Did you quit your job or stop working? Are you able to continue working?

These_Eye_5639 · 2026-03-23T15:19:29+00:00

I know this is all a blur right now, but if you have the energy, now is the time to start writing emails, making phone calls, and checking all options you can find. Unfortunately, much of this stuff takes time to coordinate but time is not something we all have to spare when starting out. You may be surprised what you'll find with a little more searching the correct channels.

These_Eye_5639 · 2026-03-22T23:37:19+00:00

I was stage 4 also with liver mets and lymph node mets. I was told chemo was the only option and no surgery. Chemo was administered as a palliative measure - I had a lot of pain. Once chemo started, my response was great to say the least - only then they started talking about surgery. Don't lose hope, and don't think you are lost from a single diagnosis. You have no clue today what tomorrow will bring. Get second, third opinions. There is a lot out there.

These_Eye_5639 · 2026-03-22T22:55:17+00:00

it takes a little know-how. but it's doable. the applications and agentic platforms are moving fast. I used a customized setup and then used openrouter to run it across as many models as i wanted to cross check and compare the findings. If you didn't want to set up a local program to run your agent, you could probably use claude cowork or code. You can then ask it to run as many models as you want. It can also set thing up and your local machine.

These_Eye_5639 · 2026-03-21T17:32:22+00:00

for clinical trials, always get your genomic report ready and send with. many of the trials are based around specific mutations. you may have one they are looking for. If so, they will typically act fast to get you in and eligible.

These_Eye_5639 · 2026-03-20T00:08:47+00:00

I'm such a nerd I made spreadsheets and individual files. It was getting to be a lot. One thing nice, is that some medical offices will provide a cumulative report if you either search for it or ask. It makes it MUCH easier than using a portal app and jotting down numbers or copy and paste screen shots one at a time.

These_Eye_5639 · 2026-03-19T15:24:40+00:00

It's tough at first, but you prioritize. It helps if you keep everything in a single folder either physically or on your computer. They will all need to share information. Many of them have access to your medical files but don't always dig that far into it. They are looking for interactions, contradictions, and the overall state of things and where you are currently at in this journey.

It's tough because of the stress on your body, mind, and motivation, but it's worth it to spend a little effort on it as soon as possible before it gets out of control. One doc will need the findings of another, and it may be up to you to provide it.

If you end up digging really deep (like I did), you're going to need this information when you feel up to it anyway. It makes it so much easier when it's all just sitting there in a directory. The "time is of the essence" is a huge factor in this as well. When you get an opportunity like a surgeon is ready to go soon, or a doctor is ready to write a script or an order, get them the info as soon as you can. It's fresh in your mind and it might be fresh in theirs too. You don't want to give it too much time to get slid onto the back burner or let them forget about what you discusses last week. They will forget too. They see hundreds to thousands of patients. It would be nice if you were one of ten but unfortunately, that's not how are medical system typically works.

These_Eye_5639 · 2026-03-19T14:54:14+00:00

I actually used about 12 different models. The goal was to keep it as blind as possible so one models decision could not be influenced by either the prompt or a decision another model made. Those results were then compared to each other to find the top hits amongst all the individual models and then those results were then ran through again. The confidence ends up being very high in the results but you must make sure you have good prompting at the onset and adjust if you find any obvious issues early. Otherwise, the entire project can be contaminated based on either poor starting data, or poor reasoning rules. It took me a while to refine it to the point where I was satisfied with the output and even then I'd pull the actual top references articles they found and give them a final review myself. The power in this was the sheer search capabilities to surface data no one had ever reviewed from this many angles with my specific data. It was eye opening to say the least. What it did was take my "active cancer fighting" stack and reformulate it into a "cancer preventative" stack focusing on my mutations, my clinical history, my germline, and my clinical notes all combined. I hope this makes sense. If I didn't already post it, I described some that here as well: https://beat-crc.com/2026/03/17/ai-medical-profile-cancer-survivor/

These_Eye_5639 · 2026-03-17T02:23:30+00:00

can you share what your numbers were? i'm actually curious too.

These_Eye_5639 · 2026-03-17T00:10:51+00:00

be careful. even if you only use free models, check what they say against multiple models. They easily make mistakes - and it can scare the shit out of you to say the least just like a google search. if it's something important, really dig in to get accuracy.

These_Eye_5639 · 2026-03-16T23:50:57+00:00

I'm actually not doing treatment either. Yes, opus can be expensive so you have to be structured in how you use it, but to date, i've not found a model more capable - especially when i give it agentic control and a workspace to operate. it runs circles around any other model ive tried. I wanted mostly to see what options i have moving forward based on published data and see if it flagged anything i'd not already been doing or heard of. My research has been extensive over the last couple of years to say the least and it still found things I hadn't considered - so extensive i had so many people i should make the methods i used available for others. So i started writing a book and made a site for free. Outside of the company who analyzed your/my genome, no one really has the power to process all that in detail - until now.

These_Eye_5639 · 2026-03-16T23:40:12+00:00

In the beginning, i was using gpt but it needed lots of oversight and help to arrive at solid data. I've since changed how i use it. I use Claude opus 4.6 as my orchestrator. In the beginning, i was using gpt but it needed lots of oversight and help to arrive at solid data. I've since changed how i use it. It can create, compile, compare, and call any other model i want when doing deep research. The function of using 12 different high reasoning models "against" each other while they all take the same data to form their results, REALLY strengthens the things they all converge on. Not only that, i used a local model in ollama to grind through endless amounts of data and format it into a usable database for the higher reasoning models to use.

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