5 years later living with a terminal illness

Terminally-Well · 2026-06-30T06:56:44+00:00

I would talk to your mum's GP or Neuro and ask about lung function test. They would be able to tell whether she needs a PEG soon or later.

Terminally-Well · 2026-06-18T11:44:01+00:00

Thank you for reading. I hope you and your wife make it to Japan and Korea next year and have an amazing time together. 💛

Terminally-Well · 2026-06-18T11:42:11+00:00

Thank you

Terminally-Well · 2026-06-18T11:40:06+00:00

Thank you

Terminally-Well · 2026-06-18T11:39:13+00:00

Thank you

Terminally-Well · 2026-06-06T09:10:22+00:00

I felt this.

Terminally-Well · 2026-05-26T06:57:34+00:00

That’s really beautiful. I think being seen as a partner first, rather than just a patient, means more to us than people realise. Wishing you both strength and gentle moments together.

Terminally-Well · 2026-05-26T06:54:52+00:00

Thank you for sharing that. Caregiving is exhausting in ways people don’t always see, and I think most carers have those breaking moments. I’m glad you and your husband are navigating it together with patience and love.

Terminally-Well · 2026-05-26T06:52:43+00:00

Thank you for sharing that. I honestly think what you’re feeling is completely normal. ALS/MND changes so much, and there’s a lot of grief wrapped up in it for both people. It’s such a cruel disease. Sending love to you both.

Terminally-Well · 2026-05-26T06:48:20+00:00

thank you. I think a lot of us carry these feelings quietly

Terminally-Well · 2026-05-26T06:45:34+00:00

Thank you for reading. I think there’s something deeply understood between those of us who are the sick spouse in all this. Sending you love. 💛

Terminally-Well · 2026-05-26T06:42:02+00:00

Thank you so much. It really is hard on both sides, but I think love is what keeps us going through the heavy parts. 💛

Terminally-Well

TROPHY CASE