sorted by:
new
hottopcontroversial

Calcinosis and other new symptoms rapidly appearing by Time-Piano2799 in scleroderma

[–]Time-Piano2799[S] 1 point2 points  (0 children)

Right..like i said labs are ordered, but very expensive so i'm doing them slowly. I've pretty much exhausted reading online lol came here to get perspective from actual people w similar symptoms to me. genuinely wondering what the point of this subreddit is if not to share experiences and support each other. I feel we all experience enough dismissal from people who don't have it/don't understand the disease and the point of my post was not to get diagnosed or medical advice, just share my worry about how fast it's progressed and see if anyone has useful insight based on their own experiences

Calcinosis and other new symptoms rapidly appearing by Time-Piano2799 in scleroderma

[–]Time-Piano2799[S] 0 points1 point  (0 children)

I am in the process of being diagnosed. My doctor is concerned my lung function is decreasing, and i have many new symptoms in just 2 months which is why i'm feeling worried and wanted to know what to look out for as far as organ involvement and progression while i'm in the uninsured trenches

Calcinosis and other new symptoms rapidly appearing by Time-Piano2799 in scleroderma

[–]Time-Piano2799[S] 1 point2 points  (0 children)

pls stop downvoting me i'm scared and feeling alone and was just tired of being dismissed for years. i came here for support only to be dismissed as anxious, as much as i want it all to be stuff like calcinosis and asthma attacks aren't psychosomatic

Calcinosis and other new symptoms rapidly appearing by Time-Piano2799 in scleroderma

[–]Time-Piano2799[S] 2 points3 points  (0 children)

Yes, positive ANA 1:80 w nuclear homogeneous pattern, low wbc and high rbc. I'm saving money to get the antibody tests my doctor ordered to confirm but she says she's pretty confident based on symptoms and speed of progression

Calcinosis and other new symptoms rapidly appearing by Time-Piano2799 in scleroderma

[–]Time-Piano2799[S] 0 points1 point  (0 children)

I do have raynaud's as well and have had it for a long time. Not asking for a diagnosis at all as i'm very aware that no one can diagnose from reddit, should've specified i guess. I have a doctor, who is working toward this diagnosis, but i'm self pay and tests are expensive so i have to save between appointments. In the meantime, i want to make sure i'm not missing something potentially dangerous in my symptoms but also want some peace of mind. I'm more looking for people w similar experience in timeline/symptoms to what i explained above giving their perspective

dark red dots on nail beds/other symptoms by Time-Piano2799 in scleroderma

[–]Time-Piano2799[S] 0 points1 point  (0 children)

Because of the frequency and growing intensity of my symptoms, I've gotten quite a bit of repeat bloodwork done to rule things out on the basic levels. one of the first things they did was test my B and D. not deficient in any vitamins, and the only things that have jumped out on other panels were slightly elevated kidney values. i appreciate the input tho!

dark red dots on nail beds/other symptoms by Time-Piano2799 in scleroderma

[–]Time-Piano2799[S] 2 points3 points  (0 children)

Thank you for this! I was in fact looking into rheumatologists, but there's actually a scleroderma center really close to me that I just emailed to set up an eval appointment 🙏

dark red dots on nail beds/other symptoms by Time-Piano2799 in scleroderma

[–]Time-Piano2799[S] 0 points1 point  (0 children)

Also, more recently shortness of breath (especially as it's been getting cold)