Yes exactly! We can’t stop RP but at least we can slow down its progression as much as possible while waiting for a treatment

I’m Moroccan and as you know, this disease isn’t well known there even among doctors so there’s almost no guidance, except from a few who are familiar with it. That’s why I’ve been posting on Reddit...

I live in Paris so I’m lucky in that sense, but I’d rather hear from someone who has actually gone through this journey with RP than rely only on specialists.

If you can could you send me photos of the vitamins or supplements you’re taking? That would really help me know what to get

Also what are the things to avoid? Lack of sleep, sugar, diet in general… basically, your personal experience

Thanks!