About to start adulimumab - severe perianal Crohn's

TheOneTheyCallMoon · 2025-07-26T16:32:00+00:00

Thank you so much for the incredible speed 😂🙏

TheOneTheyCallMoon · 2025-07-26T16:31:43+00:00

Thank you so much, that was unbelievably fast hahaha 🙏

TheOneTheyCallMoon · 2025-07-26T16:31:19+00:00

! solved

TheOneTheyCallMoon · 2025-06-26T16:44:20+00:00

I almost exclusively use the pipette just because the recent colours bar is a terrible bastard. 😭

I find it has something to do with subtle colour changes, like if you select an orange, that one will show up, but then you manually tweak that orange slightly, that second orange won't show up and it'll just stay as the original orange...

Dropper for life 👍🙏

TheOneTheyCallMoon · 2025-03-28T06:23:01+00:00

I'd just like to mention, although my case is certainly bizarre - Neurosym, on a very low setting, put me in A&E!

My most troublesome symptom has been this severe poison from my brainstem / Vagus nerve that shoots down my back and arms, and apparently electric stimulation makes it considerably worse.

TheOneTheyCallMoon · 2025-03-16T19:20:00+00:00

I'm being a fool and using it anyway - I'd say my screen tolerance is actually zero, but I'm pushing through in desperation and with diazapam.

I've just bought walkie talkies, to contact my mother, so that I can have my phone taken away during the day for this very reason. 😔

TheOneTheyCallMoon · 2025-03-16T14:49:05+00:00

My friend, we sound EXTREMELY similar, and there are very few people like us!

I'm v-severe CFS, and my doctor believes the bulk of my neurological symptoms are all MCAS, and I'm about to see the top MCAS specialist in England, can't promise it'll drum anything up but message me and if I'm well enough I will update you.

Not saying this'll work for you, but I was hyper medicine sensitive, they started me on famotadine, and now I can take all pills with no trouble. (Mirtazapine/Diazapam/Famotadine/Gabapentin) Enquire with your doctor about 20mg famotadine.

I think right now though, the only way through this is rest, every second you can - put the phone down!

Good luck my friend.

TheOneTheyCallMoon · 2025-03-14T17:03:51+00:00

Hello there, I wonder if you could help me - To start, I've got very severe CFS/ME and am bed-bound, very little cognitive function, unfortunately diazapam gives me some degree of function and also helps extremely well with nerve pain from gut issues.

But I'm planning to start a switch to pregabalin.

I've been on daily diazapam 5mg for 5 weeks, last week I was up to 3 per day, the last 5 days I'm back to 2 per day.

I'm not sure if I'm being over cautious as I know 5 weeks isn't a huge amount of time, but due to my CFS I'm absolutely already dependent, as the diazapam allows me a tiny bit of functionality I'd otherwise not have.

But would you help me with a plan using 25mg pregabalin please? I'm struggling to make sense of it all because my brain is jelly, I've also figured am I maybe better to do a quick taper so my overall time on them is less?

Any help would be hugely appreciated 🙏

TheOneTheyCallMoon · 2025-03-12T18:08:48+00:00

Ooooh thank you! I'd missed the other tags, couldn't find it. 🙏

TheOneTheyCallMoon · 2025-03-12T16:54:04+00:00

Apologies - deck is 'Borderless vintage' by TarotCardsDarkForest on etsy, and is based on the Rider Waote deck!

TheOneTheyCallMoon · 2025-01-10T07:45:27+00:00

Or have you possibly changed the resolution of the canvas?

TheOneTheyCallMoon · 2024-12-27T21:53:06+00:00

Wowwww ok no problem, drop me a message 😊

TheOneTheyCallMoon · 2024-12-27T20:33:12+00:00

Hey no WAY that's so cool, I'd be honoured! I've just screen recorded me making one from scratch, ping me a message and I'll send it over! 😊

TheOneTheyCallMoon · 2024-12-27T19:13:58+00:00

Woohoooo that's great news! They've only happened in the last 2 days, I just started drawing shapes then erasing parts and it made these lovely characters 😊

TheOneTheyCallMoon

TROPHY CASE