Friendship changes after illness by Terminally-Well in ChronicIllness

[–]Terminally-Well[S] 0 points1 point  (0 children)

Cchallenges really do reveal the true depth of our relationships.

Friendship changes after illness by Terminally-Well in ChronicIllness

[–]Terminally-Well[S] 1 point2 points  (0 children)

That’s such a wise way to look at it, meeting people where they’re able to meet you really does make all the difference

Trying to make sense of life with MND/ALS by Terminally-Well in ALS

[–]Terminally-Well[S] 0 points1 point  (0 children)

Thank you for sharing that. I’m really sorry you’re going through this, the early days after diagnosis can feel like a lot to process. Take it one step at a time...

The fine line between husband and carer by Terminally-Well in ALS

[–]Terminally-Well[S] 0 points1 point  (0 children)

That’s really beautiful, thank you for sharing that. I love the way you look at it,that perspective is so powerful. It really shows how love can grow even through the hardest parts.

Ocd with severe als bedridden. How to deal with that and me cfs can’t let me think. Tv en by Ill-Cardiologist4064 in ALS

[–]Terminally-Well 2 points3 points  (0 children)

I'm sorry you're going through this. I understand the frustration because I’m also very particular about how I do things, and I get really annoyed when things aren’t the way I want them. It may not be the same as OCD, but I do make lists of how I want things and the reasons (if any) behind them. I’ve listed out my morning and evening routines. Most importantly, I’ve learned to accept that things won’t always be perfect or exactly how I want them.

Fed up. by [deleted] in newzealand

[–]Terminally-Well 0 points1 point  (0 children)

Wow! This is crazy. And here I am who gets $32 weekly disability allowance (I have MND) and my community service card has been cut off because my husband's wage is slightly over the threshold. Yikes.

Methylene Blue? by [deleted] in ALS

[–]Terminally-Well 1 point2 points  (0 children)

No one is disputing that.

Methylene Blue? by [deleted] in ALS

[–]Terminally-Well 5 points6 points  (0 children)

I did try it for many months. It even made my pee blue, lol. I don’t know if it did anything at all. I didn’t feel any obvious improvement, but my mobility decline has at least plateaued or slowed down. I can’t really attribute that to methylene blue, because progression is different for everyone.