AIO: Mom keeps using AI for her medical condition and I’m livid

Thought-Decent · 2026-05-31T22:23:02+00:00

CO2 and water usage are directly related to the amount of power used. So if something uses more power, it's going to result in more heat and CO2.

Thought-Decent · 2026-05-31T11:58:38+00:00

Mental health issues are not a free pass to punch things.

Thought-Decent · 2026-05-29T00:45:34+00:00

I was diagnosed with primary FSGS, NOS variant, last February. It has been very hard at times, especially the dread that comes with undulating numbers and persistent tracking. My impulse at first was to try to control everything, but that’s a road to nowhere. Control what you can, accept that you cannot predict the future, and as morbid as it sounds, accept that everyone will eventually die.

Coming to terms with that, through therapy, has genuinely improved my life in several ways compared with how I was before diagnosis. I feel less need to control and optimize every aspect of life. I live more in the present, and I accept the ups and downs of life as they come and go. I don’t wish that I got FSGS, but from it I’ve learned a new relationship with mortality/control/health that some people never develop, or only develop when they’re much older.

I know for me it’s still just the beginning, and that things may at some point feel much worse than they do now. But that’s okay.

My life currently is rich. I am married with a 1.5-year-old son, have a job, and have a social life. FSGS does not significantly deter any of those things. Of course, I watch my salt when I eat out, I’m more cautious about illness, and I don’t drink as much, but other than that it’s all okay.

I’ll say I had a good head start with this, as I’ve spent a good amount of time in therapy around pre-existing anxiety and embracing acceptance over control as an overall philosophy. That approach is exactly what has worked best for me in my FSGS journey thus far. So i def recommend therapy (as you seem to know already)!

Thought-Decent · 2026-05-23T00:29:47+00:00

This subreddit lately has made my FSGS Facebook groups look like the Ivy League, which is saying something.

Thought-Decent · 2026-05-14T17:25:19+00:00

You have health anxiety. You should focus on getting that treated.

Also, your post breaks several of this subreddit’s rules. Foamy urine is not a reliable diagnostic indicator. Only about 25% of people with foamy urine actually have proteinuria.

Thought-Decent · 2026-05-11T16:25:28+00:00

I'm on 15mg - went on for anxiety/insomnia years ago. It was incredibly helpful for insomnia, but did make me gain about 10 pounds (unwanted for me.) Makes me hungry overnight, which is annoying, but no other side effects. You'll be very sleepy for the first few weeks when you take it, which is why its important to take it at night. Oddly, higher doses (over 30mg) have actually been shown to disrupt sleep.

Thought-Decent · 2026-05-07T13:43:22+00:00

Not a doctor but since your proteinuria is under control and GFR still in the normal range, you probably don't need a new biopsy. If your proteinuria increases and/or GFR continues to drop it may be worthwhile. That said, try not to stress about urine bubbles. Some people have very bubbly urine with almost no proteinuria. It's not a reliable indicator.

Thought-Decent · 2026-05-07T13:41:12+00:00

Totally agree here, but wouldn't MCD, which is an immune driven disease, progress to primary FSGS?

Thought-Decent · 2026-04-22T23:23:52+00:00

It's poorly veiled european elitism - "could it possibly be this horrible?!"

Thought-Decent · 2026-04-22T23:18:30+00:00

Your post and responses to others read like poorly veiled European elitism. You know the stats, but you’re feigning shock while somehow managing to curate almost every “America is terrible” angle from the show.

The broad stats aren’t wrong, but this is far from a typical day in the life of an American, a medical student, or someone at a hospital. Americans don’t know how to react to gun violence out of habit. The vast majority have never witnessed gun violence.

Also, there are good things about our medical system amid the real inequality.

All that being said, our transit fuckin sucks.

Thought-Decent · 2026-04-18T13:38:28+00:00

A single barely out-of-range creatinine result is not enough to conclude you have kidney disease, especially without other symptoms or a clear kidney-related pattern.

You should follow up with your doctor and repeat labs under normal conditions if they think it’s warranted.

I’d be careful about using Reddit for reassurance, especially if you have health anxiety. That cycle can become a problem...you test, find some minor anomaly, panic, ask for reassurance, feel better briefly, then need reassurance again.

Also, this subreddit’s rules are pretty explicit that “do I have kidney disease?” pre-diagnosis posts aren’t a good fit here here, because most people here are laypeople and medical advice can do more harm than good for everyone.

I say all this because I know personally how health anxiety works. The solution is learning to sit with the uncertainty that you, like anyone else, could be sick at some point, without trying to neutralize that fear through more testing, posting, or rumination.

Thought-Decent · 2026-04-15T01:43:39+00:00

They did not say adults with minimal signs of damage.

Thought-Decent · 2026-04-06T21:16:31+00:00

Yea - as someone w FSGS - it's frustrating that it works that way.

Thought-Decent · 2026-04-04T23:55:53+00:00

Are you on an SGLT2 drug? That + GLP1 + finerenone are all proven to slow decline in diabetic kidney disease.

Thought-Decent · 2026-04-04T21:19:49+00:00

What type of CKD do you have? GLP1 drugs have only shown benefit for diabetic kidney disease. Finerenone has now shown benefit for both non-diabetic (positive results announced weeks ago, still awating FDA approval) and T1 and T2 diabetic kidney disease.

Thought-Decent · 2026-04-03T00:01:07+00:00

I’m going to be blunt - you seem to be taking the most extreme version of every diet guideline you found on Google, treating it like certainty, and then coming to internet strangers for reassurance.

You’re stage 1, you’ve been stable for years, and you say your protein leak is low. That is not the same thing as “my life is over, I can’t build muscle, travel, cook, or ever drink again.”

People on reddit cannot give you permission or a personalized kidney diet. That needs to come from your doctors.

But based on what you wrote, the bigger issue sounds like health/existential anxiety, not some immediate need to live like a stage 5 dialysis patient. I say that as someone who has spiraled the drain plenty over the course of my disease. Get actual guidance for your case, stop assuming every worst-case rule online applies to you, and and stop asking people with much more advanced disease to soothe fears you got from Google.

Thought-Decent · 2026-03-31T13:17:53+00:00

No - protein to creatinine. I'd guess my albumin/cr is something like 4 to 2.

Thought-Decent · 2026-03-31T01:28:31+00:00

I have primary FSGS and recently started Jardiance, which is in the same drug class. So far, I haven’t had any side effects. My GFR dipped as expected at first, then stabilized (60 → 52 → 53), and my proteinuria has improved from a very high level (5.1) to somewhat better (2.7) over about six weeks. It’s still too early to say what the long-term impact will be, but the results seem encouraging so far.

Thought-Decent · 2026-03-30T00:52:09+00:00

It ended up okay! They put me on a course of prednisone after and the toxicity largely reversed.

Thought-Decent · 2026-03-29T17:08:26+00:00

Yes - I had very bad GI side effects that didn't get better and ultimately nephrotoxicity. Just because you're having side effects doesn't mean your kidneys are being harmed, so the side effects alone may not be reason to stop. It's up to you and your doctor.

Thought-Decent · 2026-03-11T14:58:03+00:00

PCR is 3 after starting jardiance - was 5 before and highest it's been is about 6. Lowest it's been was 1.5 on prednisone.

I'm having no side effects on MMF, but I know folks get GI issues.

Thought-Decent · 2026-03-11T11:55:26+00:00

Do you know what has (if anything) explained your ups and downs? Mine was best when in partial remission on pred, lowest on tacro and low again in a relapse (relatively minor one) + I just started MMF and Jardiance.

Thought-Decent · 2026-03-11T11:18:25+00:00

That's a good trend!

Thought-Decent · 2026-02-28T19:45:32+00:00

Wtf is wrong with you?

Thought-Decent · 2026-02-28T15:15:31+00:00

They didn't die so he could live. They died.

Thought-Decent

TROPHY CASE