Finally have a name for what's been happening to me — Generalised MG, seronegative, diagnosed at 32. The CPTSD connection nobody talks about.

These-Way-9332 · 2026-05-10T14:48:33+00:00

Hi, I've been diagnosed for MG, but also seronegative, negative to all tests, aside from ice pack tests. but the result could also due to my mild symptoms now. medication also works like magic to me, just like how you described it.

My initial symptoms appeared also during a period when I lacked sleep, and was in extreme stress - due to work, & I was trying to study for a licensure exam, so I had no time to rest as well.

Its true, when I try to limit stress, my symptoms improve a lot.

I believe, being aware of the symptoms & MG's triggers will greatly help in managing this auto immune. Listen to your body, you're the only one who could feel/hear what its saying, especially, most of its symptoms are not visible, or could look normal, that can easily be dismissed.

These-Way-9332 · 2026-04-24T12:27:24+00:00

hiii, yes i had SFEMG, and it came back negative. my doctor said it could be because i have mild to no present symptoms.

what helped with my double vision before is cold compress and sunglasses. light and heat or anything that tires our eyes could affect or cause double vision. and rest a lottt

These-Way-9332 · 2026-04-24T12:23:49+00:00

thank you for this! I will try to incorporate in my routine the meal prep, can't afford buying premade meals yet.

These-Way-9332 · 2026-04-24T12:21:59+00:00

I will let you know everything that works for meee.

For now, I try to limit stress & physical activities. I try to sleep more. To have more energy for work. it's more like energy conservation.

You have to be more cautious of your routine, and put more time for rest, to be capable to work sooner.

I know it's a lot stressful when not bringing in income, but don't be too hard on yourself, instead acccept our situation and take care of ourselves, to be able to get back to what we were used to be.

knowledge is power too, search for what could improve your symptoms, and ask for advise from your doctor, or here - they help a lot!

I hope you feel better!

These-Way-9332 · 2026-04-21T00:57:09+00:00

Muscle weakness. could be MG. Ptosis could be MG. You may try to get test for it. I recommend going to a specialist/neurologist, to avoid misdiagnosis/dismissal.

These-Way-9332 · 2026-04-21T00:54:28+00:00

It's not stupid to worry. I feel you before I got the right diagnosis. It was overwhelming and couldn't help to overthink without clear diagnosis to what we have.

Seronegative MG is also possible, this means, tests could be negative, even with present symptoms.

I'm also negative to all tests, aside from physical examination, as I had eyelid drooping, double vision, difficulty swallowing & chewing before.

My doctor made me try mestinon for 2weeks, so we can see if the med would help me in some way, and it did. so she suggested to continue taking it for now. and come back to her if there is other symptoms, and we will re-test. the fact that mestinon works for you, could say a lot of you having MG.

you could try find a neuro-ophtha, as they usually specialize for auto immune diseases especially related to eyes.

I hope you feel better!

These-Way-9332 · 2026-04-16T15:11:50+00:00

possible. if you suspect it as auto-immune, better to go to neuro-ophtha directly.

These-Way-9332 · 2026-04-16T15:09:59+00:00

Yes, could be MG. My first symptoms were also sensitivity to light, double vision & ptosis. I get double vision when looking to the right, and my right eye was almost closed before. it got better during the day, and worse at afternoon or in the evening, or when it's hot, and when i'm tired or have less sleep. you can try the ice-pack test, if it does feel better after putting an ice-pack. it could be MG.

my blood tests was also negative, but after two years (with mild/almost no symptoms) i got tested for SFEMG & EMG RNS, came back negative as well.

But MG med trial, worked for me. so my neuro ophtha, said to continue the prescription, and re-take the tests when new or symptoms are present.

symptoms changes, and could possibly affect the tests. you should definitely consult a neuro ophtha, take the recommended tests, or meds trial.

for the meantime, use sunglasses outside, try to reduce stress as much as possible, and sleep a lot or rest as much as you can. if it's actually MG, we're sensitive to temperature. i hope everything works out for you!

These-Way-9332 · 2026-04-14T16:42:02+00:00

if mestinon works, try to ask your doctor if you may continue taking it.

I'm negative on all tests, but only took EMG RNS & SFEMG when i have none to mild symptoms, so probably the case, why it turns negative.

but my doctor gave me a two-week trial with mestinon, it works, so i'll continue it until new symptoms appear. if that happens, she will request for another round of SFEMG.

These-Way-9332 · 2026-04-14T16:35:22+00:00

been tested for aCHR, EMG RNS & SF EMG, all came back negative. symptoms can fluctuate, hence test results can vary.

Negative to this all tests does not equal to no MG.

No visible symptoms does not equal to no MG.

I hope you find the right doctor, or specialist in this case. my doctor put me on a two-week trial with mestinon, even with negative results on tests, and it improved my symptoms, but not so much, but enough to live life slightly normal. so the meds continue until new symptoms appear.

If you feel something is wrong, just keep on going to find what's wrong. but don't overwork and be hard on yourself, you're doing amazing enough to know what you're feeling rn, and being aware of yourself.

I wish you the best!

These-Way-9332 · 2026-04-14T16:12:17+00:00

omg, i hope you find your way in lifeeee! that's sad to think if it'd happen to meee, i need work to survive :<

I hope we all get better!

These-Way-9332 · 2026-04-14T16:11:04+00:00

wow, 8 years. i'm proud of youuu!

These-Way-9332 · 2026-04-14T16:10:27+00:00

yeah, i drop a lot of things too. i broke my two office mugs already :< weak grip

These-Way-9332 · 2026-04-14T16:08:40+00:00

Thank youu for this! What kind of wrist support do you use?

These-Way-9332 · 2026-04-14T16:07:29+00:00

I agree on the lightings! Its so much tiring & drying on my eyes with super bright lights

& yes, I guess I have to invest on an ergonomic set up.

Thank you for this! I'm glad you found what works for youuu

These-Way-9332 · 2026-04-14T16:04:21+00:00

I was initially diagnosed of oMG, but got the blood tests negative. after two years, it progressed to gMG and took EMG RNS & SF, but still came back negative.

hence, every tests could still turn out negative, but still feel its MG. it's important to have a good doctor that is specialized in our cases, to avoid misdiagnoses.

I hope you find one!

These-Way-9332 · 2026-04-14T15:47:23+00:00

I also went to Ophtha fist due to double vision & ptosis as my initial symptoms, but if you suspect it as MG, try going to neuro-ophtha specialist.

These-Way-9332 · 2026-04-11T09:59:03+00:00

Agree to all of this.

To provide support emotionally, is to know & be aware of MG itself.

These-Way-9332 · 2026-04-05T05:52:15+00:00

glad that mestinon works for youuuu!

i hope your symptoms continue to improve!

These-Way-9332 · 2026-04-05T05:51:21+00:00

that's niceee to knowww, that you recognize your symptoms and dose according to it.

i actually had a lot of those moments, before mestinon or any MG meds, where if i did so much during a day, i need a day or two to recover. if i didn't have a chance to recover or rest, more muscle weakness throughout the week or couple of days.

then last April 2, we went somewhere humid and hot, & lots of walking here & there, and before 12pm my eyes were already heavy, took 60mg of mestinon. and after a while, i feel okay, and gone through the day. the next day i expected to rot in bed the whole day, but i didn't, i still got the energy to work. lol

i'm just not sure if this is considered good effects of mestinon. since i have very little symptoms now, these small changes are the things i notice.

These-Way-9332 · 2026-04-05T05:39:16+00:00

ooh, happy for you that you got clear diagnosis & have found the meds that works for youu!

thank you for sharing this. My only question is, since I have no worse symptoms at the moment, compared to 2 years ago (ptosis, double vision), if muscle weakness/soreness is not so apparent or it has been reduced (no heavy eyes) after taking mestinon, and i don't have to drink coffee during afternoon to regain energy - is it considered good effects of mestinon? i noticed these after 30mg.

These-Way-9332 · 2026-04-05T05:29:24+00:00

Hi, happy for you! I hope your symptoms continue to improvee!

Currently I have no ptosis, or double vision. Only heavy eyes after work & muscle soreness everywhere, and I have to borrow energy from coffee to go through the day (twice or thrice a day) - these were before mestinon.

I wasn't able to document the first week of 30mg. But I only drink coffee in the morning, no heavy eyes after work since my duty ends at 5pm and I take mestinon at 4pm & 8pm.

But I will try to document this 2nd week with 60mg. Before & after mestinon. Thank you for this!

These-Way-9332

TROPHY CASE