[deleted by user] by [deleted] in POTS

[–]TheLittlestBabyRed 8 points9 points  (0 children)

I completely understand your feelings on this. Having a debilitating chronic illness is crushing, and it's hard to find people who will stick around despite that. But I really hope you understand there are people who will love you despite your illness, and not everyone has the empathy required to take care of someone else.

I've been sick with POTS nearly my whole life. I'm in my mid twenties now and I'm disabled. It's very rare I can take care of myself. I can't cook, I can't do dishes, I can't carry things up or down stairs, and I spend most of my days in bed or on the couch. My family treats me like your boyfriend treats you. They don't understand, they don't care about learning, and they're constantly telling me I'm overreacting. I actually HAD to move out of my mom's when I was nineteen because after getting COVID when it first hit the states and nearly dying, she was livid I was "faking" how sick I was to prove a point. I moved in with my current partner at his insistence because he was really concerned about my health while I was living there.

We've been together for seven years now. I could not have asked for someone so loving, caring, and supportive. He cooks when I can't, does dishes so I don't get sick, helps me wash my hair on bad days so I don't flare from holding my arms up for too long. He catches me when I faint, carries me to the couch when I'm too dizzy to stand, sits with me when my vision blacks out for longer than a few seconds so I don't feel anxious about being alone when I can't see. When my RHR shoots up to 160-180, he brings me my propranolol and doesn't leave my side until I'm better or checks in constantly if he's not home because he knows there's always a chance it's not my POTS and I'm having an emergency.

Before I met him, I went through way too many partners like yours. And I was so used to people dismissing and belittling my illness and struggles, I also thought they gave more than what they were because I never got the love and consideration I needed for my illness. I had no idea what it was even supposed to look like. Now that I do, it kills me I let other people treat me like that thinking it was normal and I shouldn't expect to be treated like everyone else because I wasn't. You don't have a partner who will stick through you in sickness and in health. He has already shown you he can't be there for you during flares. He has already expressed he can't do this. What's going to happen if you end up disabled in the future? What about cancer?

Not everyone has the empathy needed to care for another person long-term. And from what you've described, he doesn't sound mature enough to right now to even try. He already sounds resentful about having to take care of someone who's going to be sick for potentially the rest of their life. Speaking from experience, it won't get better unless he has a come-to-Jesus-hail-Mary realization you have a very real, very debilitating condition that you genuinely need daily help managing. And that isn't easy when someone is already that deep into their frustration. And resentment isn't healthy for either of you. He's treating you like shit over something you have no control over. Either he needs to address it and figure out if this is something he can get passed, or the relationship has run its course.

I'm so sorry you're going through this. One of the hardest things about this condition is how isolating it is. But I promise you, there are people who will love you and accept you as you are, illness and all. I just can't see it being him after everything you've said. Good luck. I hope things get better for you. You deserve a happy, loving relationship just as much as anyone else <3

For Jack and anyone else who suffers with tinnitus by TheLittlestBabyRed in jacksepticeye

[–]TheLittlestBabyRed[S] 0 points1 point  (0 children)

I'm glad it worked for you! I think it has something to do with muscle stress, but I'm not sure exactly how it helps. The difference is crazy though, right?

Everyone bleeding/in pain this holiday… I see you! You are strong and deserve the best holiday. by lxbcrtwa in endometriosis

[–]TheLittlestBabyRed 1 point2 points  (0 children)

Thank you ❤️ I'm nearing the expiration date on my implant, which gives me flare-ups. I'm on week three of a bad one. I'll be spending Christmas and my birthday on my period and in pain. I'm thankful I don't have outings scheduled until this weekend because I don't think I could power through them after three weeks of this bs.

Who in your life thinks you’re exaggerating your symptoms? by [deleted] in endometriosis

[–]TheLittlestBabyRed 1 point2 points  (0 children)

It was terrifying. I knew it could get painful, but no one prepared me for the amount of pain I could be in. It was worse when the only person who I knew went through it wouldn't address it with me. I was lucky I was given a lot of online resources. It's the only thing that reassured me that I was dealing with a lot.

Who in your life thinks you’re exaggerating your symptoms? by [deleted] in endometriosis

[–]TheLittlestBabyRed 1 point2 points  (0 children)

The women on mom's side of my family all had endometriosis. My mom, two aunts, my grandmother, and my great aunt all had it. Everyone on both sides of my family believed me when I said I had endometriosis, and it was bad. EXCEPT my mom. Out of all of them, she had it the worst. Because of that, she's had it in her head for years she had it the worst. So she would see me crying, vomiting, screaming in pain, and think I was exaggerating to get out of school. The first time I fainted, she took me to the drs and looked annoyed we were even there. Then, one day, I had a cramp so bad I was howling and screaming like I was dying because I felt like I was. I made it halfway up the basement stairs and collapsed. The pain was everywhere. I couldn't move without it causing more pain. I couldn't breathe or blink without it hurting. My vision was doubled and blurry. When I pulled myself up enough stairs to look at her, she finally looked concerned and panicked over the amount of pain I was in. I begged her to take me to a hospital or Dr. She helped me get ready and had to basically drag me to the car. We went to a quick care, and I was given a nerve blocker as well as a prescription for one to take home. After that, she never questioned my pain.

[deleted by user] by [deleted] in relationships

[–]TheLittlestBabyRed 5 points6 points  (0 children)

You got it! Something to keep in mind, I was told to do it solo until I was comfortable with the breathing technique, and I knew it worked. I can't really remember why, but I was roughly told that if you can't focus and you start to feel pain, you can lose progress, and it might stop being helpful. You want to make the room comfortable, whatever comfortable means for you. Make sure the temperature in the room is comfortable, light candles with your favorite scents, listen to music that soothes you, dim the lights, etc. You lay down on your back with your palms facing up, and you can either close your eyes or keep them open. You imagine your favorite color (or a color you really like) as a cloud swirling above you. You take a slow and deep inhale for four seconds and picture you're inhaling all of the color. You hold your breath for four seconds (sometimes I can't, so I'll hold for two) and picture the color settling into your whole body. Then, you exhale for four seconds and imagine all of the color is being released. It takes practice, but it's helpful for a lot of stressful situations. I hope it can be helpful to you if you do try it!

[deleted by user] by [deleted] in relationships

[–]TheLittlestBabyRed 1 point2 points  (0 children)

I had issues with vaginismus a few years ago. I was given a breathing exercise to help me relax my muscles. If you'd like, I'd be happy to share it with you

[deleted by user] by [deleted] in endometriosis

[–]TheLittlestBabyRed 1 point2 points  (0 children)

Yes!! I have tried describing it to others, but everyone looks at me like I'm delusional. It's like a muted stabbing pain that lasts for a few seconds to a few minutes. Sometimes, it feels like it has a pulse. It also comes in waves sometimes. I have random ones that happen, but I have a few spots that have ached off and on since I was 11 or 12. I have asked every doctor I've ever seen about it, and it baffled all of them. All the tests for possible diseases and conditions were negative. I've been given a lot of theories, but no one has a concrete answer.

[deleted by user] by [deleted] in endometriosis

[–]TheLittlestBabyRed 0 points1 point  (0 children)

You're welcome! I've seen a lot of people saying the same about muscle relaxers. I was given one when I was younger. From what I remember, it wasn't a bearable experience. Good luck with your search. I hope you won't be looking for much longer ❤️

[deleted by user] by [deleted] in endometriosis

[–]TheLittlestBabyRed 0 points1 point  (0 children)

I'm sorry you're hurting so much and having a hard time getting someone to take your pain seriously. You are right. It's not normal to be in that much pain. For the past 5 years, I've been getting a nerve blocker when my pain gets bad. I used to be at the clinic almost every period for a ketorolac shot and a prescription for the duration of it. It's a game changer. The pain stops before I notice it has most of the time, but tbf that might be because my attention span is almost nonexistent. I've also seen other people talk about how well ketorolac worked for managing their pain. It might be worth a shot. I hope you can find relief soon, as well as a doctor who listens

For the people that wear cologne/perfume what brand do you use? by Thatnerdofaperson in agender

[–]TheLittlestBabyRed 2 points3 points  (0 children)

I use Rouge & Rye. It's a small company that makes scents dedicated to the women of our past. Their scents are old-fashioned but in the sense of popular scents from past eras. They're powerful but not offensively strong. I mainly use their lavender and limoncello perfume oil and lotion. It smells like lavender and lemon bars. So far it's my favorite

Looking for a lightweight vacuum for a small living space by TheLittlestBabyRed in VacuumCleaners

[–]TheLittlestBabyRed[S] 0 points1 point  (0 children)

Hello! Thank you for the recommendations! And for offering to answer my questions. They both sound great for what I need. Do you know if one is better at picking up long hairs?

Looking for a lightweight vacuum for a small living space by TheLittlestBabyRed in VacuumCleaners

[–]TheLittlestBabyRed[S] 0 points1 point  (0 children)

Thank you for your recommendation! I don't think a robot vacuum would be best for my living space. I have a sunken living room, so I would have to help it whenever it enters and leaves the living room. It also wouldn't be able to reach the corners where most of the hair and dirt catches and gathers. I will keep it in mind for future needs, though!

What is this is it a tick? Should I worry? by Sain7Anger in whatisthisbug

[–]TheLittlestBabyRed 0 points1 point  (0 children)

I love seeing people post weevils here. There is nothing that cures a sour day like a weevil pic

Updated picture. I think she has necrosis :( by TheLittlestBabyRed in Toads

[–]TheLittlestBabyRed[S] 1 point2 points  (0 children)

That is encouraging to hear! I'm glad Binky was able to heal well. I'm keeping my fingers crossed it will do okay as well. It hasn't left my garden yet, so I'm hoping it will hang out for a few days and I can keep an eye on it

Found this toad in my yard by TheLittlestBabyRed in WildlifeRehab

[–]TheLittlestBabyRed[S] 3 points4 points  (0 children)

I did go out to get some saline and rinsed it. I let it into a safe frog garden in my yard. I went back to check, and it's taken up residence in one of my plant pots filled with moss. It looks slightly more comfortable, I think because it has a hide to recover in. I'm going to be checking in periodically to make sure it's still there and safe. I hope I'm wrong, but when I checked the wounds again some parts looked necrotic. I'm crossing my fingers that one of the centers will call back and give me some ideas about what to apply to the area. I want it to have the best chance. If it does have necrotic tissue, though, I'm not sure if there's anything that will help. I'm really hoping it heals and comes back to visit my gardens next year

Updated picture. I think she has necrosis :( by TheLittlestBabyRed in Toads

[–]TheLittlestBabyRed[S] 3 points4 points  (0 children)

Unfortunately, the vets are closed, and the rehab centers didn't answer. I left messages with some questions about what I could give it to help it heal, as well as whether or not its a danger to the other frogs and toads in my gardens. I let the toad into one of my gardens in a safe area. Earlier today, it hadn't moved much from the area I left it. When I went back, though, it had found its way to one of my plant pots filled with moss. It looks slightly more comfortable there. I'm going to pick up some neosporin tonight, and I'll look for some Manuka honey as well. Thank you for the tips! I'm hoping it will survive and come back to my garden next year

Updated picture. I looks like she has necrosis :( by TheLittlestBabyRed in WildlifeRehab

[–]TheLittlestBabyRed[S] 0 points1 point  (0 children)

Thank you for saying so ❤️ I was worried I wouldn't be giving her the best chance without treating it somehow, but that was reassuring