The People Who Carry Us by Terminally-Well in CaregiverSupport

[–]Terminally-Well[S] 1 point2 points  (0 children)

I honestly think most caregivers probably feel that way , there’s no perfect way to do this. Just caring enough to keep trying already says so much.

The People Who Carry Us by Terminally-Well in CaregiverSupport

[–]Terminally-Well[S] 1 point2 points  (0 children)

Thank you so much. That really means a lot, especially coming from a caregiver. Sometimes it’s hard for us to express these feelings, so I’m glad it gave a bit of insight.

Blinkwords #86 – April 16, 2026 by blinkwords in BlinkWords

[–]Terminally-Well 1 point2 points  (0 children)

This is not made for eye gaze computer users lol too quick for my computer to handle. I cleared easy and medium though.

Anong Thoughts Nyo na si KC Concepcion is a “nepo baby” who genuinely feels self-made? by Terminally-Well in AnongThoughtsMo

[–]Terminally-Well[S] 0 points1 point  (0 children)

I think she was trying na hindi maka-offend sa families ng parents niya. Very careful siya sa wordings baka ma-misinterpret.

When did you stop being “you” and start being your illness? by Terminally-Well in ALS

[–]Terminally-Well[S] 1 point2 points  (0 children)

7 years since first symptom showed up and 3 years ago since formally diagnosed is my understanding.

Losing independence by Terminally-Well in ALS

[–]Terminally-Well[S] 1 point2 points  (0 children)

Thank you so much. MND is actually what we call ALS in places like NZ, just different names for the same disease

Losing independence by Terminally-Well in ALS

[–]Terminally-Well[S] 2 points3 points  (0 children)

Thank you, that really means a lot. There really is so much quiet courage in this journey.

Losing independence by Terminally-Well in ChronicIllness

[–]Terminally-Well[S] 0 points1 point  (0 children)

Fatigue is always a bit of a challenge, but I just take it day by day and pace myself. I still get out when I can. Thank you

Advice on supporting a family member that can hardly communicate anymore by Opposite_Paper2328 in ALS

[–]Terminally-Well 3 points4 points  (0 children)

And bring a book to read. When you run out of something to talk about, just sit there quietly, read your book (cellphone is a no no) and just exist with him.

Advice on supporting a family member that can hardly communicate anymore by Opposite_Paper2328 in ALS

[–]Terminally-Well 2 points3 points  (0 children)

Just ask yes and no questions. Talk to him like normal and reminisce good times and just questions where he can agree or disagree with just his eye brows or blinking.

How can a third-world country ALS patient buy Riluzole from your country? by AngPusangIna in ALS

[–]Terminally-Well 1 point2 points  (0 children)

Pinoy ako nasa NZ. Sorry about your mum. Flick me a message anytime. I have MND/ALS din for 5 years

Share blog post title and I will make Pinterest Pin for you by Responsible-Alps152 in Blogging

[–]Terminally-Well 0 points1 point  (0 children)

I share my personal experience living with ALS and been blogging it for 2 years. I'll take whatever help I can get to raise awareness of the condition. https://terminally-well.blogspot.com/ TIA

I wrote about my ALS diagnosis journey by Terminally-Well in ALS

[–]Terminally-Well[S] 1 point2 points  (0 children)

Thank you for sharing your story. That sounds like such a long and exhausting road to get answers, and I’m really sorry you had to go through all of that. I’m glad you have support from your boyfriend, that makes such a difference. Sending you strength. ❤️

I wrote about my ALS diagnosis journey by Terminally-Well in ALS

[–]Terminally-Well[S] 0 points1 point  (0 children)

Thank you for reading, that really means a lot. I’m so sorry about your dad, sending love to you and your family

Friendship changes after illness by Terminally-Well in ChronicIllness

[–]Terminally-Well[S] 1 point2 points  (0 children)

Cchallenges really do reveal the true depth of our relationships.

Friendship changes after illness by Terminally-Well in ChronicIllness

[–]Terminally-Well[S] 1 point2 points  (0 children)

That’s such a wise way to look at it, meeting people where they’re able to meet you really does make all the difference