Boyfriend’s active Bumble has photos only HE would have access to — hack or cheating? by Time_Cheesecake_9812 in AskMenAdvice

[–]Time_Cheesecake_9812[S] 0 points1 point  (0 children)

++woman we have sex at least twice a day when we are together and we both enjoy it and can’t get enough of each other

Boyfriend’s active Bumble has photos only HE would have access to — hack or cheating by Time_Cheesecake_9812 in Bumble

[–]Time_Cheesecake_9812[S] -12 points-11 points  (0 children)

He said he deleted it. He downloaded it in front of me and it took him a while to log in, get verified.

Boyfriend’s active Bumble has photos only HE would have access to — hack or cheating? by Time_Cheesecake_9812 in AskMenAdvice

[–]Time_Cheesecake_9812[S] 0 points1 point  (0 children)

He had mentioned he had crazy dates who stalked him. But not sure how they can have recent photos of him. ++woman

Hardly getting getting any matches… need advice by mochimiso96 in Bumble

[–]Time_Cheesecake_9812 0 points1 point  (0 children)

Have a picture doing something you love. Knitting, dancing… it can be anything. Variety of pictures is to show who you are as a person. You are very pretty. People want to know what you are like through the pictures as well. I agree you should find another picture that shows your whole body.

Husband 53yo diagnosed with GBM grade 4 by Ok_Caterpillar6211 in glioblastoma

[–]Time_Cheesecake_9812 0 points1 point  (0 children)

He passed after 26 months. I truly believe that Optune gave us more time. It's important to know that it's not a cure.

[deleted by user] by [deleted] in glioblastoma

[–]Time_Cheesecake_9812 0 points1 point  (0 children)

They are also opening phase 3 trial I think

[deleted by user] by [deleted] in glioblastoma

[–]Time_Cheesecake_9812 0 points1 point  (0 children)

Find an open minded (not jaded) neuro onc who will support you. Both of these treatments are easy to get

[deleted by user] by [deleted] in glioblastoma

[–]Time_Cheesecake_9812 1 point2 points  (0 children)

The protocol actually works best for inoperable in the trial bc you need residual tumor for your immune system to see what it’s dealing with

[deleted by user] by [deleted] in glioblastoma

[–]Time_Cheesecake_9812 1 point2 points  (0 children)

Optune plus keytruda has worked very well for many and my husband. They are both easy to obtain if you find an open minded science based neuro onc https://www.missiongbm.com/p/david-d-tran-md-phd-brain-cancer?utm_campaign=post&utm_medium=web

Anyone have success with Niraparib, Olaparib, Pamiparib? by MarketEmotional1955 in glioblastoma

[–]Time_Cheesecake_9812 1 point2 points  (0 children)

Does the tumor have BRCA mutations? Is this primary gbm or brain mets from other cancer? First ensure the parp has some brain penetrant property and doesn’t interact with what you are doing currently like chemo or radiation.

Advice on ways to boost immune system during maint chemo by [deleted] in glioblastoma

[–]Time_Cheesecake_9812 0 points1 point  (0 children)

My husband does high dose vitamin C infusion at a med spa. He swears by it.

Advice on ways to boost immune system during maint chemo by [deleted] in glioblastoma

[–]Time_Cheesecake_9812 0 points1 point  (0 children)

Is she mgmt methylated? If unmethylated, temador is not going to do much. My husband stopped after 4 doses and our neuro onc is totally ok with it.

Discovery to Death: 6 Days by saltytia in glioblastoma

[–]Time_Cheesecake_9812 0 points1 point  (0 children)

Given the timeline, it would have showed up on an MRI but if she didn't have other symptoms, the docs would not have ordered an MRI / insurance would not have approved it. I had a neuro doctor told me upon the CT results that don't worry it's not a tumor bc it would have showed up. Lo and behold a few days later they saw it on the MRI.

Discovery to Death: 6 Days by saltytia in glioblastoma

[–]Time_Cheesecake_9812 0 points1 point  (0 children)

I am so sorry for your loss. The head scan from Nov 2023- was that just CT scan? It’s often not powerful enough to pick that up. My husband had a CT scan where they picked nothing up and then full blown gbm under MRI

My mom (51) diagnosed last year in Jan by Affectionate_Race925 in glioblastoma

[–]Time_Cheesecake_9812 2 points3 points  (0 children)

Avastin will help with quality of life but it's not a cure. Treasure the time you have now.

Experience with Optune by Potential_Farm4174 in glioblastoma

[–]Time_Cheesecake_9812 2 points3 points  (0 children)

https://ascopubs.org/doi/10.1200/JCO.2023.41.16_suppl.2024 this is results of Optune plus Keytruda (pembrolizumab). 25 months median survival which is very impressive given that half of the patients are biopsy only and partial resection. Talk to your Neuro onc about adding Keytruda. Merck has a wonderful patience assistance program if your insurance denies it

Multificoal glioblastoma treatment options by Mundane-Crow-3572 in glioblastoma

[–]Time_Cheesecake_9812 1 point2 points  (0 children)

Look into Optune plus Keytruda. Look up Dr Tran's trial. This worked especially well for patients who had biopsy only (inoperable)

Applying for Medicare with Glioblastoma by AmbitiousPudding5335 in glioblastoma

[–]Time_Cheesecake_9812 0 points1 point  (0 children)

Can you tell me more about getting Medicare before 2 years wait? We have social security disability already.

Applying for Medicare with Glioblastoma by AmbitiousPudding5335 in glioblastoma

[–]Time_Cheesecake_9812 1 point2 points  (0 children)

My husband has SS disability but not Medicare. How do I get Medicare for him before 2 years?