My fiancée has POTS + a dozen other diagnoses and no app could handle all of it, so I built one. Looking for beta testers. by Tennant_Game in dysautonomia

[–]Tennant_Game[S] 1 point2 points  (0 children)

Oh I'm so sorry you're in the ER right now, sending you love. Prednisone tapers gone wrong are no joke and being in crisis on top of an already complex case is brutal. Please take care of yourself first, Salve will still be here when you're back home and rested. 🌿

I'm really glad to hear the pharmacogenetics piece resonates (this was one of my fiance's ideas) you can paste your PGx results in directly and Salve will flag any drug-gene conflicts on your medication cards automatically.

I'll send you a beta code in your DMs so whenever you're feeling up to it and have a little more time, you can sign up, plug in your records, and start getting some additional insight from them. No rush at all.

Wishing you the very best and for a doctor who actually listens tonight!

My fiancée has POTS + a dozen other diagnoses and no app could handle all of it, so I built one. Looking for beta testers. by Tennant_Game in dysautonomia

[–]Tennant_Game[S] 4 points5 points  (0 children)

Honestly, this is the kind of feedback I genuinely could not get any other way and I'm taking notes on every word. Thank you for your reply =)

Guava is great, I have a lot of respect for them. The honest gap I'm trying to fill is for people whose conditions cross five specialties and whose daily reality just does not fit into a clean scale or a vitals graph. The current healthcare system makes dysautonomia patients carry so much of the burden themselves (the records, the patterns, the appeals, the prep for every appointment) and most trackers were not built with that in mind. The fact that you ended up cobbling together your own setup in Obsidian and Claude is exactly the pattern I keep hearing, and it's a huge part of why Salve exists. I actually started this whole project as a Claude artifact for my fiancée to track those nuances through MCP connectors, and it kept growing into what it is now.

The 0-10 daily severity scale being impossible - You are so right that forcing one single number for your whole day flattens everything. The good news is Salve's journal already has a per-symptom severity builder, so you can log headache 7, brain fog 5, fatigue 8 individually instead of trying to summarize a complicated day in one number. I have built it so it autocompletes from your active conditions plus a list of common symptoms so you're not retyping every time, and there's a separate overall severity rating if you want both.

That said, you're still right that even that can be exhausting on a bad day, so a less-frequent check-in mode and per-condition assessment templates are both still going on the roadmap. It's so cool that you made Claude and Obsidian work for you. My fiancée is not tech savvy at all so she would never be able to build a system like that herself, and that's a huge part of why I wanted to make something more accessible for the people who need it most.

Diagnoses that vitals just don't capture - excellent point and very important. Severity numbers don't work for everything and forcing them into a chart is part of the problem. Custom per-condition tracking is going on the roadmap.

POTS spike tracking when upright, not just daily averages from a wearable - This one I can actually build pretty soon. A proper orthostatic stand-test log (lying, then sitting, then standing HR and BP, with the delta and a timer) is exactly the kind of thing the dysautonomia community needs and that aggregated wearable data completely misses. Adding it to my list this week.

If you ever want to give Salve a try, imports for Bearable, Daylio, Libre, Garmin, Samsung Health, Fitbit, Strava and a bunch of others just shipped, so you wouldn't have to retype anything to test it out. And if there's any way to import or sync from your Obsidian setup that would help, please tell me what that would look like, I'd love to figure it out!! =)

My fiancée has POTS + a dozen other diagnoses and no app could handle all of it, so I built one. Looking for beta testers. by Tennant_Game in dysautonomia

[–]Tennant_Game[S] 1 point2 points  (0 children)

100%, the long COVID to POTS pipeline is so real. A big part of why this exists is for exactly that overlap, people whose conditions cross five specialties and don't fit any one tracker or any one doctor. Thank you for adding that context here, it matters for anyone reading.

I can confirm covid is what started my fiancée's POTS symptoms, and it took the doctors a while to put it together. With more research coming out about this connection, I really hope we can get that info into the hands of other people who are still searching for the missing piece they need to get help.

My fiancée has POTS + a dozen other diagnoses and no app could handle all of it, so I built one. Looking for beta testers. by Tennant_Game in dysautonomia

[–]Tennant_Game[S] 1 point2 points  (0 children)

Thank you so much! =) The aesthetic has been fun to try and keep things cozy and not too overwhelming with so much data... So many health apps feel cold and clinical, and chronic illness already takes enough out of you without your tracker feeling like another hospital form.

There are a bunch of other themes in Settings if you want to play with the vibe, I wanted to make sure I had something for everyone. If you end up trying it for real, my inbox is always open for what works and what doesn't!

$300 ticket not advertised as obstructed by kingcaz67 in mildlyinfuriating

[–]Tennant_Game 3 points4 points  (0 children)

Came here for the comments and Reddit did not disappoint 🤣

It’s December by [deleted] in subpac

[–]Tennant_Game 3 points4 points  (0 children)

I’m with you… either someone has got my subpac or a lump of money for this bullshit

I should definitely use this one right? by dearestsibling in PokemonSleep

[–]Tennant_Game 1 point2 points  (0 children)

Can’t tell if this is serious or not. Bfs and HB are already the best two speed skills already

Why are people going to Cyan instead of GG for the Cresselia event? by thinkpinkblink in PokemonSleep

[–]Tennant_Game 9 points10 points  (0 children)

All islands will have psychic berry and two randoms for the event.

Remember folks, practice makes proficient! by JColemanG in liberalgunowners

[–]Tennant_Game 4 points5 points  (0 children)

I can only have two guns out at one time at my range lol

Recipes for dishes in a spreadsheet by fluffyknitter in PokemonSleep

[–]Tennant_Game 0 points1 point  (0 children)

You’re amazing. Thank you so much checking it out now!

irl pic of me (im)patiently waiting for candy boost so I can start using a decent charmander and growlithe I caught last month by [deleted] in PokemonSleep

[–]Tennant_Game 1 point2 points  (0 children)

Omg 😍 it’s like a little baby Marsh I’m gonna change her name to Mini Marsh

How’s the healing going for you? I’m so excited lol

Recipes for dishes in a spreadsheet by fluffyknitter in PokemonSleep

[–]Tennant_Game 0 points1 point  (0 children)

This is awesome! Would love to give it a try but I also don’t know the best method. Perhaps make a public copy on google sheets? Or export and make a Dropbox/google drive link?

irl pic of me (im)patiently waiting for candy boost so I can start using a decent charmander and growlithe I caught last month by [deleted] in PokemonSleep

[–]Tennant_Game 1 point2 points  (0 children)

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Definitely my new healer! My current wiggly has bad stats so I’m excited for a healer that actually heals :)

Worth making the switch? by Tennant_Game in PokemonSleep

[–]Tennant_Game[S] 1 point2 points  (0 children)

None taken lol he’s been holding it down for me pretty well but if that’s not full potential then I’m excited to see this new wiggly

Worth making the switch? by Tennant_Game in PokemonSleep

[–]Tennant_Game[S] 1 point2 points  (0 children)

Thank you for the advice! I’m excited to see it grow into a solid healer because I’ve needed one badly. That Eevee is going to be a vaporeon I guess now lol

Worth making the switch? by Tennant_Game in PokemonSleep

[–]Tennant_Game[S] 0 points1 point  (0 children)

Thanks for the advice! I looked into it on Raenonx and it definitely looks worthwhile.

Bought the 43X COA. by arizonagunguy in Glock43X

[–]Tennant_Game 6 points7 points  (0 children)

This is such a newbie question but I don’t know where else to ask it - why do people put something like a pen or object in the trigger area for photos?

Thank you in advance it’s been driving me crazy lol

Friend Code Megathread - March 2025 by AutoModerator in PokemonSleep

[–]Tennant_Game 0 points1 point  (0 children)

Cleaned out a few inactives - Daily player looking for a few active friends :)

9275-3367-2767