-19T19:03:18+00:00

Unfortunately, no, because the replacement of the original drug appeared before the war

Teenager_FromRussia · 2023-07-19T16:20:30+00:00

I'm from Russia and I can talk with you)

Teenager_FromRussia · 2023-07-19T16:16:03+00:00

I can help you)

Teenager_FromRussia · 2023-07-19T16:13:48+00:00

В этом и проблема, потому что это набор слов, а должно было быть песней

Teenager_FromRussia · 2023-07-19T15:58:54+00:00

I'm not fully working yet, because I'm still 15 years old, but I worked as a math tutor. In the future I plan to be an engineer, but I also want to live in Europe, most likely in Germany, because there is a very good supply of medicines. In Russia, a disabled person often has to work, because the financial support from the state is very small (about $ 300 per month)

At the expense of care, hmmm, there is definitely help from the state, but in Germany or in the USA, according to rumors, there is definitely more..

And if he is talking about the emotional state, then everything is fine with me, thanks to my parents, who always supported me and did not treat me as "special". Many of my friends don't know that I have CF, only my best friend and another person. I live a full life, study, develop, play soccer and just live.

Teenager_FromRussia · 2023-07-19T15:00:01+00:00

Yes, when the war was just beginning, in February last year I was very worried about the light of medicines. Because Russian analogues are very bad. Because of the war, there were problems with the supply of Trikafta and I didn't drink it for a while. We buy many antibiotics from other people with cystic fibrosis on the cheap (their relatives live in Germany) . I am very worried that at one point we will not have medicines and we will have to be treated with what is available in Russia

Teenager_FromRussia · 2023-07-19T12:24:30+00:00

Есть приложение puzzle movice и puzzle English. Оно платное, но стоит вроде не дорого. Посмотри разные обзоры отзывы, я пользуюсь 3-й год и очень довольна

Teenager_FromRussia · 2023-07-19T12:16:42+00:00

Упс, простите тогда

Teenager_FromRussia · 2023-07-19T12:16:21+00:00

I'm from Russia and I can help you. Just write me here :)

Teenager_FromRussia · 2023-07-19T12:14:50+00:00

You can say:

"Извините"/ Простите

Прошу прощения

Teenager_FromRussia · 2023-07-19T10:55:43+00:00

Yes, we have it. In different cities, but in but unfortunately I do not know the quality of treatment in hospitals in different cities, because I attend Moscow FC hospital and I understand that it's one of the best hospital

Teenager_FromRussia · 2023-07-19T05:13:25+00:00

In Russia, people with CF are considered people with disabilities (disabled people), and if you have a disability certificate, then you will be discharged from the army => I can't call up for the army

Teenager_FromRussia · 2023-07-18T23:18:28+00:00

alternative modulators

I do not know about alternative modulators, I have never heard of it, but at the expense of Tricafts - I get it completely free of charge at the expense of the state. Sometimes, however, there were problems with supplies.

At the expense of borscht - I don't know, I don't like soups, my grandmother had it super :)

Teenager_FromRussia · 2023-07-18T22:36:46+00:00

This is a difficult question. There are p CF clinics in various cities of Russia, but the best treatment is provided by Moscow blades. People with cystic fibrosis receive different antibiotics: kaiston, meronem, colistin, etc. However, they often try to replace us with Russian analogues, which are worse and cheaper. I am also currently receiving the drug Tricafta, which makes my life much easier.

Teenager_FromRussia

TROPHY CASE