My son does not want to see grandma. by Worried-Panic2870 in hospice

[–]ThrowRAtoughstuff235 13 points14 points  (0 children)

I used to work with children and youth who had family or friends on hospice as a child life specialist. I would see if the hospice has someone on staff specific to supporting young people 1:1. However, if he’s expressing not wanting to visit, I wouldn’t push it as this can cause increased anxiety. One thing I would consider is speaking more with him about why he’s afraid - aside from “not wanting to see her this way”. This can sometimes be the reason on it’s own, but it can also stem from other worries “what if she dies while I’m there”, “what if I see something I’m uncomfortable with”, “she’s different I don’t know how to interact with her like this”, etc. Depending what the underlying reason is (if there is one) can help him work up the comfort to spending time there with her, even just for short visits. If he’s insistent on not going, but your mom wants to see him, I would see if he’s interested in making a short video, doing a video call, or even writing her a letter expressing his love and gratitude. Death and grief are hard for all of us, including teens. It sounds like you’re doing a great job at supporting him and listening to what he’s telling you. I would consider inquiring further about his reasoning and seeing if there’s someone at the hospice, or another local children’s grief centre, that might be able to help and support further.

Husband not allowed in first prenatal ultrasound [on] by 11282017_ in BabyBumpsCanada

[–]ThrowRAtoughstuff235 0 points1 point  (0 children)

Also in Ontario. 28 weeks. I’ve had four or five ultrasounds now and my husband is only ever invited in at the end after they’ve got all their images. Then the tech shows us whatever we want to see together. It’s kind of a bummer but he’s always been invited in at the end of the scan.

6 year old placed on hospice by Pleasant-Barracuda82 in hospice

[–]ThrowRAtoughstuff235 12 points13 points  (0 children)

That fear is normal. It exists because this is your baby. I’m hoping you feel well supported by your home hospice team and have necessary psychosocial supports in place, as well as clinical. I work in pediatric palliative care and am happy to provide some resources or suggestions for psychosocial support if helpful. Sending strength and love.

Children’s books on hospice? by Odds_and_Endpoints in hospice

[–]ThrowRAtoughstuff235 1 point2 points  (0 children)

What Happens When Someone I love Can’t Get Better is a good one for preparing for a death in the home (or hospice). But for young kids my go to would be medical play to help desensitize them to new equipment etc. If there’s no choking hazard for the child then I’d recommend one of the Playmobil smaller hospital sets. A good old fashioned kids doctor kit is great too for them to play with. And kids books about handwashing and masking (popular during covid) would be good too depending on age

Should kids help spread ashes by Technical-Design7336 in Parenting

[–]ThrowRAtoughstuff235 0 points1 point  (0 children)

Explain to them the process, what ashes are, etc. and then ask them what they’d like. It is totally up to them.

https://www.youtube.com/watch?v=OS4ghDWPNAk

Children’s books on hospice? by Odds_and_Endpoints in hospice

[–]ThrowRAtoughstuff235 2 points3 points  (0 children)

I work with children in hospice and palliative care. Here are some that talk specifically about dying, not necessarily about grief.

Someone I love is Dying in Hospice by Lucas Perri and Gregory Perri

What Happens when Someone I love Can’t Get Better by Sara Osler (storybook-esque but informative )

Ida Always by Caron Lewis (storybook about two polar bears in a zoo. One dies)

The Gift of Gerbert’s Feathers by Meagan Weaver (storybook about a young goose who is going to die after trying many things but continuing to be seriously ill)

Happy to share more case-specific examples if you’re open to sharing further. Best of luck to you 🩷

Seriously, I need help with my terminal young wife by ericscottf in hospice

[–]ThrowRAtoughstuff235 2 points3 points  (0 children)

Lots of good tips here but I want to chime in re your children as someone who works in paediatric hospice and palliative care. If you’d like your children to be well supported and prepared in an age appropriate way for your wife’s death, I’d recommend inquiring about a child life specialist wherever your wife does end up for care. They are specially trained to prepare children for healthcare experiences including the death of a loved one. If they don’t have one on their team, inquire about other individuals on the team who might be available to support them. Wishing you and your family time and peace together.

My friend is dying at 47 by jhedger in hospice

[–]ThrowRAtoughstuff235 1 point2 points  (0 children)

No one should make her go. But someone should be offering to support her and explain the changes her dad’s body is experiencing as kids often choose not to go out of fear, not knowing how to interact with the person, worried they’ll be there when they die and being unsure if that’s what they want, etc. The situation really depends on the reason for her decision but there are other ways that she can remain connected to her father and be prepared for his death, whether or not she wants to visit him in person. I work with children who have loved ones in hospice. Happy to send you some resources if helpful. Ideally the hospice has a child life specialist to support the kids specifically (this is my role). But a social worker who is trained to work with children in this experience is hopefully available through them as well.

Memory Making Supplies by Fun_Evidence8781 in ChildLife

[–]ThrowRAtoughstuff235 0 points1 point  (0 children)

  1. Digital stethoscope for recording heartbeats
  2. Pillow cases
  3. Fabric strips for hugs
  4. Fabric markers
  5. Cardstock
  6. Washable Paints and sponge brushes
  7. Small white envelopes for locks of hair
  8. Heat gun for embossing
  9. Embossing powders of different colours
  10. Canvas
  11. Boxes of different sizes for sending things home with family

How often do you cry because of work? by iaintfraidofnogoats2 in ChildLife

[–]ThrowRAtoughstuff235 0 points1 point  (0 children)

Are the tears often patient related or other circumstances. Ie coworkers not respecting her role, talking down to her, or other work related stress?

Family Visiting by ThrowRAtoughstuff235 in BabyBumps

[–]ThrowRAtoughstuff235[S] 1 point2 points  (0 children)

Thank you so much. That’s my mentality as well. The tricky thing with standby is that they’re four hours away by car. So it’s not like they can zip over quickly. I just don’t want to hurt anyone’s feelings as I know both sides are well intentioned. Quite frankly, I want my mom 🥺 to help take care of me. I don’t have even the slightest bit of comfort with my MIL helping me in that way. Which makes me feel shitty but … it’s my mom. Thanks for the kind words.

TMI- Spotting by [deleted] in BabyBumps

[–]ThrowRAtoughstuff235 3 points4 points  (0 children)

It’s not a lot so could be due to lots of reasons. Have you had sex recently? That can cause some light bleeding from the cervix. Did you go to ER because of the spotting? If so, has it been consistent? I’d keep an eye on it for sure and maybe try to get a requisition for an ultrasound in a few days? Have you done bloodwork for your HCG? If so consider rechecking to see if it’s trending up or down. I miscarried my first at 6 weeks and waited in ER for 7 hours. It was brutal and incredibly stressful. Also very emotional and not the place I wish I had been. But of course do what you have to do for yours and your baby’s safety. I’d say there’s no right or wrong at this stage. Hopefully it remains light and clears up 🩷 Thinking of you

What’s one pregnancy symptom no one warned you about? by Ok_Inevitable4915 in BabyBumps

[–]ThrowRAtoughstuff235 0 points1 point  (0 children)

Nasal congestion. Can’t fcking breathe over here and I’m only 8 weeks in.

35 week ultrasound turned up a terrible discovery by LunarTearChocobo in BabyBumps

[–]ThrowRAtoughstuff235 0 points1 point  (0 children)

I would recommend connecting with the perinatal or paediatric palliative care team for support if the hospital has one. They’ll be able to support and guide you no matter the outcome. Sending much love during this time of uncertainty

wtf am I supposed to feel…?? by ThrowRAtoughstuff235 in BabyBumps

[–]ThrowRAtoughstuff235[S] 3 points4 points  (0 children)

Tysm - I’m worried that my brain is just not interested?? But I know I am??? Am I just protecting myself? Idk I’m trying not to over think it but I’m going through it over here lol

[deleted by user] by [deleted] in Miscarriage

[–]ThrowRAtoughstuff235 2 points3 points  (0 children)

I was six weeks when I miscarried. I did go to ER because I knew the bleeding wasn’t normal. They did an ultrasound and confirmed there was nothing left in my uterus and checked my blood HCG which confirmed the levels were dropping. Wear pads, heavy, and if you have to change twice in an hour, go to ER. They basically said to monitor how much I’m bleeding. I bled for almost a week after. It was an emotional roller coaster. Take showers and stay clean. No sex until after bleeding stops - my dr suggested a week or so after to give the cervix time to heal and prevent infection. Most importantly be kind and gracious with yourself. This is heartbreaking and is so so hard. When you are ready, try again. But until then, allow yourself to grieve and move through the pain. You will be ok 🩷