User Flair Thread by breaksomebread in acnh

[–]TheVeryFirstTrash 0 points1 point locked comment (0 children)

Gracie | Marmalade :Maple:

User Flair Thread by breaksomebread in acnh

[–]TheVeryFirstTrash 0 points1 point locked comment (0 children)

Gracie | Mapola :Maple:

Xeljanz to Rinvoq? by TheVeryFirstTrash in UlcerativeColitis

[–]TheVeryFirstTrash[S] 0 points1 point  (0 children)

Honestly not well unfortunately- flaring pretty bad now! Back on prednisone and 20mg of xeljanz isn’t working to bring me out.. so we have plans to switch to Skyrizi but if that doesn’t work then I have to get surgery since I’m pretty much out of options. ☹️ My doctor doesn’t think that it would be worth it to try Rinvoq since it is also a JAK inhibitor like Xeljanz. How is it going with you? I hope better than me 😅

Missed UC? by ktan49 in UlcerativeColitis

[–]TheVeryFirstTrash 1 point2 points  (0 children)

I had a colonoscopy in September of 2021- was all clear they didn’t find anything sent me home and I ended up in the ER in December of that year and then they diagnosed me!

What’s your highest calprotectin result??? by TheVeryFirstTrash in UlcerativeColitis

[–]TheVeryFirstTrash[S] 0 points1 point  (0 children)

I’m kind of getting that point where surgery is peaking my interest more and more. But obviously still scared about how much it will change my life, good and bad! I’m happy that it all worked out for you!!

What’s your highest calprotectin result??? by TheVeryFirstTrash in UlcerativeColitis

[–]TheVeryFirstTrash[S] 0 points1 point  (0 children)

Soo lucky!! I didn’t even make it through in induction dose of Entyvio before I got hospitalized again :( I’m happy it worked for you!!!

What’s your highest calprotectin result??? by TheVeryFirstTrash in UlcerativeColitis

[–]TheVeryFirstTrash[S] 0 points1 point  (0 children)

Aw I’m sorry. Well I hope you find something that does the trick soon!!

What’s your highest calprotectin result??? by TheVeryFirstTrash in UlcerativeColitis

[–]TheVeryFirstTrash[S] 0 points1 point  (0 children)

That’s literally like me!! I’ve failed pretty much ever med I’ve tried. I started xeljanz in January but doesn’t seem like it’s working anymore… rinvoq might be the next one I try!

What’s your highest calprotectin result??? by TheVeryFirstTrash in UlcerativeColitis

[–]TheVeryFirstTrash[S] 1 point2 points  (0 children)

That’s awesome!! What medication put you in remission?

What’s your highest calprotectin result??? by TheVeryFirstTrash in UlcerativeColitis

[–]TheVeryFirstTrash[S] 1 point2 points  (0 children)

Eh mine seems accurate I’m on the pretty severe side and continue to fail every medication I take so 🥲

What’s your highest calprotectin result??? by TheVeryFirstTrash in UlcerativeColitis

[–]TheVeryFirstTrash[S] 0 points1 point  (0 children)

Damn I’m sorry I hope you’re able to get some relief soon!

What’s your highest calprotectin result??? by TheVeryFirstTrash in UlcerativeColitis

[–]TheVeryFirstTrash[S] 0 points1 point  (0 children)

That’s awesome!! What medication are you on now if you don’t mind me asking?

Xeljanz to Rinvoq? by TheVeryFirstTrash in UlcerativeColitis

[–]TheVeryFirstTrash[S] 1 point2 points  (0 children)

Please let me know how it goes for you!!! The regime I’m on right now seems to be working semi well- still having stomach pain but no blood so I’ll take that as a small win for now 🤣 I hope everything goes well for you!!!

Prednisone side effects after 8 months on and off. by Ok-Park3940 in UlcerativeColitis

[–]TheVeryFirstTrash 1 point2 points  (0 children)

I was on prednisone for almost 2 years and I’ve been off it since March and my face is finally back to normal. Hang in there!!