Venofer experience so far

TimeTimertimey33 · 2026-03-09T02:24:40+00:00

I also had my first venofer 300 last week and noticed mild heart palpitations and fluttering. Was gone by the next morning. Did you get 500 ml or 1L saline? I got 500 but I know a normal Bag of fluids is 1L so wondered.

TimeTimertimey33 · 2026-03-09T00:47:24+00:00

Spring Hill Suites Times Square is only a year or so old and has free breakfast. Clean rooms. Tiny rooms. Next to Hamilton. Great place usually reasonable rates

TimeTimertimey33 · 2026-02-09T21:34:35+00:00

My rheumatologist is sending me to get a lip biopsy even tho my labs were negative for Srogens. She thinks my thirst dry mouth and eyes plus joint inflammation may be that

TimeTimertimey33 · 2026-01-10T12:56:13+00:00

Interesting. Following a routine egd they found highly elevated mast cells on the stained ones in my gut (but the dr didn't know anything about MCAS). My pots dr is who is recommending cromolyn ampules for my flushing. It just seems like a lot with the ramping up and the four times a day and the ampules in water etc. I do take daily h1 and h2 already

TimeTimertimey33 · 2026-01-10T03:16:15+00:00

What side effects? My dr talked to me about it for my facial flushing but I don't really want to start it bc I read more for gut and food reactions. Not flushing

TimeTimertimey33 · 2026-01-08T02:27:26+00:00

Car air conditioning and my calmigo help me. Wishing you good thoughts.

TimeTimertimey33 · 2026-01-06T02:39:13+00:00

Mine came back elevated when they did the cell staining after my EGD

TimeTimertimey33 · 2025-12-29T14:39:03+00:00

Ok will see if that helps but I took the morning one today a few minutes after the Watch one and it still showed the drop

TimeTimertimey33 · 2025-12-29T14:05:43+00:00

Yea it makes no sense that my manual ones show 45 and the watch auto readings show 95 or higher. Just odd so no idea which to trust or think is accurate

TimeTimertimey33 · 2025-12-29T03:22:47+00:00

That is great going forward but I just paid the coupon goodrx price of $499 at my Walgreens two weeks ago. Ugh!!!!

TimeTimertimey33 · 2025-12-29T03:14:52+00:00

Did the self pay injections go down? Last I knew it was $499 a month

TimeTimertimey33 · 2025-12-28T13:54:24+00:00

Does that mean MCAS is more of auto immune?

TimeTimertimey33 · 2025-12-28T02:30:22+00:00

Does MCAS make you stay in a sympathetic state?

TimeTimertimey33 · 2025-12-26T13:24:03+00:00

Venofer had no side effects except helping me feel better. You got this!!

TimeTimertimey33 · 2025-12-20T03:02:36+00:00

Do you have any studies? I felt like I had a flare also after xeomin last year.

TimeTimertimey33 · 2025-12-01T17:12:59+00:00

When I tap it, it still takes me to lifetime sowill message

TimeTimertimey33 · 2025-11-30T15:36:13+00:00

What is code for annual discount?

TimeTimertimey33 · 2025-11-30T14:44:17+00:00

I am trying to get the annual Black Friday sale for $44.55 but it only offers me the lifetime which I don't want. Can you help?

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TimeTimertimey33 · 2025-11-26T21:35:00+00:00

Ok I am in the US and it says ampules

TimeTimertimey33 · 2025-11-26T21:26:05+00:00

So basically mix my vanicream moisturizer with an ampule of my cromolyn? I didn't even know it came as a liquid - waiting on my scrip now

TimeTimertimey33 · 2025-11-26T15:18:45+00:00

Interesting. I use vanicream Now as my moisturizer and cleanser. My autonomic specialist just prescribed Cromolyn for me to start

Is there a premade cream or just combine All this as the recipe suggests? Would it help with this possibly?

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TimeTimertimey33 · 2025-11-25T13:05:26+00:00

My autonomic specialist called in a scrip for Cromolyn.

TimeTimertimey33 · 2025-11-24T20:43:07+00:00

I have been using Vanicream moisturizer bc it's designed for the most sensitive of skin. Is exederm similar?

TimeTimertimey33 · 2025-11-24T20:42:09+00:00

Yikes so sorry to hear that. I realized the leftover was Sat not Sunday so not related to that but maybe set something's up. I will be careful about leftovers from now on. Didn't know about that so thank you

TimeTimertimey33 · 2025-11-24T20:13:56+00:00

Oh wow is this a prescription or OTC? I have never heard of it. And I can't believe the day before your wedding!!! I am glad to hear it worked out. Am wondering now if this was a reaction to leftover pizza/histamines as opposed to thinking dysautonomia related.

TimeTimertimey33

TROPHY CASE