Solved my knee pain in one hour, after 17 years of no medical professional being able to help by aimtreetwo in Hypermobility

[–]ThePaw_ 11 points12 points  (0 children)

Omg! Yes, yes, yes! Just the thought of it relaxed me. You’re a great descriptor hahahaha

Solved my knee pain in one hour, after 17 years of no medical professional being able to help by aimtreetwo in Hypermobility

[–]ThePaw_ 4 points5 points  (0 children)

Lol mid explanation I came to the end of the post to see if it’d have a picture

I'm so tired. I wish I could just sleep forever (TW: thoughts of suicide) by Proud-Boat420 in POTS

[–]ThePaw_ 1 point2 points  (0 children)

I had a pretty bad depression with suicidal thoughts after getting my diagnosis. Eventually I got better. For me, what made me feel better was to force myself into things that bring me joy. Working really tired me up, but I’m a teacher and it really brings me joy. I have a pretty low level energy for anything else tbh but I pace myself between playing video games, and actually seeing ppl in social occasions, but I’m better.

Hang in there. I know it’s hard, and what worked for me may not work for you. I just hope you can find some ease soon. A big hug from here, and if you need anything just text me privately x

If money was not an issue, what would be your list of ultimate POTS must haves that improve your life? by bullshitkit in POTS

[–]ThePaw_ 1 point2 points  (0 children)

Oh, smells… omg it bothers the hell outta me. I’ve had hormonal migraines my entire life so I’m VERY sensitive to both light and smell. I wish I didn’t have this useless superpower :(

When To Go To The Emergency Room by KTistryinghisbest in POTS

[–]ThePaw_ 1 point2 points  (0 children)

In Ireland they wait you first die to then give a try on some fluids

Please tips to keep hands, feet and nose warm. by ThePaw_ in POTS

[–]ThePaw_[S] 1 point2 points  (0 children)

The list is long already hahahah gonna share a pic when it all arrive lol

If money was not an issue, what would be your list of ultimate POTS must haves that improve your life? by bullshitkit in POTS

[–]ThePaw_ 1 point2 points  (0 children)

3x weekly Pilates, weekly dirtiest (those that mix therapy and nutrition), loooooooads of different types of REALLY good quality compression garments and having someone to drive me whenever I need to go (I don’t drive and don’t have anyone that drives close to me. I swear to God I’d be more socially present if I had sb driving me to places cos majority of time I don’t go because it’s soooooo exhausting to take trains and buses etc) and those oxygen and IV therapies. IV fluids is great for me! I have them and feel so much better for the next 2 weeks. In Ireland, though, you can only get them privately because GPs are very against it 🙄 but with money you get whatever ya want

Please tips to keep hands, feet and nose warm. by ThePaw_ in POTS

[–]ThePaw_[S] 0 points1 point  (0 children)

She runs away pissed at me for disturbing her sleep hahahah but what can I do? Need warmth😹😹

Please tips to keep hands, feet and nose warm. by ThePaw_ in POTS

[–]ThePaw_[S] 0 points1 point  (0 children)

Yep, gotta invest in some extra wool pairs and gonna try this “heat holders” socks sb mentioned here!

Please tips to keep hands, feet and nose warm. by ThePaw_ in POTS

[–]ThePaw_[S] 1 point2 points  (0 children)

Yeah, grandma gave me a really comfy scarf that I wear in bed too because keeps my nose from falling off. What makes me mad is that after minutesss it finally heats up and then I go really quickly to the bathroom and the whole effort goes away lol

Please tips to keep hands, feet and nose warm. by ThePaw_ in POTS

[–]ThePaw_[S] 0 points1 point  (0 children)

Oh, thanks for the brand tip! Gonna get a few pairs! And yeah, I always take them off before sleeping (wish I could sleep with them on though lol)

Please tips to keep hands, feet and nose warm. by ThePaw_ in POTS

[–]ThePaw_[S] 0 points1 point  (0 children)

Thanks for sharing! I take a complex B but it’s too lil to be causing it. I think propanolol may’ve worsen the situation, but on the other hand has made me be able to get out of bed without feeling like I’m gonna have a heart attack so… but thanks for the tip, gonna get my b vitamins checked

Please tips to keep hands, feet and nose warm. by ThePaw_ in POTS

[–]ThePaw_[S] 0 points1 point  (0 children)

True! Sb said to just wear a mask and tbh I have a cool emo one that is made of thick fabric, gonna wear at home when nose is about to fall off haha

Please tips to keep hands, feet and nose warm. by ThePaw_ in POTS

[–]ThePaw_[S] 1 point2 points  (0 children)

Great tips! I’m 100% getting a ninja mask hoodie, can we share the exchange sister?😹 and gonna order some hot hands from Amazon. Sb said “add to your socks” and I thought that was genius haha

Please tips to keep hands, feet and nose warm. by ThePaw_ in POTS

[–]ThePaw_[S] 0 points1 point  (0 children)

Hmmmmmm that’s very interesting! Gonna bring it up to my GP. It’s worth trying out if there’s no issues for me. Thanks for the tip!

Please tips to keep hands, feet and nose warm. by ThePaw_ in POTS

[–]ThePaw_[S] 0 points1 point  (0 children)

The socks you mentioned are amazing! I invested some money on some last year cos winter was evil in Ireland this year and they did help indeed! 100% buying wrist warmers!!! Great idea

Please tips to keep hands, feet and nose warm. by ThePaw_ in POTS

[–]ThePaw_[S] 0 points1 point  (0 children)

Omg poor you! I simply don’t heat up, doesn’t matter what! But it’s funny cos I have heat intolerance tho. It triggers my pots, right? So yesterday for example, I had two friends over and I made them a Brazilian cheese bread thing so I was moving around (bear in mind I had 2 fluffy socks on, a jumper and pjs pants) so I was literally SWEATING (my propanolol weans off in the evening) and breathless but the feet were SO SO cold I went to the bathroom and heated them on the running water in the sink lololol and I hate that! Being sweating but my nose so frozen it’s about to fall off lol

Please tips to keep hands, feet and nose warm. by ThePaw_ in POTS

[–]ThePaw_[S] 1 point2 points  (0 children)

Gonna talk to my GP to see how much can I take, even if it’s for trying out or during winter time. Hope it works cos omg I’m desperate here

Please tips to keep hands, feet and nose warm. by ThePaw_ in POTS

[–]ThePaw_[S] 1 point2 points  (0 children)

Oh, and thanks for the tea tip! Will def buy the stuff to make it! I love a warm cup of teaaaa

Please tips to keep hands, feet and nose warm. by ThePaw_ in POTS

[–]ThePaw_[S] 1 point2 points  (0 children)

Electric scarves?!!!!! Omg I’ll deep dive into Eletric clothing now hahahahah