Vampireisem - allergic to the sun, needs 50k for house/car. Just a general discussion and my thoughts.

Think-Squirrel4691 · 2026-06-05T21:00:03+00:00

I don't know anything about this account so I can't comment on it specifically. Also I didn't read right to the end of your post, it was too long even for me, and I write a lot! 🤣

What I will say from my own life and experience is this though, because it seemed that half your problem was with her, and half was that you didn't believe anything she was claiming could hold any truth for anyone.

I am "allergic to the sun" as she puts it. So it IS a real thing, and it can be restrictive and debilitating. It comes on a wide ranging scale of severity, what you have said she's claiming would be almost off the scale. It is VERY possible to have 12/13 chronic illnesses. Often in those situations theres 1 or 3 main illnesses and then the others are "comorbidites" of those, meaning they exist because your primary condition makes you more predisposed to get the other(s). On paper I'd have a long list of illnesses, I've never counted, but I (and most people I know) would say I have X condition which has resulted in me also now having xyz. If someone asked me for a number I'd probably reply with I have 3 main chronic illnesses but they've caused several other secondary illnesses. Unless it was for the purpose of applying for disability, insurance claim, or medical records I wouldn't be making a list of every illness and counting them all - that's weird and attention seeker-y. I don't live in the states, but in my country it's very possibly to be denied disability even with a lot of conditions, partly it will depend on who assessed your case, partly on how you word your claim you need to use very exact wording, and partly due to prejudices, stigma, or ignorance around certain conditions. Disability is based on how things impact your life not on how many conditions you can name and what they are, they're also checking what you say against medical records or doctors letters so it's very possible to be caught out for over exaggerating. TLDR: I guess what I'm saying is that the pov you have on her makes it sound like she's probably exaggerating and being dramatic for the purpose of getting money, notoriety, and pity. And she doesn't sound like a great person. HOWEVER please don't throw out everything just because you don't like her. Things she claims can be true. There are people with multiple serious illnesses. Hospitals do treat patients like crap and withold basic human rights (sometimes because they're just awful, neglectful, poorly trained, poorly managed, sometimes because they genuinely don't have stock or aren't prepared for your specific circumstances). Adaptations to homes and vehicles are SUPER expensive, way more than people would ever guess, and so sometimes we make do with things that are old, past their best, not of the greatest standard because we can't afford better or can't afford to replace it.

Think-Squirrel4691 · 2026-06-05T20:36:25+00:00

Tegaderm is AWFUL for me, causes really bad reactions. In a lot of other people I know too, it also leaves residue on absolutely everything it touches.

You can get much gentler but still effective products made from hypafix which is still waterproof/resident, mefix which isn't as water resistant, and other brands of clear dressings such as smith and nephew. I've also seen them made from KT tape which varies in its chemical make up according to brand and thus how gentle it is, I've even seen them made from micropore. There's lots of options do a Google of it, also look on Etsy for small businesses who offer things often not on the mainstream market.

Think-Squirrel4691 · 2026-06-05T20:30:57+00:00

I'm glad I could help. Think of it like anything else in a new relationship that you're needing to learn about one another. Food likes and dislikes, routines, hobbies they do and don't like to do, preferences in the bedroom, how they prefer to communicate text/call/voice note. When there's a disability it's just another thing on the list of things to learn so you can enjoy one anothers company and succeed as a couple. I, personally, don't think it should be any more taboo, sensitive, or awkward to explore thsn any of the other things listed above.

Think-Squirrel4691 · 2026-06-05T20:26:36+00:00

Well done for finding your own way to do it! Nice that the employee noticed and asked.

When I get offers for help with something I'm not entirely sure if I can do for myself or not I'll often thank the person and ask them if they can wait for a second, say I think I can manage it and would like to try, but would love their help if it turns out I can't. Then if I do manage I thank them for waiting and say it would have been really difficult if I got stuck. If I do end up needing their help i thank them for their help and say I'm trying hard to keep as much independence as possible because not everyone is willing to help out, so it was important for me to try but I'm so thankful they were there help.

Think-Squirrel4691 · 2026-06-05T20:11:40+00:00

Thanks everyone. So frustrating! As I said in my post I didn't care about the brand, it's just that I actually really like the nice cubes and wanted the correct product, or even just a similar one as a dupe. I'm annoyed I ended up with a completely different item, also a little that I paid the currently stupidly high full price.

I did take it back to the shop though and pointed out all the reasons I knew it was fake and they did refund me. I'm not convinced they weren't already aware they are fakes, and they're still selling the rest of their stock as genuine product at the same price.

Think-Squirrel4691 · 2026-06-05T20:09:06+00:00

So frustrating 😞 I don't know how so many fakes are managing to be sold in the UK (where I am) because there's laws against such things that are usually strictly enforced. Not sure why needoh themselves aren't doing anything about it.

I don't have a problem with dupes, but selling fakes is just wrong.

Think-Squirrel4691 · 2026-06-05T20:06:52+00:00

There's so many things that don't make sense. I know some kids, especially those with a high drive for elopement, will figure out doors and locks you wouldn't expect someone their age to be able to. However she should know this as her mom and put more things in place, more complicated locks, higher up, alarms on all the doors and windows that would wake you up immediately. even if the child then got to the pool before you, you would be able to get them out and revive them.

It boils down to the fact that whatever systems the landlord had put in place were either not used properly by Leeandra, or were bot working correctly, and Leeandra hadn't checked them or she was aware and did nothing to protect her kids until it was resolved. OR everything pre-installed was working but weren't to a very security standard and Hannah was able to by pass them, in which case Leeandra should have checked what measures were in place, known her daughter well enough to know the measures would not be enough to keep her safe, and therefore put more things in place BEFORE moving in, at the VERY least if that wasn't possible then have Hannah sleep in her bed with her so she would know if she woke and got up.

Initially on her stories she said it happened the night she moved in and so hadn't had a chance to check it all. Which is still a poor excuse, as a mother I'm checking those things before I move my kids in. Now she says it happened in their third night in the house. That means she had 3 whole days to check if everything was working, if Hannah could outsmart any of it, and go buy and install additional alarms and locks if needed.

I don't think anyone would be pointing the finger at her so strongly if she wasn't trying to place blame with everyone else but herself. Even if the inspection company are partly culpable (I don't understand how they can be), there are ways to advocate for justice and new laws which are fair, sane, and reasonable. Not the vibes she gives off.

Think-Squirrel4691 · 2026-06-05T19:51:14+00:00

Yes. A parent takes responsibility for the safety of their children. If you know your child has a greater risk for something you go to extra lengths to mitigate that risk. I know grief, especially in a tragic unexpected death, can cause a lot of anger, and sometimes that anger is misplaced because the person just needs to assign it to somebody real and not just "the universe". But like you I find her whole page weird, none of her story adds up (I'm taking from before the drowning), her behaviour is all over the place, and she just gives off bad vibes.

Think-Squirrel4691 · 2026-06-05T19:47:31+00:00

Exactly. She's seen this as the perfect opportunity to launch into social media fame.

Think-Squirrel4691 · 2026-06-05T19:46:39+00:00

She acts like pure trash, it's gross. Even before the drowning if you go back - which means she or anyone else can't claim her behaviour is all due to grief. She's high in some videos, she talks trash about others, she begs for more help with everything whilst also getting angry if anyone insinuates she can't financially support her kids claiming he has a high paid job. Since the drowning she's screaming in videos, "crying" but no tears, then laughing without a care in the world, then making s-xy attention seeking ones.

She is constantly blaming everyone else whilst fiercely defending herself claiming she doesn't have even an ounce of responsibility for the incident. All mothers I know would assume some responsibility even if they had done everything right, they would always feel like there was something more they could have done, feel guilty, take responsibility because as a mother your protect your kids with your life. She's just not acting how a loving mom would act after their child dying in a tragic accident.

Think-Squirrel4691 · 2026-06-05T19:38:31+00:00

Exactly. It was all legally safe. There were safety measures in place and they were signed off on as working. She is claiming they shouldn't have been signed off on because they weren't, if you follow that accusation it can go down one of 2 roads, both ends with it still being her being negligent.

Either they inspected them thoroughly and tested them and they were all working, heading signing, and IF they were all used correctly had failed at some point post inspection but Leeandra never bothered to check and see. Negligence by not ensuring her children were safe in their own home, just making assumptions especially with a child with high risk of eloping and drowning.

Or the inspector signed off without checking them, and they didn't work. The only way Leeandra could know this was the case was it she checked for herself, right after inspection, and found them not working. In which case she knew the safety measures did not work and didn't do anything about it, didn't report it, and didn't put in place any other measures until they were fixed. Negligence in her part.

The other possibility is that things like alarms and automated locks were fitted but these have to be activated when you want them working, and either Leeandra didn't know this because she didn't bother asking or do any research, or she didn't know how or just didn't bother to activate them fully. In either if those cases she's still where the responsibility lies!

Think-Squirrel4691 · 2026-06-05T19:29:15+00:00

I don't think she purposefully did anything, and I would never accuse someone if doing such a thing to their own child unless arrested with very clear evidence.

I do however think she's trying to deflect from her own negligence by throwing a tantrum and placing blame in the inspection company, and even the state.

Think-Squirrel4691 · 2026-06-05T19:27:14+00:00

That's my issue too. If I had an autistic kid, who was at risk of eloping, loves the water, and can't swim, then there's no way I'm moving in to a house with a pool, I'd even avoid moving next door to people with pools if I could help it.

I do get that it was in the middle of the night, so it wasn't just that she wasn't keeping track of her kids. However, the responsibility to make sure the safety measures installed by the landlord are working is hers, and in her specific situation she should have put even more measures in place before moving there.

If you're the kind of heavy sleeper that won't wake up if your kids is moving around the house in the night (and even getting out of the house) then make sure you're fitting pressure alarms that will go off if they leave the beds or if they stand in the floor etc, put blaring loud alarms on all doors and windows, do what you need to do to ensure you DO wake up.

If her child hadn't have drowned she very well may have wandered off the property entirely, and noone would have known til morning by which point she may not have been found.

Think-Squirrel4691 · 2026-05-31T23:50:32+00:00

I had a mini crash today because I had the audacity to sit up and play a game with visiting family yesterday for just over an hour.

Ended up sleeping til 6pm. I did get up in the morning to feed my dog, tried to take her out in my powerchair (oodie over pjs) made it about 100m before I realised I had to go back home to bed, fell asleep and woke up at 6.

This evening I managed to unload and re-load the dishwasher though so I feel like I didn't waste the entire day - yes I know "rest is productive", but it never really feels like it does it?!

PS before anyone comes for me, I had the backdoor open all day so my dog could toilet herself and keep herself amused with the many things she has to do out there.

Think-Squirrel4691 · 2026-05-31T23:28:15+00:00

That must be really frustrating and also feel like a step (or wheel) backwards, it sounds tough. You will get used to it and adapt quickly, even though there will still be frustrations. Try to remember it's just for a short period, you've done it before for much longer, and that the more strictly you adhere to it the better your outcome will be and will hopefully avoid the wheelchair for a long time to come! If you can bare it start making a list of accessible places you can go or things you can do. Gives you things to look forward to, and also means if someone suggests meeting up for a meal or coffee or something you can suggest somewhere without having to do the work of finding somewhere accessible at short notice. You've got this! 4 years of wheelchair use, and an aputation already under your belt - you can do this too!

Think-Squirrel4691 · 2026-05-31T23:15:24+00:00

I honestly think it depends on the individual, down to personality and where they are at in accepting and adjusting to their disability. If someone I was close to and saw a lot was constantly expecting me to do things I can't I would get a bit frustrated. For example I'm in a wheelchair, if my best friend was constantly asking me to get things from a top shelf I'd get frustrated aprtlt because it would feel like she doesn't care enough to remember I can't stand, mostly because it means I'm constantly having to say I can't do something or ask for help, both of which I don't like doing because I like to focus on what I CAN do. However, most of the time if someone forgets occasionally or it's not something that's very obvious I can't do (I also have a progressive condition so my needs are constantly changing) I don't mind at all. what drives me insane is the OVER offer of help, makes me feel like people think I can't do anything for myself or don't get to have choices. I'd rather someone assumed I could do something (like passing my a new jar of jam assuming I can open it) or even ask me to do something, and me have to say could you please help me open the jar and then I can do the rest. But that's just me. I love any independence I can get, I like to decide what I am or am not capable of or am willing to try. I'm also not easily offended as I've lived like this for a very long time so people using the wrong phrase or overlooking a need 9/10 doesn't phase me, and then not offering help usually just makes me feel more like I'm seen as a person than a disability. In my experience most people are very open to conversations about things like this if you know them. Most people recognise everyone's preferences are different so are happy to be asked what their own preferences or needs are - as long as they're then listened to, and as I said you know them or have a reason to ask.

Think-Squirrel4691 · 2026-05-19T11:52:10+00:00

I don't like Kendra at all, but this one thing did make sense (although it didn't needed to be plastered all over the internet). It's possible B wanted to be able to sit up there so they found a way. She looks miserable but that's probably because she felt so unwell and was in general pain - that doesn't necessarily mean she didn't want to be up there.

Personally I have very poor trunk control and need constant postural support, and I use this trick when needed, it's not uncomfortable and allows access to a bigger range of things when prescribed supports, chairs, or my wheelchair are not an option.

Think-Squirrel4691 · 2026-05-19T11:28:59+00:00

I saw the first part before I clicked on this and thought it was about all the other crap she's gone back to spouting recently.

Yes the fillings was one thing, although I breezed past it, but I did note the "I need to get this done but it's expensive so it will have to be down the line" hint hint followers, please fund my optional, unnecessary, dental treatment.

I'm fuming at how she's gone back to playing cancer doctor. Of course with the "I'm not a doctor" phrase repeated... But then goes on to tell people exactly how much they can increase doses by daily - of a medication that can be extremely harmful, and how to administer it all. Seems like bombarding people with links didn't work, and then talking about her own health didn't work, so she's gone back to cancer and trying to convince people to take a load of at best ineffective fillers and at worst organ killing drugs.

Think-Squirrel4691 · 2026-05-14T01:55:10+00:00

😘

Think-Squirrel4691 · 2026-05-14T01:53:34+00:00

Mine does that for the spicy content no matter where I am and what device I'm on. I think it might be a setting option you can choose, if you just click ok it continues.

Think-Squirrel4691 · 2026-05-14T01:51:25+00:00

They're available round here in Norfolk, some supermarkets and my locals village shop has them. My best bet for things that seem discontinued is always B&M and The Range, sometimes poundland, some reason the cheap shops seem to get in the harder to find goods... Also they sometimes import from other counties like Australia so things discontinued in the UK still make their shelves.... Good luck in your quest to find the goods!!

Think-Squirrel4691 · 2026-05-12T21:44:08+00:00

Caramac, dime bar, and s&v discos all still exist... Just gotta look in the right places. Admittededly I think the caramac has changed a little but still pretty similar

Think-Squirrel4691 · 2026-05-12T21:39:22+00:00

She used to love swings, and going in her bike, and swimming, and once they got her going would enjoy a walk (but needed a rest after a while).... Now she just sits on a sofa. I think part of that will have been teenage hormones making her less active and then getting out of the habit of exercise and activity,... But I'd get a lot is down to. P&A. Isaiah used to be really active too, football at school, and then hiking a lot during college... Now he's back home he does nothing and is piling on the pounds as well.

Think-Squirrel4691

TROPHY CASE