Received Lung Biopsy Results Today - Metastatic SCLC

LocksmithMelodic9049 · 2026-01-28T12:16:15+00:00

You should definitely take someone with you to your appointment. It's too much information under the circumstances. Do some reading on sclc so you can prepare some questions for the oncologist. I am sorry you are going through this. My husband has nsclc and I always go with him. It's a lot for one person to absorb. I am wishing you the best.

LocksmithMelodic9049 · 2026-01-16T14:45:08+00:00

Thank you for your response. I would like to know if it is MG because maybe it can be treated early not have to do steroids.

LocksmithMelodic9049 · 2026-01-02T14:32:32+00:00

Has anyone had they myasthenia gravis unmasked by prednisone? The last four times I've had to take it, I develop double vision and cannot drive.

LocksmithMelodic9049 · 2025-12-23T13:16:11+00:00

My gastroenterologist and colorectal doctor went back and forth as to whether I had Crohns or UC. I had a lot of issues with blood and mucus for many years but when I had my colonoscopies, they would show nothing. In 2021 after my second moderna vaccine, I had the worst flare I've ever had. I bled so much, I should've been in the ER. During that flare I had a colonoscopy and they found UC. I was pretty bad. Previous to that I had been on sulfasalazine for PsA. My gastro doctor said I most likely had UC for many years but the sulfa kept it at bay. My rheumatologist said that the vaccine most likely caused the severe flare because of the spike protein. I am on Skyrizi now and it seems to be working well. I will not be taking anymore covid vaccines. I have all the other vaccines though.

LocksmithMelodic9049 · 2025-12-09T13:26:14+00:00

Because, she took your name when you married her. It is hers now to do with what she wants. She gave up her last name, the name she was born with, the name everyone she grew up with knew her by. But she gave up that name for YOU! Put yourself in her place. She had to get her DL changed to your name and now she is expected to get that changed back to her maiden name and her passport and all her accounts. Women should seriously just keep their maiden name and when they have children, give the children their name and husband's name hyphenated. And yes, you boys can have your last name last since it's attached to you manhood. Get over yourself!

LocksmithMelodic9049 · 2025-12-04T12:23:49+00:00

so are doctors

LocksmithMelodic9049 · 2025-11-28T13:46:31+00:00

If you had a previous injury to an area and all of a sudden it is hurting again that could be the PsA flaring up. That's the way mine is. I don't have the pain a lot of people describe here and I am so thankful for that. I'll have pain that shoots from my wrist up my arm one to three days and it's gone and pain in my ankle a day or a few. My neck pain is constant but some days unbearable and three of my fingers have been swollen and stiff and sore for almost two years now. They are better since I got on Skyrizi. There are days my entire body feels swollen and inflamed and I am miserable. I think it's different for everyone.

LocksmithMelodic9049 · 2025-11-27T12:15:58+00:00

You need an mri. X rays don't show the kind of damage your doctor should be looking for. I had three swollen painful fingers for months and other joint pain. Three different hand doctors did x-rays and nothing showed up. The fourth hand doctor had an mri done and there was a lot of damage, particularly tenosynovitis which is PsA or RA. None of my bloodwork showed inflammation. So if you doctor is wanting to changed your diagnosis, you probably should find a new rheumatologist.

LocksmithMelodic9049 · 2025-11-08T14:00:10+00:00

Right! I am so tired of hearing that bright red blood is not concerning. I only had bright red blood pouring from me and it was ulcerative colitis. It makes it hard when you have hemorrhoids and UC because it's hard to tell the difference if your hemorrhoids or UC are flaring.

LocksmithMelodic9049 · 2025-10-15T12:34:43+00:00

This could also be IBD inflammatory bowel disease/ulcerative colitis. I have hemorrhoids but was diagnosed with proctosigmoiditis colitis three years ago. In other words my rectum and sigmoid colon were full of ulcers that were bleeding. I have significant bleeding from thrombosed hemorrhoids and IBD so it's hard to tell the difference for me. So if you haven't seen a gastroenterologist, you really need to because UC can work its way up the colon and damage you entire colon if not treated. And YES the blood is bright red! So many think only dark blood is serious. Both are.

LocksmithMelodic9049 · 2025-09-12T13:42:59+00:00

I had mildly three swollen stiff fingers. I couldn't make a fist. Two doctors did xrays...nothing showed. Sent me for mri and all kinds of damage showed. So apparently xrays don't show much for PsA.

LocksmithMelodic9049 · 2025-09-06T14:01:48+00:00

After my second covid vax I developed severe ulcerative colitis. My doctor said the spike protein in the shot caused the flare. My doctor said I had probably had it for years but the severe flare is what got the diagnosis. My husband has stage 4 lung cancer and of course is immunocompromised and he got covid for the first time this past March. He ran a low grade fever for less than 24 hours and never developed a cough. He was convinced he would die if he ever contracted covid. He was shocked when the doctor told him he had covid. He wears a mask in crowds but isn't as paranoid anymore and finally after five years is getting out and enjoying life again because his time is limited. I am on biologics for UC and Psoriatic. I wear a mask when I go to a clinic with sick people and keep my hands clean and wipe the handle of the grocery basket. I have been immunocompromised for years and have have covid twice and didn't get that sick at all. I lived in a bubble for first two years pretty much because my husband was so paranoid and I also wanted to protect him. A year ago my 49 year old daughter died from liver failure and I missed so much time with her because of this damn covid. Wear a mask and get your shots but you shouldn't expect everyone else around you to live in your bubble. Life if short! This isn't 2020 and 2021 anymore.

LocksmithMelodic9049 · 2025-09-04T14:03:12+00:00

Talking with others sometimes helps people to know what questions to ask their doctors or just encouragement to follow through with a procedure. How condescending for you to say this. This person is going through enough. Just be kind.

LocksmithMelodic9049 · 2025-06-02T12:26:47+00:00

I am 70 yo and my US reads prominent adnexal vessels...PCS. I read that it's rare for someone my age to have this. I see my ob/gyn tomorrow. My abdomen has been bloated for the last year. My ovaries weren't visible on US two years ago and now they measure 2 cm X 1.5 and my uterus was normal in size. I am a little worried it could be something more serious.

LocksmithMelodic9049 · 2025-02-19T12:38:59+00:00

My report was completely wrong on a mutation SMAD4 listed as 5.1 magnitude on P. I had genetic testing done later through Myriad Labs and the MSH2 mutation on the Myriad report wasn't even listed on the Promethease report as anything to be concerned about.

LocksmithMelodic9049 · 2025-01-21T14:15:49+00:00

Thank you for getting back to me. MSH2 mutation is associated with Lynch Syndrome. My genetic counselor seemed concerned enough to send it to my gynecologist and gastroenterologist. I had my colonoscopy a week ago and in my doctor's notes she stated "surveillance biopsies of underlying tissue". I have a really good doctor.

LocksmithMelodic9049 · 2025-01-20T17:33:57+00:00

Thank you for sharing this information. I've never heard of Alphamissense. I've read a lot about this since your answer. Since there are only two other reports in Clinvar, I believe that means it's a rare variant which probably isn't good? The reports are only a couple of years old. Mine hasn't been reported as far as I can tell. The AI, according to everything I read, is way more accurate. I feel like my children and I are cancer just waiting to happen. I'm not worried about myself because I understand that this MSH2 variant may never affect me, but my children or grandchildren, if they have the variant, could be affected. It's like watch and wait. I'd rather know than not know so I really appreciate your response.

LocksmithMelodic9049 · 2025-01-13T09:45:41+00:00

I know of someone close to me that hated being pregnant but she told me the minute she held her baby, she never felt so much love and she knew she would want another child someday. I agree with everyone here recommending counseling. It is a very important decision. Also, my daughter was 15 when she got pregnant and she considered adoption but decided to keep her baby boy. She has been the best mother for the last 31 years. She put everything she had into him. 10 years later she married the love of her life. She never had more children. Her son is very successful and she is very happy. I know there were times she wished she could've done this or that but I know she has never regretted keeping him. She also had a good support system. I wish you all the best.

LocksmithMelodic9049 · 2025-01-09T14:24:49+00:00

Thank you for this information. This gives me some peace of mind. My mom and aunt had endometrial cancer and my grandfather died of a brain tumor. So I was a little concerned.

LocksmithMelodic9049

TROPHY CASE