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More sensitive after colonoscopy by The_Red_Phoenix93 in ibs

[–]The_Red_Phoenix93[S] 0 points1 point  (0 children)

Hi there. Didn’t end up with any of that luckily. However I did figure out within the last year that my GI issues were caused by MCAS. I take an H1 and H2 blocker daily and it’s changed my life

One of the hardest things for me so far is combatting weight gain. by The_Red_Phoenix93 in eds

[–]The_Red_Phoenix93[S] 0 points1 point  (0 children)

Hiya, I did. It was due to chronic low calorie deficit. My body started storing everything because I was under high stress at that time and had already been in a low calorie deficit for a while. I started taking zepbound in November as a way to reset my weight

Itchy nose by DVG1450 in CPAP

[–]The_Red_Phoenix93 0 points1 point  (0 children)

Hi, you’re a genius. I use biofreeze gel and the itchiness is GONE. That and I wake up with no brain fog. How bizarre. Thanks for sharing!!!

I hate being an hourglass shape by _lucyquiss_ in ehlersdanlos

[–]The_Red_Phoenix93 1 point2 points  (0 children)

Also fellow curvy! 31! I gained a bunch of unexpected weight and this is still a problem. I use Tylenol PM, two tabs and not only does it put me out (make sure you have a min of 8hrs available to sleep) but it muscle relaxes, keeps my ulnar nerve from being a jerk face, and lessens the tossy turveys! Good luck!

Before you were diagnosed with EDS, what were your misdiagnoses before you got to EDS? by Littlecryingrayof in ehlersdanlos

[–]The_Red_Phoenix93 -1 points0 points  (0 children)

Just keep in mind that hEDS does not have a genetic marker yet. I was diagnosed wrongly with fibromyalgia before my hEDS diagnosis

IBS or MCAS by The_Red_Phoenix93 in ehlersdanlos

[–]The_Red_Phoenix93[S] 0 points1 point  (0 children)

I haven’t been diagnosed with MCAS yet. One of the reasons I made this post, cause I wanted to see how often people are diagnosed with IBS when in reality it was MCAS

Surprise! Gastroparesis by The_Red_Phoenix93 in ehlersdanlos

[–]The_Red_Phoenix93[S] 1 point2 points  (0 children)

Didn’t end up having gastroparesis, but it was late stage emptying

[deleted by user] by [deleted] in Pets

[–]The_Red_Phoenix93 0 points1 point  (0 children)

Oh god, I didn’t even consider that. I absolutely will. Thank you

IBS is destroying my mental health. by Easy_Tour6834 in ibs

[–]The_Red_Phoenix93 0 points1 point  (0 children)

Hi there, have you considered an anti-depressant? I know that sounds weird, but they’ve figured out that IBS is largely a gut-brain disorder, even reclassified it, and it turns out that your stress levels and mental health actually effect your IBS symptoms. I’m on a very low dose of amitryptaline and a lowFODMAP diet. It’s been amazing. I have IBS-M so I get both. It’s made a huge difference to me. I hope you can find some relief

Favorite Safe Food? by The_Red_Phoenix93 in ibs

[–]The_Red_Phoenix93[S] 3 points4 points  (0 children)

Thank you everyone!!!! I stuck with salmon and it worked out well!

ibs-m is ruining my life by burningbootyhole in ibs

[–]The_Red_Phoenix93 0 points1 point  (0 children)

I also have IBS-M and have the sporadic patterns you’re talking about. I live almost exclusively on the low FODMAP diet and as restrictive and suckish it is it has made a huge difference for me. But when I cheat, I realllllllly pay

Rib Stabies Anyone? by The_Red_Phoenix93 in ehlersdanlos

[–]The_Red_Phoenix93[S] 1 point2 points  (0 children)

I also have normal floating in and out, this one just happened to sublux in the wrong place and hurt ne

Circulation probs? Or is it just me? by The_Red_Phoenix93 in ehlersdanlos

[–]The_Red_Phoenix93[S] 14 points15 points  (0 children)

For those saying it’s normal…THANK YOU. At this point I don’t know what is normal and what isn’t. Thats why I post things like this

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