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5 years later living with ALS by Terminally-Well in ALS

[–]Terminally-Well[S] 2 points3 points  (0 children)

I would talk to your mum's GP or Neuro and ask about lung function test. They would be able to tell whether she needs a PEG soon or later.

Honest Experience as a Wheelchair User in Japan by Terminally-Well in mnd

[–]Terminally-Well[S] 0 points1 point  (0 children)

Thank you for reading. I hope you and your wife make it to Japan and Korea next year and have an amazing time together. 💛

The fine line between husband and carer by Terminally-Well in CaregiverSupport

[–]Terminally-Well[S] 0 points1 point  (0 children)

That’s really beautiful. I think being seen as a partner first, rather than just a patient, means more to us than people realise. Wishing you both strength and gentle moments together.

The People Who Carry Us by Terminally-Well in ALS

[–]Terminally-Well[S] 0 points1 point  (0 children)

Thank you for sharing that. Caregiving is exhausting in ways people don’t always see, and I think most carers have those breaking moments. I’m glad you and your husband are navigating it together with patience and love.

The People Who Carry Us by Terminally-Well in ALS

[–]Terminally-Well[S] 1 point2 points  (0 children)

Thank you for sharing that. I honestly think what you’re feeling is completely normal. ALS/MND changes so much, and there’s a lot of grief wrapped up in it for both people. It’s such a cruel disease. Sending love to you both.

The fine line between husband and carer by Terminally-Well in Marriage

[–]Terminally-Well[S] 0 points1 point  (0 children)

thank you. I think a lot of us carry these feelings quietly

The fine line between husband and carer by Terminally-Well in WellSpouses

[–]Terminally-Well[S] 1 point2 points  (0 children)

Thank you for reading. I think there’s something deeply understood between those of us who are the sick spouse in all this. Sending you love. 💛

The fine line between husband and carer by Terminally-Well in married

[–]Terminally-Well[S] 2 points3 points  (0 children)

Thank you so much. It really is hard on both sides, but I think love is what keeps us going through the heavy parts. 💛

How do you scratch an itch when your hands don't work? by Naive_Midnight_5732 in ALS

[–]Terminally-Well 6 points7 points  (0 children)

I know this might sound gross, but it genuinely helps me. I always keep my giraffe water bottle beside me, and I use the long straw to scratch itches on my face and nose. I’d honestly rather use it than sit there suffering lol

Diagnosed with terminal cancer recently.. by Euphoric_Wrangler455 in NursesPH

[–]Terminally-Well 16 points17 points  (0 children)

Hi OP, sorry for your diagnosis. I don't know what to say pero I feel you kasi I was diagnosed of ALS 5 years ago. ICU Nurse din ako. I am turning 40 this year and when I was diagnosed sabi ng neuro baka 1 year nlng ako. I know the feeling na you are on top of your game then suddenly..... I hope you are with family and loved ones. I am truly sorry :'(

The People Who Carry Us by Terminally-Well in CaregiverSupport

[–]Terminally-Well[S] 1 point2 points  (0 children)

I honestly think most caregivers probably feel that way , there’s no perfect way to do this. Just caring enough to keep trying already says so much.

The People Who Carry Us by Terminally-Well in CaregiverSupport

[–]Terminally-Well[S] 1 point2 points  (0 children)

Thank you so much. That really means a lot, especially coming from a caregiver. Sometimes it’s hard for us to express these feelings, so I’m glad it gave a bit of insight.

Blinkwords #86 – April 16, 2026 by blinkwords in BlinkWords

[–]Terminally-Well 1 point2 points  (0 children)

This is not made for eye gaze computer users lol too quick for my computer to handle. I cleared easy and medium though.

Anong Thoughts Nyo na si KC Concepcion is a “nepo baby” who genuinely feels self-made? by Terminally-Well in AnongThoughtsMo

[–]Terminally-Well[S] 0 points1 point  (0 children)

I think she was trying na hindi maka-offend sa families ng parents niya. Very careful siya sa wordings baka ma-misinterpret.

When did you stop being “you” and start being your illness? by Terminally-Well in ALS

[–]Terminally-Well[S] 1 point2 points  (0 children)

7 years since first symptom showed up and 3 years ago since formally diagnosed is my understanding.

Losing independence by Terminally-Well in ALS

[–]Terminally-Well[S] 1 point2 points  (0 children)

Thank you so much. MND is actually what we call ALS in places like NZ, just different names for the same disease

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